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Search: Posts Made By: Saygoon
Forum: her2group 08-26-2015, 02:39 PM
Replies: 10
Views: 2,556
Posted By Saygoon
Re: Gabapentin - side effects

The main side effect I couldn't tolerate was depression. I would bust into tears for no reason. It also created extremely high anxiety. Once I quit taking it I returned to "normal" in a couple of...
Forum: her2group 08-25-2015, 10:26 AM
Replies: 7
Views: 1,811
Posted By Saygoon
Saygoon IT Journey

I have now been on IT for 9 weeks now and they did a scan last week. Shows improvement on the brain but not on my spine. A "little thickening" on my spine. The Onc acted like this is not good news...
Forum: her2group 08-25-2015, 10:11 AM
Replies: 10
Views: 2,556
Posted By Saygoon
Gabapentin - side effects

Who out there has taken Gabapentin for neuropathy? The side effects I have had are horrible so I quit taking it. Now they want to put me on Duloxetine, which after reading about it - it isn't much...
Forum: her2group 08-16-2015, 12:15 PM
Replies: 10
Views: 3,332
Posted By Saygoon
Re: IT Herceptin needed in Canada

Keep trying - call every onc in phone book if u have to. Dont give up!!
Forum: her2group 08-09-2015, 10:24 AM
Replies: 11
Views: 3,550
Posted By Saygoon
Re: The Continuing Saga of Amy's Lungs

Keep us posted - the clean mountain air will do you some good (however you will have to drive out of Denver up into the mountains) Beautiful country. Im in the Black Hills of SD and saw a BIG...
Forum: her2group 08-05-2015, 03:29 PM
Replies: 10
Views: 3,332
Posted By Saygoon
Re: IT Herceptin needed in Canada

Wishing you the best. I am on IT Herceptin and had to travel from South Dakota to Austin to get it. Luckily my daughter lives 3 hours from Austin so I live with her. Like you I was frantic! But don't...
Forum: her2group 07-25-2015, 10:34 PM
Replies: 27
Views: 4,476
Posted By Saygoon
Re: IT Hercepton and update on Saygoon

So far so good! All the tests and scans were pretty rough though. So far they have done 4 IT treatment. They have tested my spinal fluid twice and both times NEG for cancer cells. Keep those prayers...
Forum: her2group 07-01-2015, 02:50 PM
Replies: 27
Views: 4,476
Posted By Saygoon
IT Hercepton and update on Saygoon

Texas Oncology in Austin is currently doing a trial for IT Hercepton. Everyone there has been extremely nice. Very caring staff. I had surgery for my Omaya Port Monday and will start treatment on...
Forum: her2group 06-05-2015, 11:59 AM
Replies: 60
Views: 10,033
Posted By Saygoon
Re: Cancer in Spinal Fluid - given 6 months

Radiation complete. Starting to come out of the fog. MD Anderson FINALLY got me an appointment for two weeks from now. In the meantime......I have an appointment in Austin for a clinical trial that...
Forum: her2group 06-05-2015, 11:51 AM
Replies: 103
Views: 13,958
Posted By Saygoon
Re: Please, Lord

Keep the faith - dont give up
Forum: her2group 05-23-2015, 10:41 AM
Replies: 7
Views: 1,549
Posted By Saygoon
Re: Understanding "Absolute Risk"

fund raising vs. truth telling - now that's another bag of worms! The lies statistics show makes a lot of people a lot of money particularly in the BC business.
If all of us bought into the grave...
Forum: her2group 05-23-2015, 10:21 AM
Replies: 103
Views: 13,958
Posted By Saygoon
Re: Please, Lord

My heart goes out to you. Keep us posted on how you are feeling and when you are feeling down - close your eyes and pretend that we are all in the same room with you!
Forum: her2group 05-21-2015, 03:57 PM
Replies: 9
Views: 1,730
Posted By Saygoon
Re: Xeloda and Tykerb

Side effects? I guess that should have been my original question. Man I am sooo goofy lately. LOL!!
Forum: her2group 05-21-2015, 03:40 PM
Replies: 9
Views: 1,730
Posted By Saygoon
Xeloda and Tykerb

Would like for anyone who has experience to chime in and give me your opinion on these two drugs. My Onc wants to start me on them next week and value everyone's opinion.
Forum: her2group 05-17-2015, 05:14 PM
Replies: 60
Views: 10,033
Posted By Saygoon
Re: Cancer in Spinal Fluid - given 6 months

Well, made it thru the first week of radiation. Still have alot of weakness in my legs but pain level has greatly improved. Will sart "buggin" Dr Lohgin for an appointment. Just don't feel that I can...
Forum: her2group 05-14-2015, 05:04 AM
Replies: 60
Views: 10,033
Posted By Saygoon
Re: Cancer in Spinal Fluid - given 6 months

Elvin - so sorry to hear of your grief. Doctors play God to much I think. So not putting all my eggs in one basket
Forum: her2group 05-14-2015, 05:01 AM
Replies: 38
Views: 4,157
Posted By Saygoon
Re: So Very Upset

You are in my thoughts and prayers - this battle never seems over
Forum: her2group 05-14-2015, 05:00 AM
Replies: 103
Views: 13,958
Posted By Saygoon
Re: Please, Lord

Hang in there - keep the faith
Forum: her2group 05-12-2015, 04:41 PM
Replies: 60
Views: 10,033
Posted By Saygoon
Re: Cancer in Spinal Fluid - given 6 months

The appointment was a little confusing to say the least. I am back in South Dakota for radiation and then suppose to go back to MD Anderson in 5 weeks. However......I have found that there are...
Forum: her2group 05-07-2015, 09:12 AM
Replies: 60
Views: 10,033
Posted By Saygoon
Re: Cancer in Spinal Fluid - given 6 months

Day three at MD Anderson. I see Dr. Loghin today the same doc you guys have RolePaul. I am anxious to see what options she has for me. Thanks again everybody your posts it mean the world to me. I...
Forum: her2group 05-02-2015, 06:05 PM
Replies: 60
Views: 10,033
Posted By Saygoon
Re: Cancer in Spinal Fluid - given 6 months

It was a long trip from S.D. to Texas but my daughter drove. Resting at her house in Ft Worth. MD Anderson here we come!!! Appt Monday. Keep that positive energy coming!!!! Thank God for all of you...
Forum: her2group 04-27-2015, 06:45 PM
Replies: 10
Views: 1,374
Posted By Saygoon
Re: Frustrated

Its ok to get mad and frustrated - I mean - gosh we are only human.
Forum: her2group 04-26-2015, 08:15 PM
Replies: 13
Views: 1,831
Posted By Saygoon
Re: Spreading My Thanks

The love on this site is unbelievable !!!
Forum: her2group 04-26-2015, 08:11 PM
Replies: 60
Views: 10,033
Posted By Saygoon
Re: Cancer in Spinal Fluid - given 6 months

Hanging on to all your words of encouragement. Glad to say I still do not have any of the symptoms that I am suppose to be having. I will feel so much better when my appointment with MD Anderson is...
Forum: her2group 04-22-2015, 04:44 PM
Replies: 60
Views: 10,033
Posted By Saygoon
Re: Cancer in Spinal Fluid - given 6 months

Again, thanks everyone for the encouragement. Right now I am in the process of getting an appt with M.D. Anderson. Hope they can see me ASAP. Looking forward to exploring what kinds of treatments...
Showing results 1 to 25 of 126

 
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