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Search: Posts Made By: vqtilley
Forum: her2group 12-22-2018, 09:41 AM
Replies: 17
Views: 5,035
Posted By vqtilley
Smile Re: Brain met ??? Anyone have advice

Hi - very sorry you're dealing with this. Everyone's case is different, but I think you have good reason to hope.

Three years after my diagnosis (Stage IV), in Spring 2015, I was found to have a...
Forum: her2group 11-25-2015, 07:50 AM
Replies: 44
Views: 105,121
Posted By vqtilley
Re: Kadcyla Side Effects

Hi CoolBreeze - So sorry to hear you've been going through such a hard time! The pain factor sounds dreadful and the cachezia must be a major battle. But I'm glad you're on Kadcyla. Not to...
Forum: her2group 05-10-2015, 05:26 AM
Replies: 44
Views: 105,121
Posted By vqtilley
Re: Kadcyla Side Effects

Sympathies to you in watching this worrying indicator. My doctors aren't tracking TMs either so like Mtngrl I'm exempt from the anxiety. (One less thing to obsess about!) Otherwise, reading about the...
Forum: her2group 04-28-2015, 02:37 PM
Replies: 23
Views: 14,457
Posted By vqtilley
Re: Splitting nails

Hi, Mtngrl -- I'd be very interested to know if the anti-fungal over-the-counter treatment improves the splitting. Might you be willing to give it a try? We might be on to something.

And yes, I do...
Forum: her2group 04-25-2015, 08:54 AM
Replies: 23
Views: 14,457
Posted By vqtilley
Re: Splitting nails

Here's one unusual experience: My nails on Herceptin/Arimidex had become very thin, flaky and ridiculously fragile, always splitting and shredding, with pale dry ridgy surfaces and in some spots...
Forum: her2group 04-21-2015, 01:06 PM
Replies: 21
Views: 6,871
Posted By vqtilley
Re: TDM1 for HER2+ brain mets reocurrence?

Thanks so much, extraordinary story! Yes, I'm sure I'll have more questions and curiosity and may email you separately soon. I'm at work now so will have to ponder all this. But for the moment I'm...
Forum: her2group 04-21-2015, 10:50 AM
Replies: 21
Views: 6,871
Posted By vqtilley
Re: TDM1 for HER2+ brain mets reocurrence?

This is fascinating. I hope you don't mind a few questions. Do I understand correctly that for the past 28 months you are combining 100 mgs of IT Herceptin every four weeks with systemic TDM-1 since...
Forum: her2group 04-21-2015, 07:50 AM
Replies: 21
Views: 6,871
Posted By vqtilley
Re: TDM1 for HER2+ brain mets reocurrence?

The current Northwestern study is presently described as a dosage study. Is this dose range (below) lower than the the one you chose? May I ask what dosage you did choose?

"The initial phase of...
Forum: her2group 04-21-2015, 07:01 AM
Replies: 21
Views: 6,871
Posted By vqtilley
Re: TDM1 for HER2+ brain mets reocurrence?

Thanks, Rolepaul, and yes, longer term outcomes are vital & often omitted. But are you saying that Nina was the case in the Kalsi article? Not sure but she doesn't sound like the same case, reading...
Forum: her2group 04-21-2015, 06:14 AM
Replies: 21
Views: 6,871
Posted By vqtilley
Re: TDM1 for HER2+ brain mets reocurrence?

Thanks to everyone and especially Rhondalea for your kind advice on accessing the 2015 Kalsi review article on Kadcyla and brain mets. Prowling around Google I was able to access it free via Research...
Forum: her2group 04-04-2015, 07:22 PM
Replies: 44
Views: 105,121
Posted By vqtilley
Re: Kadcyla Side Effects

Thanks so much, Karina, I'd be really interested to read the article but the link doesn't work and Google/Google Scholar searches on the title only bring up the abstract with no free full text...
Forum: her2group 04-04-2015, 05:27 AM
Replies: 44
Views: 105,121
Posted By vqtilley
Re: Kadcyla Side Effects

I asked my med onc and he said transfer across the BBB is variable and not fully understood, so even though Kadcyla is a large molecule that normally doesn't pass through that doesn't mean none is....
Forum: her2group 03-29-2015, 07:35 AM
Replies: 44
Views: 105,121
Posted By vqtilley
Re: Kadcyla Side Effects

Hi, all - my first post on this wonderful forum! I just started Kadcyla on Friday, waiting for side effects. Very curious about Rupali's experience of brain met/s disappearing - I thought Kadcyla...
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