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Search took 0.01 seconds. Search: Posts Made By: Cathya
Forum: her2group 02-12-2019, 08:33 AM
Replies: 110
Views: 33,635
Posted By Cathya
Re: almost 14 years NED breast cancer and apparently it's back in my lungs

Hi Flori;

So nice to hear from you. I haven't been too active on the board recently. I'm doing well with treatment but find the se's a bugger. I'm so sick of coughing and bloody, sore noses and...
Forum: her2group 01-21-2019, 10:38 PM
Replies: 110
Views: 33,635
Posted By Cathya
Re: almost 14 years NED breast cancer and apparently it's back in my lungs

Thank you everyone for your good wishes. I do so appreciate your thoughts. Please keep in mind this treatment for any triple positives here turning stage 4. I'm hoping it will work for a very long...
Forum: her2group 01-16-2019, 08:55 AM
Replies: 110
Views: 33,635
Posted By Cathya
Re: almost 14 years NED breast cancer and apparently it's back in my lungs

Had my January scan and all previously existing nodules seen on last scan have resolved completely.....yahoo. There are two new larger nodular areas but they are suggestive of inflammatory...
Forum: her2group 11-04-2018, 02:37 PM
Replies: 110
Views: 33,635
Posted By Cathya
Re: almost 14 years NED breast cancer and apparently it's back in my lungs

Laurel;

I'm pretty thrilled. These results will be confirmed with another scan early January. What's great is that this offers all hormone positives a great treatment option. I'll keep you all...
Forum: her2group 11-02-2018, 08:14 AM
Replies: 110
Views: 33,635
Posted By Cathya
Re: almost 14 years NED breast cancer and apparently it's back in my lungs

Just had another CT scan. It showed multiple small nodules and no comment on my previous tumours. I was confused and very anxious. Went to my oncologist yesterday afternoon and he went upstairs to...
Forum: her2group 08-21-2018, 09:49 AM
Replies: 110
Views: 33,635
Posted By Cathya
Re: almost 14 years NED breast cancer and apparently it's back in my lungs

Hi; I just saw that Lauren is doing very well on Ibrance and there's another Her2+ on the breastcancer.org site (Ibrance/Letrozole local) who is Her2+ and taking Ibrance/letrozole and herceptin. ...
Forum: her2group 08-02-2018, 01:27 PM
Replies: 110
Views: 33,635
Posted By Cathya
Re: almost 14 years NED breast cancer and apparently it's back in my lungs

Hi all;

Got some results from my genetic testing. I was tested for 17 genes and remain normal for all but still BRCA1 VUS. She is hoping for more information on this from the testing of my...
Forum: her2group 07-22-2018, 10:58 AM
Replies: 110
Views: 33,635
Posted By Cathya
Re: almost 14 years NED breast cancer and apparently it's back in my lungs

Hi all;

I'm very happy to report that the Ibrance/Letrozole appears to be working. I understand that you have to give this time so after three months (I just finished my 3rd cycle today) I am...
Forum: her2group 05-29-2018, 04:01 PM
Replies: 110
Views: 33,635
Posted By Cathya
Re: almost 14 years NED breast cancer and apparently it's back in my lungs

Flori;

Be sure to post the results of your scan and if there's a change to your pathology. Given that mine changed I know this can happen and it opens up lots of new treatments.

Thinking of...
Forum: her2group 05-26-2018, 07:52 AM
Replies: 110
Views: 33,635
Posted By Cathya
Re: almost 14 years NED breast cancer and apparently it's back in my lungs

Becky and Laurel;

Thanks so much. Apparently a similar situation with the rising CA125 was featured on Greys Anatomy a few weeks ago. I wish I'd seen it haha. I do hate being the "weird"...
Forum: her2group 05-25-2018, 02:59 PM
Replies: 110
Views: 33,635
Posted By Cathya
Re: almost 14 years NED breast cancer and apparently it's back in my lungs

Carol Ann, Donna and Tricia;

Thank you so much for joining me in celebrating this great news. My oncologist is also looking into adding biophosphonates to my regime as a deterrent to future...
Forum: her2group 05-24-2018, 10:09 AM
Replies: 110
Views: 33,635
Posted By Cathya
Re: almost 14 years NED breast cancer and apparently it's back in my lungs

OMG I just got some fabulous news!! My CA125 was 292 in early March, 359 in April and today it had DROPPED to 62. This means (so far as we know) that it was high due to the bc mets in my lung...
Forum: her2group 05-18-2018, 12:52 PM
Replies: 110
Views: 33,635
Posted By Cathya
Re: almost 14 years NED breast cancer and apparently it's back in my lungs

Thank you so much everyone!!! I was so surprised and happy. Now I just have to wait to hear about the ovarian cancer (hope my ca125 drops over the next couple of months) and how the Ibrance and...
Forum: her2group 05-17-2018, 08:29 AM
Replies: 110
Views: 33,635
Posted By Cathya
Re: almost 14 years NED breast cancer and apparently it's back in my lungs

HAPPY HAPPY!!!

