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Search: Posts Made By: Pat94
Forum: her2group 01-19-2016, 07:05 PM
Replies: 14
Views: 3,387
Posted By Pat94
Re: how long is too long to wait for a trial?

I have been looking for a drug trial I could enter while I am NED. Which one are you referencing and where was the location before it moved? I would really appreciate any information you can share.
Forum: her2group 01-19-2016, 06:46 PM
Replies: 17
Views: 7,362
Posted By Pat94
Re: AI and Hair Loss

I saw the dermatologist last week. She calls it female pattern baldness. Some hair didn't come back after chemo but she agrees the major culprit is the Aromatase Inhibitor. She said it will...
Forum: her2group 01-19-2016, 06:30 PM
Replies: 17
Views: 4,112
Posted By Pat94
Re: Thoughts on a retreat?

Would love to make it to San Antonio December 6-10, 2016 for the Breast Cancer Symposium.
Forum: her2group 01-19-2016, 06:27 PM
Replies: 12
Views: 3,886
Posted By Pat94
Re: Radiation repercussions almost 10 years later

I finished radiation 8/1/14. Early this month I caught a cold. Had to see my family Dr. for the continuing cough. The Nurse Practitioner heard wheezing and had an x-ray taken. It was so different...
Forum: her2group 12-25-2015, 07:02 AM
Replies: 3
Views: 2,693
Posted By Pat94
Merry Christmas and Happy New Year

We have lost so many recently and others have gotten such bad reports it has been a rough time on our site.

But today is a time for new life and new hope. I have seen recent messages from...
Forum: her2group 12-23-2015, 08:37 PM
Replies: 17
Views: 7,362
Posted By Pat94
Re: AI and Hair Loss

I agree with your advice to see the dermatologist in mid-January. I meet with my med onc shortly before that to discuss my side effects from the Aromasin. I was very depressed when I was on Femara...
Forum: her2group 12-23-2015, 08:28 PM
Replies: 12
Views: 3,736
Posted By Pat94
Re: Bracing Myself For A Swift Kick Into Menopause

So glad you are off Tamoxifen. Some people have fewer side effects on one of the AIs than another. Certainly true for me. I have had some responses concerning my hair loss but don't know if the...
Forum: her2group 12-22-2015, 07:30 PM
Replies: 17
Views: 7,362
Posted By Pat94
AI and Hair Loss

I have read between 10% and 32.4% of women on an AI will experience hair loss of some type. Mine is awful. It appears to be male pattern baldness. There are bald patches in areas around the crown...
Forum: her2group 12-21-2015, 08:28 PM
Replies: 7
Views: 4,076
Posted By Pat94
Re: Neuropathy - Long term?

My fingers are better - much less clumsy. My feet don't seem to be much different but they weren't as bad as yours. I really notice it when I first try to fall asleep at night. I just have to get...
Forum: her2group 12-17-2015, 07:32 PM
Replies: 22
Views: 7,208
Posted By Pat94
Re: Approaching 5 yr cancerversary but running out of options

I too have nothing to advise except weigh your options and choose what is right for you. I will pray that something will push out the envelope of your time on earth. We are all caring for you.
Forum: her2group 12-16-2015, 03:49 PM
Replies: 47
Views: 11,930
Posted By Pat94
Re: Bleeding from Good Breast

I agree with Agnes. An MRI is much better.
Forum: her2group 12-15-2015, 09:31 PM
Replies: 47
Views: 11,930
Posted By Pat94
Re: Bleeding from Good Breast

Hi. My 1st symptom was a bloody discharge from my nipple. My family Dr. thought it was an infection; the majority of time it is. He also referred me to a surgeon who did more tests. In the end,...
Forum: her2group 12-08-2015, 07:45 PM
Replies: 11
Views: 3,760
Posted By Pat94
Re: Struggling with divorce, cancer, chemo. Not sure how to survive. Very bad day!

