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Search: Posts Made By: CourtneyL
Forum: her2group 11-07-2011, 07:23 PM
Replies: 32
Views: 5,292
Posted By CourtneyL
Re: The NEXT T-DM1 (MM-302)

Yes, Karen, it is the Merrimack drug - hence the "MM" nomenclature. I am sorry I didn't have a chance to meet up with the New York crew on my last visit. Jay and I are in New York every year or so...
Forum: her2group 11-03-2011, 06:26 PM
Replies: 32
Views: 5,292
Posted By CourtneyL
Re: The NEXT T-DM1 (MM-302)

They will be keeping a close eye on my cardiac function. So far they haven't observed any significant negative side effects in the few patients who have enrolled in this study. Because it is a...
Forum: her2group 11-03-2011, 06:17 PM
Replies: 32
Views: 5,292
Posted By CourtneyL
Re: The NEXT T-DM1 (MM-302)

I have some exciting news to share. I was just accepted into this trial and will start receiving this new super drug in two weeks after I complete some preliminary tests. I am thrilled to be the...
Forum: her2group 10-30-2011, 06:34 PM
Replies: 31
Views: 4,472
Posted By CourtneyL
Re: Site Founder Christine Still NED!

So inspiring and encouraging! Congratulations, Christine! Long may you dance with NED!
Forum: her2group 10-28-2011, 04:29 PM
Replies: 11
Views: 2,527
Posted By CourtneyL
Re: Chloroquine Warning!!!

Thanks everyone. Yes, Kim, Gamma Knife has always worked like magic for me - thank God. The MRI said that the overall size and number of lesions was reduced. I'm feeling super grateful and hopeful...
Forum: her2group 10-28-2011, 03:46 PM
Replies: 11
Views: 2,527
Posted By CourtneyL
Chloroquine Warning!!!

Hi All - Those of you who follow my Caringbridge page already know this but I wanted to let everyone know in case anyone else is trying the Chloroquine experiment.

I started on a daily dose of...
Forum: her2group 10-28-2011, 03:39 PM
Replies: 57
Views: 5,377
Posted By CourtneyL
Re: Finally - a Vaccine Trial for me!

Just wanted to add my congrats to you on joining the trial as well, Steph. You continue to be a source of inspiration and hope to me and so many of us here. May the vaccine help keep you NED forever!
Forum: her2group 10-16-2011, 06:19 PM
Replies: 18
Views: 2,821
Posted By CourtneyL
Re: Lifetime's movie Five by Demi Moore

Just wanted to share that this movie is available free online at hulu.com saw it last night.
Forum: her2group 10-12-2011, 06:45 PM
Replies: 32
Views: 5,292
Posted By CourtneyL
The NEXT T-DM1 (MM-302)

I just had a meeting with Dr. Pamela Munster, UCSF's clinical trial director, yesterday and she told me about a very exciting new drug that is just starting to recruit:
...
Forum: her2group 10-06-2011, 07:13 PM
Replies: 17
Views: 2,694
Posted By CourtneyL
Re: Chloroquine - Sounds promising!

Yup, my onc. The very same forward thinker that brought me high dose Tykerb (failure) and Intrathecal Herceptin (success) - I am grateful to have such a wonderful doctor.
Forum: her2group 10-06-2011, 04:35 PM
Replies: 17
Views: 2,694
Posted By CourtneyL
Re: Chloroquine - Sounds promising!

I'm taking 250 mg daily.
Forum: her2group 10-06-2011, 03:40 PM
Replies: 17
Views: 2,694
Posted By CourtneyL
Re: Chloroquine - Sounds promising!

Wow, that is really interesting, Steph. I wonder if that had anything to do with your success? I started the Chloroquine yesterday and hope that it is helping to get rid of this mess. Will keep...
Forum: her2group 09-29-2011, 06:24 PM
Replies: 17
Views: 2,694
Posted By CourtneyL
Re: Chloroquine - Sounds promising!