Bones scan is clear. No bone mets. I'm going to ask about going on actonel as I think that protects against getting them. See the onc on the 24th.

ASCO begins June 1st!! ...
Forum: her2group 05-10-2018, 01:04 PM
Replies: 110
Views: 33,635
Posted By Cathya
Re: almost 14 years NED breast cancer and apparently it's back in my lungs

Pam;

I've found the article and it was posted in full by a lady on the community.breastcancer.org site so I don't have a link. I think though that I must track down this guys so I can follow all...
Forum: her2group 05-10-2018, 12:58 PM
Replies: 110
Views: 33,635
Posted By Cathya
Re: almost 14 years NED breast cancer and apparently it's back in my lungs

Pam; I'm just looking and in the meantime found another article you might enjoy.
...
Forum: her2group 05-09-2018, 12:02 PM
Replies: 110
Views: 33,635
Posted By Cathya
Re: almost 14 years NED breast cancer and apparently it's back in my lungs

You've all likely seen this information but I though it was worth posting and the author is apparently very thorough.

A CHRISTMAS / HANUKKAH / HOLIDAY GIFT BASKET FROM SABCS 2017

The Winter...
Forum: her2group 04-30-2018, 08:42 AM
Replies: 110
Views: 33,635
Posted By Cathya
Re: almost 14 years NED breast cancer and apparently it's back in my lungs

Thinking of you SoCalGal. The biopsy results wouldn't take 3 months. The pathology report would only be likely 10 days. Then they send the specimen on for genetic testing. You could learn...
Forum: her2group 04-28-2018, 11:25 AM
Replies: 110
Views: 33,635
Posted By Cathya
Re: almost 14 years NED breast cancer and apparently it's back in my lungs

Hi;

I saw the geneticist yesterday. My oncologist is getting my tumours (ovarian and lung) genetically tested and he said that will take 2 months. In the meantime the geneticist yesterday is...
Forum: her2group 04-25-2018, 07:21 AM
Replies: 110
Views: 33,635
Posted By Cathya
Re: almost 14 years NED breast cancer and apparently it's back in my lungs

Laurel; What a week to go to Toronto! My son lives there too in the downtown so I was quick to call when I heard about the attack van. Horrible!!

Maya, Carol Ann, Donna and Melissa, thank you...
Forum: her2group 04-21-2018, 06:58 PM
Replies: 110
Views: 33,635
Posted By Cathya
Re: almost 14 years NED breast cancer and apparently it's back in my lungs

Laurel;

I updated my signature. Yes I was genetically tested after my ovarian diagnosis and they found a VUS (variation of unknown significance) on the BRCA1. This was basically a negative BRCA....
Forum: her2group 04-21-2018, 08:22 AM
Replies: 110
Views: 33,635
Posted By Cathya
Re: almost 14 years NED breast cancer and apparently it's back in my lungs

I have had a meeting with my new oncologist. I really liked him and felt confident in him which is important. My tumour is now Her2-. I asked him why this was and he said that all tumours hold a...
Forum: her2group 04-18-2018, 09:49 AM
Replies: 110
Views: 33,635
Posted By Cathya
Re: almost 14 years NED breast cancer and apparently it's back in my lungs

Carol Ann;

I really appreciate these discussions as they are helping me get back into the swing (OMG) of research again. I originally had a grade 3 tumour which with the her2+, ER+PR+ would have...
Forum: her2group 04-18-2018, 07:33 AM
Replies: 110
Views: 33,635
Posted By Cathya
Re: almost 14 years NED breast cancer and apparently it's back in my lungs

Carol Ann;

FYI my nodes were negative too but being that her2+ cancers love to travel, a 1 cm tumour was found by my oncologist on physical exam in my supraclavicular node. This staged me at 3c...
Forum: her2group 04-17-2018, 09:17 AM
Replies: 110
Views: 33,635
Posted By Cathya
Re: almost 14 years NED breast cancer and apparently it's back in my lungs

Tricia;

Interesting that we share the same triple positive diagnosis. I notice that you took an extra 2 years of Arimidex. Great!! When I was diagnosed with ovarian cancer I asked multiple...
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