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Posts Made By:
jessica
Forum:
Herceptin / Tykerb
05-14-2007, 03:22 PM
Replies:
6
To Tykerb...or not to Tykerb...
Views:
2,277
Posted By
jessica
To Tykerb...or not to Tykerb...
Hi All~
Jessica here, joining you at this "To Tykerb or not" crossroads. I feel so fortunate to have your experience & guidance, but would appreciate more of your insight...
I just had a my regular...
Forum:
her2group
04-30-2007, 06:36 AM
Replies:
5
Tatoo's and MRI's
Views:
1,128
Posted By
jessica
I have 2 tatoos & get MRI's pretty regularly &...
I have 2 tatoos & get MRI's pretty regularly & have noticed that question on the intake sheet.
But no worries...apparently, 20 years ago,tattoo dyes contained metal fragments & ostensibly could...
Forum:
her2group
04-29-2007, 05:26 AM
Replies:
4
Herceptin - does the length of actual infusion change side effects?
Views:
1,247
Posted By
jessica
30 vs. 90 min infusion
Hey Erin~
Funny you should mention this...Way back when I was first dx'd, first time NED & on Herceptin solo, I was always told that whether you're on qweekly or q3week Herceptin, the infusion time...
Forum:
her2group
04-19-2007, 04:49 AM
Replies:
14
Herceptin given fast yesterday - is that ok?
Views:
1,369
Posted By
jessica
Q3week Herceptin -30mins or 90 mins?
I don't think you have anything to worry about, Caroline.
I wish I could get my q3week Herceptin dose in 30mins!!
At the previous onc I was seeing, my Herceptin infusions were always only...
Forum:
her2group
04-16-2007, 06:25 PM
Replies:
11
Chemopause
Views:
2,353
Posted By
jessica
Hi~ I've come out of chemopause each time after...
Hi~
I've come out of chemopause each time after finishing chemo. After the 1st year of chemo, it was ~3 months after my last tx before my cycle returned.
But it totally took me by surprise...I...
Forum:
her2group
04-11-2007, 09:00 PM
Replies:
5
Capsular contracture, anyone?
Views:
1,392
Posted By
jessica
Thanks so much ladies for your wisdom! I've...
Thanks so much ladies for your wisdom!
I've discovered "TUMMY TIME" - lying on my belly & chest to keep the capsule stretched out. It feels very odd & uncomfortable, b/c I can't rest my head on the...
Forum:
her2group
04-11-2007, 07:55 PM
Replies:
14
Recurrance Too - Liver
Views:
2,347
Posted By
jessica
RFA & Liver Resection
Hey Adriana~
I had two surgical procedures to address the single liver met (in addition to lots o'chemo - 81 total weeks).
The 1st surgical procedure was RFA - Radio Frequency Ablation. It's an out...
Forum:
her2group
04-11-2007, 01:49 PM
Replies:
14
Recurrance Too - Liver
Views:
2,347
Posted By
jessica
Out, out damn spot!
Hi Julie~
UGH! Spot's back...I'm so sorry. What a bummer.
BUT - Thank God it's just one spot. Thank God TYKERB is available to you. I do hope this combo will make swift work of that damn spot & NED...
Forum:
her2group
04-02-2007, 12:13 PM
Replies:
30
WOW, WOW, is all I can say!!!!
Views:
2,853
Posted By
jessica
Take THAT you stinky old skin mets!
Reading your post I got this great image of Dorothy in The Wizard of Oz tossing water on Elphaba-the Green Wicked Witch of the West! Remember, Elphaba gave one, last ear-piercing SHRIEK before...
Forum:
her2group
04-02-2007, 12:02 PM
Replies:
5
Capsular contracture, anyone?
Views:
1,392
Posted By
jessica
Capsular contracture, anyone?
Hi All~
I feel so very fortunate to find myself preoccupied with this rather light topichttp://www.her2support.org/vbulletin/images/smilies/wink.gif...just wondering, anyone else out there with...
Forum:
her2group
04-02-2007, 11:15 AM
Replies:
15
any help please? pregnancy
Views:
2,142
Posted By
jessica
Hi Georgie~ While I don't have any specific...
Hi Georgie~
While I don't have any specific advice or knowledge to offer, rest assured that someone here will!
I'm inclined to assume that an ER neg tumor during pregnancy (when hormone levels are...
Forum:
her2group
03-30-2007, 01:18 PM
Replies:
34
Bad Scan....
Views:
2,540
Posted By
jessica
stupid little spot
Oh Chrisy~
I'm so sorry! It absolutely totally completely SUCKS to get this news & I so feel for you.
I once upon a time had "innumerable, immeasureable" liver mets too. After a year of chemo, I...
Forum:
her2group
03-26-2007, 06:00 AM
Replies:
10
reconstruction w/implants question??
