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Search took 0.01 seconds. Search: Posts Made By: Janelle
Forum: her2group 04-12-2010, 07:48 PM
Replies: 23
Views: 3,010
Posted By Janelle
Re: Dr in Dana Farber for Multiple Myeloma?

Oh, I'm so sorry. This is just unimaginable like you said. I'm wishing you peace and much strenght in this devestating time.
Forum: Articles of Interest 03-21-2010, 03:47 PM
Replies: 22
Views: 11,986
Posted By Janelle
Re: Risk of Recurrent Disease in HER2-Positive Patients

I am also very interested in Dr. Slamon's opinion on this. I consulted with him a couple of years ago for a second opinion on whether to take tamoxifen which my primary onc strongly recommended. He...
Forum: her2group 11-17-2009, 10:20 PM
Replies: 112
Views: 11,809
Posted By Janelle
Re: ~Mighty Oak Has Earned His Wings And Halo...

Marie,
I mostly lurk but I have followed Mighty Oak's and your journey. I'm so sorry for your loss and know how hard and bravely you both fought against this disease. You both contributed more good...
Forum: her2group 04-19-2009, 10:49 AM
Replies: 6
Views: 1,719
Posted By Janelle
Thank you all so much for your input. You all are...

Thank you all so much for your input. You all are amazing!
Forum: her2group 04-19-2009, 01:10 AM
Replies: 6
Views: 1,719
Posted By Janelle
Thanks, Rich!

Thanks, Rich!
Forum: her2group 04-18-2009, 04:31 PM
Replies: 6
Views: 1,719
Posted By Janelle
Exclamation Help for sister with multiple liver mets

Hi Friends,
I have a close friend who is 36 years old and HER2 negative so she doesn't post on this board. She was diagnosed in January of 2007 and found out in February that she has multiple liver...
Forum: her2group 03-14-2009, 12:18 PM
Replies: 44
Views: 5,559
Posted By Janelle
I would double check with your doctor about soy....

I would double check with your doctor about soy. My doctor advised me to avoid it since I'm ER positive and soy acts as a synthetic estrogen. This is a conversial topic but I would research this...
Forum: her2group 02-10-2009, 10:17 PM
Replies: 23
Views: 3,010
Posted By Janelle
Best wishes, Karen for your husband's successful...

Best wishes, Karen for your husband's successful treatment. He sounds like he is off to an excellent start to recovery.
Forum: Clinical Trials 01-25-2009, 11:40 AM
Replies: 20
Views: 9,502
Posted By Janelle
Alice, Yes. You must enroll in the trial with...

Alice,
Yes. You must enroll in the trial with in 6 months of your last Herceptin treatment. To be eligible you must be NED but at high risk for recurrence.

Let me know if you have other...
Forum: Clinical Trials 01-24-2009, 09:54 PM
Replies: 20
Views: 9,502
Posted By Janelle
No, the water retention only happened once. It...

No, the water retention only happened once. It was hot in Houston when that happened and I had just flown in and I was probably dehydrated from a wedding weekend. I'm not sure if dehydration would...
Forum: Clinical Trials 01-24-2009, 06:02 PM
Replies: 20
Views: 9,502
Posted By Janelle
Carolina, See below from Dr. Mittendorf at MD...

Carolina,
See below from Dr. Mittendorf at MD Anderson. I'll update you when I receive more info.
Best,
Janelle


Janelle-

I don't know the answer off the top of my head but have made an...
Forum: Clinical Trials 01-24-2009, 02:36 PM
Replies: 20
Views: 9,502
Posted By Janelle
Where do you live? Fewer than 10 people are...

Where do you live? Fewer than 10 people are enrolled at MD Anderson right now. I can try to find out from MD Anderson if they have the enrollment stats for Wake Forrest.
Forum: her2group 12-27-2008, 06:53 PM
Replies: 23
Views: 3,010
Posted By Janelle
Eric, I'm so sorry to hear about your aunt's...

