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Forum: her2group 10-25-2009, 09:10 PM
Replies: 15
Views: 2,901
Posted By dlaxague
Re: A shocker was DCIS then went to the bloodstream stage 4

So sorry to hear what you've been through. The most-likely explanation for your very-unpleasant surprise is that the initial pathology missed the invasive component of your diagnosis (iow, it was...
Forum: her2group 10-22-2009, 01:37 PM
Replies: 10
Views: 1,962
Posted By dlaxague
Re: Can someone explain what metastic disease means?

"I explained that I was confused because I thought I was at stage IIIA. I had 7/12 nodes involved but it hadn't spread to any other organs. The nurse said that because I had it in my lymph nodes, it...
Forum: her2group 08-21-2009, 06:19 PM
Replies: 8
Views: 1,368
Posted By dlaxague
Re: DCIS - Chemo

Cool question, Mary Ann. I don't know the answer but my guess is that it doesn't have anything to do with chemo not penetrating. It's that chemo only works on rapidly-dividing (aggressively...
Forum: her2group 03-12-2009, 08:15 PM
Replies: 12
Views: 1,954
Posted By dlaxague
Reply to Lani's HERA post is rejected??

Hi, I tried to reply in usual way to Lani's HERA news and got this message: Your submission could not be processed because a security token was invalid.

If this occurred unexpectedly, please...
Forum: her2group 12-31-2008, 08:30 AM
Replies: 7
Views: 1,252
Posted By dlaxague
How typically forgetful (and embarrassing)

Thank you, Joe for the offer to change our usernames. I was hoping not to bother you. And as it turns out, I do not have to after all ...

So ... I went to the member list to look for...
Forum: her2group 12-30-2008, 08:47 AM
Replies: 6
Views: 1,350
Posted By dlaxague
lymph node replacement? Avastin?

Did anyone else see the article about surgery that took nodes from somewhere else (I think the groin), and put them in the axilla with microsurgery techniques, curing lymphedema in 5 of 6 people? I...
Forum: her2group 12-28-2008, 09:00 AM
Replies: 7
Views: 4,427
Posted By dlaxague
treatment vs. prevention

Hi Rich,

I don't remember anything new. The L-glutamine idea that Lani posted has been around for a long time - I took it in 2001. And I think that it's meant as preventative - I don't think...
Forum: her2group 12-26-2008, 10:42 AM
Replies: 1
Views: 1,421
Posted By dlaxague
Wal Mart Rx program - $4/month?!

Hello,

I can't believe that I'm writing about something good at WalMart. Did you know that they have a prescription drug program that offers many common medications for $4/month or $10/90 days? ...
Forum: her2group 12-24-2008, 05:29 PM
Replies: 33
Views: 3,144
Posted By dlaxague
great thread for the holidays

I'm so glad, and amused, and heart-warmed, to hear from others who, like me, are not perfect. Those who admit to lack of control, and backsliding, and guilt-at-the-same-time. I think that most of...
Forum: her2group 12-24-2008, 08:35 AM
Replies: 1
Views: 860
Posted By dlaxague
For Marie

ABSTRACT: Depression in Family Caregivers of Cancer Patients: The Feeling of Burden As a Predictor of Depression

[Journal of Clinical Oncology; Subscribe; Sample]
Purpose: The purpose of this...
Forum: her2group 12-19-2008, 06:51 PM
Replies: 6
Views: 1,115
Posted By dlaxague
I had no port

Hi,

You asked for report from those who had no ports, so I'm reporting in. I had A/C x 4 and Taxol x 4, every three weeks, plus multiple blood draws - lots of extra ones because my WBC's kept...
Forum: her2group 12-19-2008, 06:33 PM
Replies: 6
Views: 1,384
Posted By dlaxague
fascinating!

Thanks for posting this fascinating article, Steph. I didn't understand every bit of it, but enough to get the idea. I knew that dense breasts were associated with higher risk of bc, but not that...
Forum: her2group 12-15-2008, 10:44 AM
Replies: 7
Views: 1,455
Posted By dlaxague
Another last one here

My flight out isn't until 3pm. It feels different to sit here La Quinta's lobby without the hustle and bustle of thousands of symposium attendees coming and going.