Views:
1,361
Posted By
jessica
Hi~ I just had my expander "swap out" 3 weeks...
Hi~
I just had my expander "swap out" 3 weeks ago after a L skin sparing mastectomy. In the process, my R side was augmented (slightly-just 250cc's) to match the L.
My implants are silicone & I am...
Forum:
her2group
03-23-2007, 05:22 AM
Replies:
14
need some support
Views:
1,802
Posted By
jessica
Kerry~ Sending you positive, calming waves of...
Kerry~
Sending you positive, calming waves of comfort today!
I was dx'd in 2002, 33years old & Stage IV. I get scanned ~q12 weeks. I've definitely gotten better managing nerves & anxiety @ScanTime,...
Forum:
her2group
03-21-2007, 09:17 PM
Replies:
5
Her 2 Positive
Views:
1,526
Posted By
jessica
Adjuvant Herceptin - HERA trial
Ismary~
Sorry you've had to join us here, but you'll find lots & lots of great advice & wisdom from this group. You're right, Her2+ tumors are typically more aggressive & insidious w/a higher...
Forum:
her2group
03-18-2007, 07:56 PM
Replies:
25
starting weekly Taxol & Herceptin - hair loss?
Views:
18,211
Posted By
jessica
TH-my "magic" cocktail~
I have a strange LOVE & FONDNESS for Taxol+Herceptinhttp://www.her2support.org/vbulletin/images/smilies/wink.gif
I was on the dose-dense (qweekly) dosage too. I had been on other chemo combos for 8...
Forum:
her2group
03-16-2007, 03:02 PM
Replies:
12
It's back...scared!
Views:
1,808
Posted By
jessica
RFA & many other options still available!
Eric & Caryn~
I'm so sorry you guys are going through this! This discovery is a scary period, but hang in there, you'll find your way & we are all here to help! You've already gotten some great...
Forum:
her2group
03-14-2007, 09:12 PM
Replies:
10
Becky, What does this mean?
Views:
2,111
Posted By
jessica
a matter of semantics...
"Disease progression" is NOT synonymous w "DEATH SENTENCE"
Many of us here have beat back disease that has "progressed" multiple times, and lived to tell about it!
Thank God for Tykerb & all the...
Forum:
her2group
03-14-2007, 07:19 AM
Replies:
9
Help Me Understand Please
Views:
1,544
Posted By
jessica
Just want to help clarify... A recurrence can...
Just want to help clarify...
A recurrence can be LOCAL or DISTAL
A DISTAL recurrence is considered metastasis - this is Stage IV disease.
This disease can be really unpredictable & unfortunately,...
Forum:
her2group
03-14-2007, 06:43 AM
Replies:
11
Son could use a little advice ...
Views:
1,678
Posted By
jessica
...speaking of verbose...Hope this helps!
Hey Bob~
Your mom is clearly a SURVIVOR & A FIGHTER.It must bring her much peace & confidence to have you by her side! Having someone to help maneuver the confusion of a new diagnosis is so helpful!...
Forum:
her2group
03-11-2007, 06:28 PM
Replies:
4
Bilat Mastectomy w/ Expanders Done
Views:
1,379
Posted By
jessica
Yeah-Clean path!!
Hey Skeetur~
Glad to hear you're doing well! Great path report- Yeah!
I had my expander swap out & augmentation of my other breast the same last Friday (3/2) too. I hope you are healing as quickly...
Forum:
her2group
03-07-2007, 05:38 PM
Replies:
14
hi
Views:
1,363
Posted By
jessica
Lucky Fairies!
Keep your spirits up, Joy!
Sounds like you had a great day, inspite of tomorrow's pending results.
Thanks for sharing it with us.
Keeping you in thoughts & prayers~
Jml
Forum:
her2group
03-07-2007, 05:29 PM
Replies:
10
Scared and Confused
Views:
1,425
Posted By
jessica
CT/PET combo?
So sorry you guys are going through this again!
Any chance of getting a CT/PET combo?
A combo study cuts out the add'l anxiety of having a CT that reveals something, then going in for a PET and...
Forum:
her2group
03-07-2007, 08:31 AM
Replies:
17
I miss Lisa, Al...
Views:
1,971
Posted By
jessica
Rhonda~what a thoughtful post...
Rhonda-so insightful...
I feel like the boards have been a little "heavy" & uninspired lately...
I'd love to see us all get on a positive role again. There's been some great stuff going on like,...
Forum:
her2group
03-07-2007, 07:56 AM
Replies:
19
The bc patient has NO rights! I'm tossed out!
Views:
3,151
Posted By
jessica
Sage advice"...more flies w/honey vs. vinegar..."
I have to say, I absolutely agree with AnneMarie...however, that doesn't mean I disagree w/Chelee, or her frustrations or attempts to resolve her grievance.
We've all had great challenges w/our...
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