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Search: Posts Made By: athena453
Forum: her2group 09-04-2006, 11:45 AM
Replies: 6
Views: 2,011
Posted By athena453
I had the same thing with taxotere. My hands and...

I had the same thing with taxotere. My hands and feet felt as if they had been scalded. My onc told me the name of this condition, sounded something like "Accral aphasia". She said that it was a...
Forum: her2group 08-04-2006, 10:24 PM
Replies: 198
Views: 34,027
Posted By athena453
I missed this also! I work for a wine...

I missed this also!

I work for a wine distributor in the mid Atlantic in brand development and marketing. I was a restaurant GM for several years after college (studied art history). Got sick...
Forum: her2group 07-26-2006, 09:29 PM
Replies: 198
Views: 30,206
Posted By athena453
Currently NED, per scans 5/05-6/05.

Currently NED, per scans 5/05-6/05.
Forum: her2group 05-26-2006, 10:22 PM
Replies: 10
Views: 1,315
Posted By athena453
Michele, I understand where you're coming from. ...

Michele, I understand where you're coming from. My onc said that there was a trial with concurrent herceptin and lapatinib for those with progression. I guess we have an unspoken agreement that...
Forum: her2group 05-26-2006, 10:16 PM
Replies: 19
Views: 2,722
Posted By athena453
I had AC followed by TCH. My LVEF dropped from...

I had AC followed by TCH. My LVEF dropped from 64 to 45 in a matter of months and I stopped Herceptin for about two and a half months. My onc said that she felt it "stunned" the heart in younger...
Forum: her2group 05-26-2006, 10:11 PM
Replies: 14
Views: 1,783
Posted By athena453
Well, I certainly think I would fit into the...

Well, I certainly think I would fit into the "nonexistent" group for whom screening would be recommended, since I am Her2+, under 35, had a grade 3 tumor and was hormone negative...

Had a clear...
Forum: her2group 05-24-2006, 07:49 PM
Replies: 7
Views: 1,915
Posted By athena453
Hi Lisa, My period stopped after two doses...

Hi Lisa,

My period stopped after two doses of AC. Returned 4 months after chemo, and has been regular with the exception of one "extra" cycle that began on day 14 of the second month. I am...
Forum: her2group 05-08-2006, 12:26 PM
Replies: 17
Views: 2,144
Posted By athena453
Hi Michele! I am pretty much in the same...

Hi Michele!

I am pretty much in the same position as you. I am going to push for a second year of Herceptin. Last I mentioned it to my onc, she wanted to wait on the HERA results.
Forum: her2group 05-06-2006, 11:44 AM
Replies: 107
Views: 11,559
Posted By athena453
So saddened to read this. In my thoughts and...

So saddened to read this.

In my thoughts and prayers.
Forum: her2group 05-06-2006, 11:42 AM
Replies: 33
Views: 3,386
Posted By athena453
Interesting! There do seem to be quite a few...

Interesting! There do seem to be quite a few thin women here.

Current: 5'7" 135lbs.
Was 125-130 since adolescence before dx.
Have always been thin/muscular build and athletic.
Forum: her2group 04-24-2006, 01:11 PM
Replies: 198
Views: 30,206
Posted By athena453
I think my info is in my signature. I am...

I think my info is in my signature. I am currently 28 and NED. Next set of scans 5/5/06.
Forum: her2group 04-17-2006, 10:11 AM
Replies: 31
Views: 2,809
Posted By athena453
I get a 30 minute infusion every three weeks. No...

I get a 30 minute infusion every three weeks. No premeds.
Forum: her2group 04-04-2006, 07:36 PM
Replies: 31
Views: 5,200
Posted By athena453
I have had the double masts and I do wear a bra...

I have had the double masts and I do wear a bra and prosthesis. I don't wear anything around the house. I do tend to wear more fitting clothing, fits better with a bit of a chest.
Forum: her2group 04-04-2006, 07:29 PM
Replies: 9
Views: 1,517
Posted By athena453
Hello, I had R prophylactic mastectomy (no...

Hello,

I had R prophylactic mastectomy (no node dissection) and removal/placement of ports 3/3/06 while on three week Herceptin. No problems to report, healing fine and have regained strength...
Forum: her2group 03-25-2006, 12:01 PM
Replies: 10
Views: 1,677
Posted By athena453
I sometimes feel a little more dizzy also. It is...

I sometimes feel a little more dizzy also. It is as you describe, more of a spatial orientation dizziness, occurs occasionally. I do think it is Herceptin related.
Forum: her2group 03-01-2006, 08:02 PM
Replies: 21
Views: 3,334
Posted By athena453
I do not have any children. I have been pg once,...

I do not have any children. I have been pg once, about 3 years pre-dx.
Forum: her2group 03-01-2006, 07:58 PM
Replies: 53
Views: 14,445
Posted By athena453
I have asked my onc about this test. She had...

I have asked my onc about this test. She had limited knowlege. I do not have mets, however, I would like a "baseline" serum test for the purpose of monitoring.

I will keep pushing to get the...
Forum: her2group 03-01-2006, 07:55 PM
Replies: 11
Views: 1,581
Posted By athena453
Hi Maria, I have opted to go ahead with the...

Hi Maria,

I have opted to go ahead with the proph mast on Friday. My back is not right from the first surgery and I am very active. I have not had the genetic testing yet, though I plan to.
Forum: her2group 01-23-2006, 10:25 PM
Replies: 6
Views: 1,473
Posted By athena453
Great news, Vicki! I am having the same surgery...

Great news, Vicki! I am having the same surgery in a few weeks.
Forum: her2group 01-16-2006, 09:32 PM
Replies: 39
Views: 4,266
Posted By athena453
I will mark the date and respond with prayers,...

I will mark the date and respond with prayers, good vibes, and positive thoughts for all.

God Bless,
Arielle
Forum: her2group 01-03-2006, 04:50 PM
Replies: 15
Views: 2,713
Posted By athena453
I, too felt a sense of uneasiness last winter. I...

I, too felt a sense of uneasiness last winter. I knew something was wrong and couldn't put my finger on it. In the months prior to diagnosis, I quit a high stress job in the restaurant business for...
Forum: her2group 12-30-2005, 09:08 PM
Replies: 10
Views: 1,741
Posted By athena453
oops..I am one of the younger women here. I...

oops..I am one of the younger women here. I don't have mets, but I was dx with some pretty aggressive stats. Huge tumor, ER/PR-, Her2+++ 5.16 FISH, 30/34 nodes. I had AC followed by TCH as...
Forum: her2group 12-30-2005, 09:05 PM
Replies: 10
Views: 1,741
Posted By athena453
Hi Julierene-

Hi Julierene-
Forum: her2group 12-18-2005, 09:23 PM
Replies: 1
Views: 1,689
Posted By athena453
Omega 3 FA's and L-Carnitine?

Hello All-

My onc advised me to stop Herceptin recently after my LVEF dropped from 60 to "between 40 and 50". I have had 10 weekly doses, including the loading dose as comitant tx with carbo and...
Forum: her2group 12-18-2005, 09:02 PM
Replies: 5
Views: 1,720
Posted By athena453
Hi Nicola- So sorry to hear of your...

Hi Nicola-

So sorry to hear of your recurrence. I am also sorry to say that I do not have any information to add with regards to lapatinib, but I have heard wonderful things.

I was dx this...
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