This was my fifth consecutive...
Forum: her2group 12-08-2008, 08:42 PM
Replies: 18
Views: 2,076
Posted By dlaxague
lump not required, as far as I know

Hi AA,

I, too was wondering where you were going with this. I can't respond to your poll either because it doesn't apply to my situation.

My sense is that most of us on this list are not brand...
Forum: her2group 12-03-2008, 06:42 PM
Replies: 50
Views: 5,386
Posted By dlaxague
Brenda and Mary Jo - thank you!

Brenda and Mary Jo,

I'm of course not glad to hear that you're feeling down, and I send you many good thoughts and prayers for improvement.

But at the same time - I'm really glad that you...
Forum: her2group 12-03-2008, 10:31 AM
Replies: 44
Views: 5,564
Posted By dlaxague
relatively resistant to hormonal therapy - not just Tamoxifen

Hi all,

When the adjuvant AI data first started appearing, there was a lot of talk about AI's being better in HER2+ cancer because HER2+ cancer was Tamoxifen resistant. But I think that over the...
Forum: her2group 12-01-2008, 11:32 AM
Replies: 12
Views: 1,624
Posted By dlaxague
pain specialists

Marie, do you have access to providers who specialize in pain management? Some are called palliative care specialists or simply pain specialists. They are really good at what they do and work hard...
Forum: her2group 11-21-2008, 12:08 PM
Replies: 9
Views: 1,783
Posted By dlaxague
more references

I can't find the full text of Paul Gnant's study that I mentioned below. He presented it at ASCO in 2008. Here's one snip from the press release that was reported many places:

"The new study...
Forum: her2group 11-21-2008, 08:50 AM
Replies: 9
Views: 1,783
Posted By dlaxague
not just bone mets

Hi Robin,

I haven't taken these drugs, so can't answer your question. But I have a tag-along question to add to yours.

In the study most recently reported, which was of premenopausal women...
Forum: her2group 11-20-2008, 11:55 AM
Replies: 16
Views: 2,118
Posted By dlaxague
lots of different trials

Hi Ceesun,

The trials at U of W vary from time to time, as they keep looking at new approaches, for new people. Here's their website with what they have going right now (4 trials). There are...
Forum: her2group 11-18-2008, 12:59 PM
Replies: 4
Views: 1,477
Posted By dlaxague
Rich said: "I really fear for folks who have any...

Rich said: "I really fear for folks who have any cognitive issues and no advocate.."

Me too! Not just for medical decisions either, and not just for seriously impaired people. For example, I...
Forum: her2group 11-18-2008, 12:38 PM
Replies: 14
Views: 2,613
Posted By dlaxague
Right, no argument with mets

Maybe we're not communicating well here. I keep saying the same thing and you keep saying the same thing. Email is hard that way, sometimes.

I have no argument with the test for metastatic...
Forum: her2group 11-18-2008, 08:04 AM
Replies: 14
Views: 2,613
Posted By dlaxague
Lani said: TO ME THAT MEANS IT IS A PREDICTOR OF...

Lani said: TO ME THAT MEANS IT IS A PREDICTOR OF HOW WELL HERCEPTIN MAY WORK, which may reflect both inherent efficacy ie, lack of inherent resistance.

I didn't say there was no value to the...
Forum: her2group 11-17-2008, 10:06 AM
Replies: 14
Views: 2,613
Posted By dlaxague
I don't follow ...

serum her2 ECD if performed BEFORE&after surgery may help predict herceptin efficacy

Thanks for taking the time to post all those, Lani. But I don't understand how you drew the above conclusion. ...
Forum: her2group 11-17-2008, 09:11 AM
Replies: 2
Views: 1,764
Posted By dlaxague
AI = uterine THINNING

Hi Terri,

I was just starting a new thread for the same reason as you when I looked back and saw you'd beat me to it (smile). My understanding was as yours - that AI's do not have the same...
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