Eric,
I'm so sorry to hear about your aunt's diagnosis. I have a friend in Los Angeles who is a 20 year breast cancer survivor (she was diagnosed at age 30 with breast cancer) and was diagnosed at...
Forum: Clinical Trials 10-19-2008, 03:10 PM
Replies: 20
Views: 9,502
Posted By Janelle
I had my first injectin on Wednesday, Oct. 15. ...

I had my first injectin on Wednesday, Oct. 15.

I experienced fluid retention in my ankles within 2 hours of receiving my first injection. Apparently this is a somewhat uncommon side effect but...
Forum: Clinical Trials 10-12-2008, 02:25 AM
Replies: 20
Views: 9,502
Posted By Janelle
HER2 trial

You need to enrol within 6 months of your last herceptin treatment. I can give you more details later....just remind me. I just got home from a wedding and I need to fly to MD Anderson...
Forum: Clinical Trials 10-11-2008, 12:00 AM
Replies: 20
Views: 9,502
Posted By Janelle
Thanks for the encouragement, Debbie. Do you...

Thanks for the encouragement, Debbie. Do you bones hurt after the injection?

Any other symptoms? I was told I might experience flu like symptoms.....I just want to mentally prepare. Thanks!
...
Forum: Clinical Trials 10-09-2008, 07:53 PM
Replies: 20
Views: 9,502
Posted By Janelle
Yes, I was wondering about that 60-70% stat too. ...

Yes, I was wondering about that 60-70% stat too. I figured it must include those who overexpress HER2 to a slight degree. There is a subset of Her2 positve population that overexpresses HER2 but...
Forum: Clinical Trials 10-09-2008, 06:18 PM
Replies: 20
Views: 9,502
Posted By Janelle
It was my understanding that this trial is NOT...

It was my understanding that this trial is NOT targeted toward women with metastatic breast cancer. My understanding is that this vaccine is being tested in HER2 positive women who are currently NED...
Forum: Articles of Interest 10-02-2008, 08:10 PM
Replies: 4
Views: 1,291
Posted By Janelle
Thanks for your input, Nguyen!

Thanks for your input, Nguyen!
Forum: Clinical Trials 10-02-2008, 12:42 AM
Replies: 1
Views: 3,531
Posted By Janelle
I have somewhat similar stats. I was diagnosed as...

I have somewhat similar stats. I was diagnosed as a late Stage 1 (or stage I(c) ) but I had vascular invasion. I, too, had a double mastectomy. I then had 6 months of chemo. See below for my...
Forum: Articles of Interest 09-28-2008, 02:07 PM
Replies: 4
Views: 1,291
Posted By Janelle
ovarian ablation and HER2

Can you dumb this down for me? Does this study suggest we should consider NOT taking drugs that remove estrogen from our bodies (tamox) if we are triple positives???

Thanks!
Janelle
Forum: her2group 09-25-2008, 06:39 PM
Replies: 61
Views: 5,338
Posted By Janelle
wow- great news

So happy to hear your wonderful news, Christine!!!! Amazing!
Forum: her2group 07-19-2008, 12:33 AM
Replies: 21
Views: 2,623
Posted By Janelle
Rebecca, How old are you? Are you...

Rebecca,
How old are you? Are you premenopausal? I chose to have double masts even though I was node negative because I was under 40 when diagnosed and I had many years ahead of me (God willing)...
Forum: Clinical Trials 07-19-2008, 12:26 AM
Replies: 9
Views: 4,539
Posted By Janelle
Kym, Thanks for the update and being one of the...

Kym,
Thanks for the update and being one of the brave ones who tried a new therapy. Your cocktail was approved by the FDA one month after I was diagnosed in October, 2006. I hope I will post a...
Forum: her2group 07-17-2008, 10:32 PM
Replies: 18
Views: 2,041
Posted By Janelle
Excellent intelligence, Jean. I do not have mets...

Excellent intelligence, Jean. I do not have mets but it makes sense for me to get a baseline now that I am finished with chemo and herceptin. It seems like this would be a logical way to show...
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