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Posts Made By:
Unclaimed
Forum:
her2group
12-09-2018, 02:29 PM
Replies:
124
Treatment after Kadcyla?
Views:
29,214
Posted By
Unclaimed
Re: Treatment after Kadcyla?
Hi Juls,
How have things been since the ablation? Any luck getting back on Herceptin?
Forum:
her2group
10-21-2018, 05:57 PM
Replies:
389
Calling all stage iv sisters
Views:
157,377
Posted By
Unclaimed
Re: Calling all stage iv sisters
This is wonderful. Thank you so much everyone. I'm one of the newbies. I started at Stage 4
Forum:
her2group
10-17-2018, 06:46 PM
Replies:
15
12 Years Out!
Views:
5,214
Posted By
Unclaimed
Re: 12 Years Out!
Happy "anniversary". Wishing you many more!
Forum:
her2group
10-17-2018, 06:44 PM
Replies:
111
ZW25 clinical trial - day one
Views:
30,181
Posted By
Unclaimed
Re: ZW25 clinical trial - day one
Wonderful news! So happy to hear the trial is working for you!
Forum:
her2group
10-02-2018, 08:16 AM
Replies:
3
? counteract hand-foot syndhrome from Xeloda
Views:
3,338
Posted By
Unclaimed
Re: ? counteract hand-foot syndhrome from Xeloda
Hello,
When I was on Xeloda the skin on my hands and feet turned a dark purple! I used to tell people, "My skin is a color of skin that skin doesn't come in". They looked at me funny until I...
Forum:
her2group
07-28-2018, 05:57 PM
Replies:
5
Seeking Whole Brain Radiation Info
Views:
3,912
Posted By
Unclaimed
Re: Seeking Whole Brain Radiation Info
Hi Katherine,
I don't know where you are so I don't know if this will be helpful, but Google Maryland Proton Treatment Center. They use a technique called Pencil Beam Therapy which is focused and...
Forum:
her2group
06-19-2018, 04:56 PM
Replies:
17
hope for those with brain mets
Views:
5,723
Posted By
Unclaimed
Re: hope for those with brain mets
Hi Lucy,
My biopsy report says I am estrogen and progesterone receptor negative. I bought Milk Thistle Extract from the Vitamin Shoppe. I hate to swallow pills, so I'll only take it once a day...
Forum:
her2group
06-15-2018, 06:18 AM
Replies:
17
hope for those with brain mets
Views:
5,723
Posted By
Unclaimed
Re: hope for those with brain mets
Hello Donocco,
Thank you for responding! I didn't think you were advocating or advising for the use of milk thistle. I thought it might be possible for something that may impact already present...
Forum:
her2group
06-14-2018, 03:39 PM
Replies:
17
hope for those with brain mets
Views:
5,723
Posted By
Unclaimed
Re: hope for those with brain mets
Hello Donocco,
Do you think taking Milk Thistle as a preventative measure is worthwhile?
Forum:
her2group
05-09-2018, 06:48 PM
Replies:
34
Insurance Frustrations
Views:
20,100
Posted By
Unclaimed
Re: Insurance Frustrations
Hello SoCalGal
Thank you for replying. I did add Perjeta to my last Herceptin infusion which was last Thursday. I had to go to the bathroom on Monday a few times more than normal, but other than...
Forum:
her2group
05-03-2018, 03:46 PM
Replies:
34
Insurance Frustrations
Views:
20,100
Posted By
Unclaimed
Re: Insurance Frustrations
Hello Tracy,
Does the switch to Medicare mean you'll receive your next H & P in August as planned? I think of you often. I joined this site because my MO wanted to add Perjeta to my treatment and I...
Forum:
her2group
04-03-2018, 05:58 PM
Replies:
45
In Praise of Perjeta
Views:
23,736
Posted By
Unclaimed
Re: In Praise of Perjeta
Well hello Julie, I'm Ana. I had to Google bilirubin, I'd never heard that before. Google says caffeine lowers bilirubin so that's my cue to indulge my coffee addiction 😄☕☕ All these medications...
Forum:
her2group
04-03-2018, 04:17 PM
Replies:
45
In Praise of Perjeta
Views:
23,736
Posted By
Unclaimed
Re: In Praise of Perjeta
Hello, sorry my phone changed your name last time, Juls!
I'm happy with Capecitabine. I wasn't willing to do IV Chemo, and had no idea there were pills as an option. I thought I was get a...
Forum:
her2group
04-03-2018, 03:25 PM
Replies:
45
In Praise of Perjeta
Views:
23,736
Posted By
Unclaimed
Re: In Praise of Perjeta
Hi Julie
Thank you so much for responding! I'm sorry to hear about the bone Mets. I have that as well and also take Capecitabine for it. I'm relieved to hear people are doing well on Perjeta even...
Forum:
her2group
04-03-2018, 12:46 PM
Replies:
45
In Praise of Perjeta
Views:
23,736
Posted By
Unclaimed
Re: In Praise of Perjeta
Hello. Is anyone still taking Perjeta and are you still happy with it? I was Stage 4 when diagnosed, and just started treatment Feb 2 with oral Chemo, Capecitabine. I had one Herceptin IV the end...
Showing results 1 to 15 of 15
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