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Search: Posts Made By: Pamelamary
Forum: her2group 06-23-2019, 01:11 AM
Replies: 36
Views: 2,748
Posted By Pamelamary
Re: Whack-a-mole next...

Flori - hard to find words, but just keep dancing as long as you can.
Sending love and strength.....Pam
Forum: her2group 06-10-2019, 12:50 AM
Replies: 17
Views: 2,666
Posted By Pamelamary
Re: Brain met ??? Anyone have advice

Glad to hear things are going well - good luck with the next scan.
Forum: her2group 04-29-2019, 12:55 AM
Replies: 12
Views: 1,025
Posted By Pamelamary
Re: Will be 8yrs NED from Stage IV in April

Coming up behind you, Kim, Kai and Diana - currently 7 years stage IV. But not forgetting all those who haven't made it so far. Often think somebody should be studying why some of us continue to...
Forum: her2group 04-17-2019, 04:18 PM
Replies: 124
Views: 14,682
Posted By Pamelamary
Re: Treatment after Kadcyla?

Thank you Iain, and condolences to you and all Julie's family and friends. A sad loss to our community.
Forum: her2group 02-28-2019, 12:05 AM
Replies: 16
Views: 893
Posted By Pamelamary
Re: 7 years stage IV

Thanks for all the good wishes - nice to know we are part of a community. Maybe I never would have wanted to be a part of this thing, but am always inspired by the support offered here.
Dawn, are...
Forum: her2group 02-27-2019, 12:07 AM
Replies: 16
Views: 893
Posted By Pamelamary
Re: 7 years stage IV

Hi Cathy,
I am on Zometa for the bones - was Osteopaenic (?) before the stage IV diagnosis. Bone density actually improved a bit with several years of Xgeva. However, there are problems with long...
Forum: her2group 02-18-2019, 11:20 PM
Replies: 16
Views: 893
Posted By Pamelamary
7 years stage IV

Now celebrating! I haven't updated for a while, but a bone scan last November seemed to show new activity. My oncologist wasn't too concerned as my cancer has been very slow moving, so we just...
Forum: Articles of Interest 02-07-2019, 12:01 AM
Replies: 1
Views: 590
Posted By Pamelamary
Re: MacroGenics’ margetuximab beats Herceptin in phase 3

Great news! A new 3rd line treatment?
Thanks, Nguyen.
Forum: her2group 02-05-2019, 12:38 AM
Replies: 16
Views: 837
Posted By Pamelamary
Re: Pericarditis Query

11 years, Marie! Sorry to hear about the latest complications. Almost ironic that some of us may end up less worried about cancer than about other (maybe) unrelated issues. Wishing you clear insight...
Forum: her2group 01-07-2019, 01:51 AM
Replies: 111
Views: 14,286
Posted By Pamelamary
Re: ZW25 clinical trial - day one

Ditto Flori.... hope things are improving - thinking of you!..... Pam
Forum: her2group 01-07-2019, 01:47 AM
Replies: 5
Views: 1,576
Posted By Pamelamary
Re: Mets

Sorry Gardener,
No personal experience, but sure I've read something about this - search the site.
Best wishes.... Pam
Forum: her2group 12-20-2018, 01:35 PM
Replies: 17
Views: 2,666
Posted By Pamelamary
Re: Brain met ??? Anyone have advice

Hi Benk,
While it is hard to get your suspicions confirmed, at least there is only one and you now have a treatment plan. People have had great results from gamma knife. We'll be thinking of your...
Forum: her2group 12-08-2018, 10:29 PM
Replies: 17
Views: 2,666
Posted By Pamelamary
Re: Brain met ??? Anyone have advice

Hi Benk,
Really sorry to hear this. There have been many women here with experience in this area and I am sure some will reply to this thread. You could also search the site for past discussions....
Forum: her2group 11-21-2018, 12:01 AM
Replies: 111
Views: 14,286
Posted By Pamelamary
Re: ZW25 clinical trial - day one

Best wishes, Flori!
Forum: her2group 10-23-2018, 12:00 AM
Replies: 2
Views: 2,036
Posted By Pamelamary
Re: incredible futuristic treatment of her2+ brain mets being developed!!

Sounds exciting, Lani , but I do get a bit depressed at times at the gap between research like this and its implementation. Too many women I know have died recently.....
Best wishes... Pam
Forum: her2group 08-30-2018, 01:37 AM
Replies: 111
Views: 14,286
Posted By Pamelamary
Re: ZW25 clinical trial - day one

Hope this trial works well for you! Can understand the anxiety and distaste for steroids - I used to go so red, my oncologist always knew that I had been taking them as instructed. My husband...
Forum: her2group 08-18-2018, 12:30 AM
Replies: 12
Views: 3,120
Posted By Pamelamary
Re: Oxygen Levels

Katherine,
I guess you have to go with what you have been told by the medicos. You can at least check when your oncologist is around. I can really feel for your reluctance to have oxygen as a...
Forum: her2group 08-14-2018, 12:58 AM
Replies: 14
Views: 3,097
Posted By Pamelamary
Re: Keytruda

Katherine, thank you for your post - it rings so true! Having some kind of treatment plan is so important. Good luck with the Keytruda!
Best wishes..... Pam
Forum: her2group 07-22-2018, 02:20 PM
Replies: 12
Views: 4,122
Posted By Pamelamary
Re: MBC Triple positive's here's an exciting possibility

Sounds great, Cathy! Hope this new treatment continues to work well for you for a long time to come.
Best wishes.... Pam
Forum: Breast Cancer Newsfeed 07-21-2018, 01:07 AM
Replies: 2
Views: 2,380
Posted By Pamelamary
Re: Eating dinner earlier could reduce cancer risk

You made me laugh, Steph - yet another study showing I shouldn't have cancer at all. Should we try big breakfasts?
Best wishes.... Pam
Forum: her2group 07-14-2018, 12:28 AM
Replies: 9
Views: 3,157
Posted By Pamelamary
Re: Milestone?

Thanks for all the kind thoughts. I love Donna's sentiments and like to think of the light in me honouring the light in all of this community of women. As Jackie says, we all laugh and cry at the...
Forum: her2group 07-11-2018, 01:06 AM
Replies: 9
Views: 3,157
Posted By Pamelamary
Milestone?

Today I reached herceptin cycle 100 - don't know whether to open some champagne or cry. Guess the former would be more fun. However, I am feeling some grief for all that I have lost since the Stage...
Forum: her2group 07-09-2018, 01:00 AM
Replies: 12
Views: 4,122
Posted By Pamelamary
Re: MBC Triple positive's here's an exciting possibility

Thanks Cathy - good news indeed..... Pam
Forum: her2group 06-13-2018, 11:17 PM
Replies: 44
Views: 6,909
Posted By Pamelamary
Re: Finally joining the thirteen year club!

Congratulations Tricia! Here's to many more.
Best wishes.... Pam
Forum: her2group 06-13-2018, 11:16 PM
Replies: 124
Views: 14,682
Posted By Pamelamary
Re: Treatment after Kadcyla?

Hi Juls,
Sorry to hear this. Might be an idea to find out about what trials are available. I have heard of promising results from Herceptin + Keytruda, and there is some new formulation of Herceptin...
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