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Search: Posts Made By: Lucy
Forum: her2group 09-05-2020, 05:22 PM
Replies: 5
Views: 2,210
Posted By Lucy
Re: Just accepted into clinical trial

If it were me, I would want the MRI too. Do you know what it would cost if not covered by insurance? If it's not outrageous I would consider paying out of pocket if insurance won't pay. If it is...
Forum: Keeping Your Mind Off of BC 03-16-2020, 07:59 PM
Replies: 0
Views: 2,936
Posted By Lucy
Post in Next Door

I thought this was great!

Pissed

Oh, I’m VENTING!!!!!!! Because I'M PISSED!! 😡 I went to the grocery store earlier to pick up a few things. I'm waiting in the checkout line and I dropped a...
Forum: Keeping Your Mind Off of BC 03-15-2020, 01:39 PM
Replies: 19
Views: 11,308
Posted By Lucy
Re: Favorite Movies

I've never seen The Sound of Music. I recently was traveling and it was one of the movie options on the flight. I'm not typically able to sleep on planes and one of my friends (who I was traveling...
Forum: her2group 03-14-2020, 09:24 PM
Replies: 22
Views: 9,036
Posted By Lucy
Re: ENHERTU aka DS8401A

That's amazing Flori! I'm so glad to hear it and glad you shared it.

All the best to you!
Forum: her2group 03-09-2020, 08:16 PM
Replies: 2
Views: 2,529
Posted By Lucy
Re: Corona Virus

I'm not currently getting infusions but I do have an appointment in a couple of weeks and I got something from the hospital (can't remember exactly the method they used) that basically said if you've...
Forum: her2group 02-26-2020, 03:59 AM
Replies: 22
Views: 9,036
Posted By Lucy
Re: ENHERTU aka DS8401A

Flori,

You've been on my mind a lot lately so I'm glad to get this update from you.

It sounds like you have a great support system with you son and it sounds like you're being your best...
Forum: her2group 02-11-2020, 05:21 PM
Replies: 2
Views: 2,681
Posted By Lucy
Re: For early stage bc, how are you being monitored?

I was stage 1A and my oncologist doesn't do testing unless the patient is symptomatic. I have had concerns about things in the past though and she ordered testing to alleviate any concerns (real or...
Forum: her2group 01-17-2020, 07:09 PM
Replies: 72
Views: 28,822
Posted By Lucy
Re: Whack-a-mole next...

Checking in again . . . Any updates Flori? Thinking about you.
Forum: her2group 10-31-2019, 06:32 AM
Replies: 10
Views: 7,963
Posted By Lucy
Re: Wife's Demise

I'm so sorry to hear this Ajit. I hate this disease.
Forum: her2group 10-31-2019, 06:30 AM
Replies: 9
Views: 3,953
Posted By Lucy
Re: Add me to the Thirteen Year Club!

It's always encouraging to hear from long term survivors. Here's to many more years NED!
Forum: her2group 10-31-2019, 06:28 AM
Replies: 72
Views: 28,822
Posted By Lucy
Re: Whack-a-mole next...

Hey Flori,

I've been thinking about you and wondering how you were doing. I noticed you've updated your signature to show some stability but also some progression. How are you though? When...
Forum: her2group 09-07-2019, 12:00 PM
Replies: 72
Views: 28,822
Posted By Lucy
Re: Whack-a-mole next...

I'm glad the news was better than expected. Thanks so much for updating us with the information. Keeping you in my thoughts and prayers. Hugs
Forum: her2group 09-04-2019, 06:12 AM
Replies: 72
Views: 28,822
Posted By Lucy
Re: Whack-a-mole next...

Flori, I am so sorry to hear this. But doctors are wrong all the time. As they say, doctors are only practicing. And also, you know what they call the medical student to finishes last in their...
Forum: her2group 09-03-2019, 12:57 PM
Replies: 72
Views: 28,822
Posted By Lucy
Re: Whack-a-mole next...

Good to hear from you Flori. Silence on the board can be scary!

Glad the QOL is still reasonable and hope the drugs are kicking the disease.

Is perjeta a consideration? It looks like you...
Forum: her2group 08-27-2019, 08:35 PM
Replies: 9
Views: 3,582
Posted By Lucy
Re: Tamoxifen - 8-10 years?

Bejuce,

My estrogen levels were lower than yours (7 or 10%, depending on which report you believed) but I was put on hormone blockers anyway. Within six months my liver enzymes shot up to the...
Forum: her2group 08-21-2019, 03:04 PM
Replies: 72
Views: 28,822
Posted By Lucy
Re: Whack-a-mole next...

Hey Flori, Like many others, just checking in to see how you're doing. The general hope is that you're out there living your best life and are too busy to check in here but when you have a minute,...
Forum: her2group 06-22-2019, 07:50 PM
Replies: 72
Views: 28,822
Posted By Lucy
Re: Whack-a-mole next...

That's a lot to have to take in! It sounds like you got a lot of answers too. Not necessarily good answers but sometimes the knowing is better than speculating so that you can make informed...
Forum: her2group 05-26-2019, 06:09 AM
Replies: 11
Views: 3,308
Posted By Lucy
Re: Melanoma Biopsy when almost 5yrs NED BC.

Something just occurred to me Jessica - if the surgeon cut part of the mole out during your mastectomy, shouldn't the tissue have been tested? If it was cancerous wouldn't it have caused it to...
Forum: her2group 05-26-2019, 02:52 AM
Replies: 11
Views: 3,308
Posted By Lucy
Re: Melanoma Biopsy when almost 5yrs NED BC.

Jessica,

I don't have any questions for you to ask but I think the best advice I could offer is to try to not dwell on what might be until you have some more details about what it is. Very hard...
Forum: her2group 05-25-2019, 06:05 PM
Replies: 34
Views: 18,368
Posted By Lucy
Re: Insurance Frustrations

I'm sure that's her. Thanks for checking and letting us know Caya! It's good to know that she's out there living her life. Given the nature of the site when someone takes time away, it can be...
Forum: her2group 05-24-2019, 07:38 PM
Replies: 34
Views: 18,368
Posted By Lucy
Re: Insurance Frustrations

Has anyone heard from Tracy lately? She hasn't been around in a while and I'm kind of worried. She said I could look her up on Facebook but I'm not on Facebook.
Forum: her2group 05-24-2019, 07:36 PM
Replies: 111
Views: 27,304
Posted By Lucy
Re: ZW25 clinical trial - day one

Oh Flori I'm so sorry to hear this. Not knowing is the worst. While you wait for all the test results the imagination has a way of running away from you and a lot of times is worse than the...
Forum: her2group 04-17-2019, 05:34 AM
Replies: 111
Views: 27,304
Posted By Lucy
Re: ZW25 clinical trial - day one

Sorry the trial did not work for you. One of the hardest things is having no control over things during treatment. I hope the scans are good and that you find a good path forward for treatment of...
Forum: her2group 04-17-2019, 05:29 AM
Replies: 124
Views: 26,095
Posted By Lucy
Re: Treatment after Kadcyla?

Oh Iain, I am so sorry for your loss. Your mother was a source of support on this board and she will be missed.
Forum: Herceptin / Tykerb 04-07-2019, 06:36 AM
Replies: 6
Views: 8,024
Posted By Lucy
Re: Administration Every 3 Weeks Instead of Weekly for First 18 Weeks

Now I'm wondering how old the report is you read. I was treated at MD Anderson where there is no shortage of doctors. It and Sloan Kettering are the top two cancer facilities in the country. I got...
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