Thanks, Rich. Think I just might be taking a trip to Africa soon (wink wink)...
Forum: her2group 09-29-2011, 03:17 PM
Replies: 17
Views: 2,694
Posted By CourtneyL
Chloroquine - Sounds promising!

Hi All - I recently read this article in Cure magazine talking about the common anti-malarial drug, Chloroquine, as a potential destroyer of cancer stem cells. It all sounds very promising. There...
Forum: her2group 09-19-2011, 10:34 AM
Replies: 9
Views: 2,371
Posted By CourtneyL
Re: Stephanie stopped by

I echo your sentiments. Steph is WONDERFUL! I had the pleasure of meeting up with her several times last year when I was in Seattle for the vaccine trial. She is such an inspiration to me and so many...
Forum: her2group 09-13-2011, 01:23 PM
Replies: 24
Views: 4,459
Posted By CourtneyL
Re: Brain mets

Hi Jeana - I just had a second opinion appointment with Dr. Melisko at UCSF and she recommended the following clinical trial to me if my next brain MRI shows progression:
...
Forum: her2group 09-12-2011, 02:29 PM
Replies: 20
Views: 3,695
Posted By CourtneyL
Re: UPDATE from LA LA land...

Always so great to see a post from you, Flori! Your optimism and spirit radiate in your posts - and you do look truly fabulous! You are such an inspiration and source of strength to me and so many...
Forum: her2group 09-07-2011, 04:43 PM
Replies: 8
Views: 2,664
Posted By CourtneyL
Re: Awful...Awful....

I agree, this is absolutely awful. I know a few of the ladies here were working on ways of preventing this from happening. I know Joe use to be able to close a thread. Perhaps we can start closing...
Forum: her2group 09-07-2011, 01:28 PM
Replies: 1
Views: 2,032
Posted By CourtneyL
Suki Serum - Found another use for it

There have been a few threads on here mentioning how helpful Suki Serum is for the Tykerb rash. I still have some of the stuff from when I was on Tykerb and I recently began using it for a skin rash...
Forum: her2group 08-30-2011, 05:08 PM
Replies: 24
Views: 4,459
Posted By CourtneyL
Re: Brain mets

Hi Jeana - I too have been battling brain mets. Mine were found in December 2008 so know that it is possible to battle this for a long time. Our dear StephN is a great example of a success story with...
Forum: her2group 08-30-2011, 05:03 PM
Replies: 26
Views: 6,201
Posted By CourtneyL
Re: Gamma Knife A Success but more brain mets

Thank you all SO SO much for the support and suggestions. I've actually seen Dr. Krop at Dana Farber for a consult in the past so I'm going to reach out to him for some advice. I'm setting up an...
Forum: her2group 08-30-2011, 04:48 PM
Replies: 25
Views: 6,447
Posted By CourtneyL
Re: Women under 40

Hi Kristin - I'm in the under 40 club also. I felt my lump at 29 but was misdiagnosed as having "dense tissue". Fast forward 7 months and I was finally diagnosed with widespread metastatic disease...
Forum: her2group 08-25-2011, 09:38 AM
Replies: 26
Views: 6,201
Posted By CourtneyL
Gamma Knife A Success but more brain mets

Things went fairly well with my fifth Gamma Knife treatment on Monday. One area that they thought was necrosis was in fact necrosis so that is good news. They identified another lesion behind some of...
Forum: her2group 08-25-2011, 09:33 AM
Replies: 6
Views: 2,988
Posted By CourtneyL
Re: Need a referral to a good cyberknife/radiation oncologist at UCSF

Dr. Penny Sneed at UCSF is the best. I highly recommend her. Right now she is doing a month of research so I don't know if she is seeing patients. I saw her briefly on Monday when I went in for Gamma...
Forum: her2group 08-25-2011, 09:28 AM
Replies: 13
Views: 3,833
Posted By CourtneyL
Re: Update on latest scan results

Woot Woot! Doing the happy dance for you Deena! This is great news. Go Nabelbine Go! Kick those mets to the curb and leave our Deena alone! It was so great to see you and Susan last week. Let me know...
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