I have nothing new to add just want you to know I also care and will keep you in my prayers. I believe that any one of your issues would make you feel wretched right now. A year from now you will...
Forum: her2group 11-25-2015, 09:34 AM
Replies: 5
Views: 3,434
Posted By Pat94
Re: Multiple lung nodules any idea?

Wish I could help but I can't with your question. I have you added onto my prayer list.
Forum: her2group 11-16-2015, 08:14 PM
Replies: 13
Views: 4,292
Posted By Pat94
Re: Redwolf, Penny has joined the Angels.

I would like to find a vaccine program as well. If you find one enrolling folks please give a shout. For those of you who were in earlier vaccine trials, have you heard/seen any published results?
Forum: her2group 11-11-2015, 08:18 PM
Replies: 8
Views: 3,217
Posted By Pat94
Re: BRCA2+ and HER2+

Remember to take Claritin or Allegra for the neulasta - it does make a tremendous difference. Take for at least 3 days in advance.
Forum: her2group 11-11-2015, 08:12 PM
Replies: 11
Views: 5,446
Posted By Pat94
Re: Anyone taking/taken Taxotere and Carboplatin with Herceptin???

I had TCH in fall, 2014. Had infusions on Wednesdays and SEs started Friday nights. At 1st I was able to work Thursday & Friday plus the next 2 & 1/2 weeks. I started with vomiting & diarrhea after...
Forum: her2group 11-09-2015, 07:59 PM
Replies: 15
Views: 3,721
Posted By Pat94
Re: Did anyone NOT lose hair OR nails on TCH protocol? All replies appreciated!

I lost my hair at the start of the 4th week of chemo. It started growing back about 2 months after chemo ended. Mine was slow growing forever but I had enough to take off my caps 6 months after the...
Forum: her2group 10-31-2015, 07:44 PM
Replies: 49
Views: 10,217
Posted By Pat94
Re: The power of words

I am lucky. I am seen at a Comprehensive Cancer Center. All my reports, doctors' notes from exams, including the written information from scans are available online for me. I do wish they would...
Forum: her2group 10-28-2015, 03:56 PM
Replies: 3
Views: 2,271
Posted By Pat94
Re: Cognitive impairment

I have no words of wisdom. I just want you to know my prayers will include you and your sister. I do know that brains can have "retraining" so another neural pathway can take over the functioning...
Forum: her2group 10-18-2015, 09:43 AM
Replies: 15
Views: 3,386
Posted By Pat94
Re: Progesterone Positive, Estrogen Negative

Hi. I am PR negative and ER 5%. About a year ago that was considered negative but now is considered low positive. When my medical onc wanted me to start Femora I deferred until my questions were...
Forum: her2group 10-10-2015, 05:01 AM
Replies: 10
Views: 2,285
Posted By Pat94
Re: The Waiting

I am not sure anyone knows why, just that it frequently does. Mine still strongly HER2 but went from hormone negative to low positive estrogen (5%) at recurrence. At least your's jumped enough to...
Forum: her2group 10-08-2015, 03:57 PM
Replies: 18
Views: 2,781
Posted By Pat94
Re: How to find a doctor that will look out for your best interests?

I am so sorry you are in this fix. I started out thinking my first doctor was great based on recommendations and initial meeting and surgery. Turned out he screwed me so badly it is absolutely...
Forum: her2group 09-10-2015, 04:46 AM
Replies: 7
Views: 4,076
Posted By Pat94
Neuropathy - Long term?

Earlier onc said neuropathy improves for about a year and then you have what's left long term. Just met new onc yesterday for quarterly checkup (NED - Yeah - would have really hated to go through...
Forum: her2group 09-02-2015, 04:40 AM
Replies: 10
Views: 2,437
Posted By Pat94
Re: WHY are my feet killing me - what to do?

sounds like neuropathy to me - very common. I have read recently about frozen gloves and socks to wear during treatments. I used bags of frozen veggies. That delayed but did not prevent...
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