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Forum: her2group

12-23-2011, 04:10 PM

Replies: 5

Prophylactic Mastectomy?

Views: 1,703

Posted By awjkej

Re: Prophylactic Mastectomy?

I was diagnosed in 2003 and DCIS, her2/neu +++++++, very fast growing cancer in left breast (started with 1 tumor and by the time I had surgery I had 5. Largest one was 2cm. Node negative. I chose...

Forum: Herceptin / Tykerb

11-28-2007, 07:11 PM

Replies: 16

Tykerb Rash...help?

Views: 7,651

Posted By awjkej

I have used Bag Balm and Udderly Smooth cream for...

I have used Bag Balm and Udderly Smooth cream for my hands and feet. I didn't have any luck with my face except to reduce the mg of xeloda to 2000mg/day and tykerb to 1000mg/day. I also now do one...

Forum: Herceptin / Tykerb

09-24-2007, 08:07 PM

Replies: 11

length of treatment--Tykerb/Xeloda

Views: 2,176

Posted By awjkej

I saw my oncologist today b/c my lower back has...

I saw my oncologist today b/c my lower back has been hurting for about 3 weeks, and became unbearable over the weekend. We are going to move up my PET/CT scan and hopefully I can get in this week. ...

Forum: Herceptin / Tykerb

09-19-2007, 08:09 PM

Replies: 12

Tykerb rash

Views: 2,598

Posted By awjkej

Hi Jakki, I experienced very similar side...

Hi Jakki,

I experienced very similar side effects as you. The rash on my face was so bad and painful, that I went down to 1000mg from 1250mg and that worked. My arms and feet began to be very...

Forum: Herceptin / Tykerb

09-19-2007, 07:59 PM

Replies: 11

length of treatment--Tykerb/Xeloda

Views: 2,176

Posted By awjkej

Hi Julie, I have tried various combinations...

Hi Julie,

I have tried various combinations of drugs with herceptin which I started the Fall of 2004. I also had my ovaries out (oophorectomy) then too. The combo that really helped my bone...

Forum: Herceptin / Tykerb

09-19-2007, 09:50 AM

Replies: 11

length of treatment--Tykerb/Xeloda

Views: 2,176

Posted By awjkej

Starting 4th round

Hi,

I am currently in my off week of xeloda, and will begin my 4th round on Friday. My onc too wants me to stay on it as long as I can. I have been having bad side effects, and we are still...

Forum: Herceptin / Tykerb

08-06-2007, 01:06 PM

Replies: 6

Herceptin/Tykerb/Xeloda?

Views: 2,094

Posted By awjkej

I asked my onc about herceptin and tykerb being...

I asked my onc about herceptin and tykerb being given together, b/c intuitively it makes sense - one hits the tumor from the outside and one hits it from the inside. He told me that yes it does make...

Forum: Herceptin / Tykerb

08-06-2007, 01:03 PM

Replies: 12

Tykerb rash

Views: 2,598

Posted By awjkej

Hi Esther, Thanks! Do you know what the...

Hi Esther,

Thanks! Do you know what the prescription lotion is called??? I stay away from the scratching as you said it only irritates it.

Anne

Forum: Herceptin / Tykerb

08-06-2007, 12:24 PM

Replies: 17

Tykerb/Xeloda dosing

Views: 3,766

Posted By awjkej

Hi Lana, Thank you for directing me to this...

Hi Lana,

Thank you for directing me to this thread (from breastcancer.org). I just talked with my onc and he said to not take tykerb (currently 1250 mg - 250 mg tablets so five a day) til I see...

Forum: Herceptin / Tykerb

08-06-2007, 11:58 AM

Replies: 12

Tykerb rash

Views: 2,598

Posted By awjkej

Hi Ladies, I haven't posted here in awhile,...

Hi Ladies,

I haven't posted here in awhile, but someone on breastcancer.org told me that there was a good tykerb/xeloda thread here :-).

I am in my first round of tykerb/xeloda. 3300mg...

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