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Search took 0.01 seconds. Search: Posts Made By: Verna
Forum: her2group 11-11-2008, 04:47 PM
Replies: 28
Views: 2,969
Posted By Verna
Praise God. Happy Birthday to a very blessed...

Praise God. Happy Birthday to a very blessed little girl. Life as we know it truly is a miracle, enjoy everyday like it's your last.
Hugs-Verna
Forum: her2group 11-11-2008, 07:35 AM
Replies: 21
Views: 3,353
Posted By Verna
I'm so pleased there will be more of you going on...

I'm so pleased there will be more of you going on this treatment. It is truly a miracle drug.

Marimazz, feel free to contact me anytime and I will be happy to answer any questions you may have....
Forum: her2group 11-05-2008, 05:30 PM
Replies: 21
Views: 3,353
Posted By Verna
TDM1 Study

Ladies, I'm so sorry I have not posted in along time but I just wanted you all to know that I have been in the TDM1 study since March, and for the first time in (3) years, my PET/CT scan showed me as...
Forum: her2group 06-06-2008, 01:30 PM
Replies: 19
Views: 2,424
Posted By Verna
Update on T-DM1 study: Had 5th treatment...

Update on T-DM1 study:
Had 5th treatment Monday. All going good. PET/CT scan good, cancer out of my liver and back nodes. I have another one on the 18th. Anyone ever hear anything about these scans...
Forum: her2group 05-20-2008, 05:58 AM
Replies: 3
Views: 1,391
Posted By Verna
Irene, you need this study! Call me or email me...

Irene, you need this study! Call me or email me and I will get with my study nurse and see if she can give some sort of help. They are looking for more people. I had to jump through several hoops...
Forum: her2group 05-16-2008, 06:47 AM
Replies: 17
Views: 2,216
Posted By Verna
It is all the same study. What's been explained...

It is all the same study. What's been explained to me is that it's Herceptin with some sort of cancer agent added to the chain. When the Herceptin gets between the receptors, the cancer agent drops...
Forum: her2group 05-15-2008, 01:46 PM
Replies: 15
Views: 1,392
Posted By Verna
I to just had my 4th T-DM1 treatment. All is...

I to just had my 4th T-DM1 treatment. All is going well, my tumors have gone away completly. Interesting regarding the eyes. I have been having trouble as well. I'm 45, and I just thought maybe my...
Forum: her2group 04-25-2008, 08:37 AM
Replies: 24
Views: 2,265
Posted By Verna
Update regarding T-DM1 Study

I've had (3) treatments of the T-DM1 study drug, and it has shown to be very powerful! Three months ago there were activity in my liver and lymph nodes in my back. I just got my PET/CT scan results...
Forum: her2group 04-23-2008, 05:36 PM
Replies: 19
Views: 2,424
Posted By Verna
Ladies, my 3rd treatment was Monday. I have a PET...

Ladies, my 3rd treatment was Monday. I have a PET scan tomorrow. Hope to have results on Friday to share. All has been good so far. Just a few things; dry mouth, hands & feet feel like the old Taxol...
Forum: her2group 04-07-2008, 04:14 PM
Replies: 19
Views: 2,424
Posted By Verna
Hi all, Just wanted to check in with you all...

Hi all,
Just wanted to check in with you all and let you know I've had my 2nd treatment a week ago. The first was just like the first time I did Herceptin...flu like symtoms, the second one, piece...
Forum: her2group 03-21-2008, 06:44 AM
Replies: 6
Views: 1,148
Posted By Verna
Hey hutchibk, I love your clouds! I've never...

Hey hutchibk,
I love your clouds! I've never seen a heart shaped cloud before.
Hugs-Verna
Forum: her2group 03-07-2008, 05:44 PM
Replies: 19
Views: 2,424
Posted By Verna
Run to Live, Is that what it's known...

Run to Live,

Is that what it's known as...tras-dm1? I've heard some call it Super Herceptin. I'm just excited to be part of it. I will get my first treatment Monday, and I will keep you all...
Forum: her2group 03-07-2008, 02:32 PM
Replies: 19
Views: 2,424
Posted By Verna
New Study for Her2

Ladies,
I'm getting ready to start a Phase II Study using Herceptin/DM1. Anyone done this treatment or know of anyone who has? Thanks for any comments.
Hugs-Verna
Forum: her2group 02-02-2008, 10:42 AM
Replies: 6
Views: 1,015
Posted By Verna
Thanks ladies. Happy belated birthday to...

Thanks ladies.

Happy belated birthday to you Irene. Hope your feeling well these days. We can't wait to get you back on the water paddling. The big race is next month in Taveres, and I need to...
Forum: her2group 02-01-2008, 08:25 AM
Replies: 6
Views: 1,015
Posted By Verna
Believe, Thank you for the kind Happy...

Believe,

Thank you for the kind Happy Birthday. If I eat anymore cheese cake, I will turn into one! yummmmmm

My day was as normal...work,work,work. Then had a great Lobster dinner last night....
Forum: her2group 01-08-2008, 02:36 PM
Replies: 4
Views: 1,158
Posted By Verna
Thanks you all for bumping me up, but it doesn't...

Thanks you all for bumping me up, but it doesn't seem like anyone has this problem. Great...leave it to me to be the only one that has this problem.
Forum: her2group 01-07-2008, 02:22 PM
Replies: 4
Views: 1,158
Posted By Verna
Xeloda Rash

I've had and still do get the rash (whiteheads) on my face, but now I'm experiencing the pimples inside my nose and under my arms. Very painful inside the nose!

Has anyone else had this problem?...
Forum: her2group 01-04-2008, 01:45 PM
Replies: 20
Views: 3,776
Posted By Verna
I've had liver mets twice in 2 years. Currently...

I've had liver mets twice in 2 years. Currently there are no tumors in my liver, praise God. Been on Tykerb/Xeloda now for 9 months. Seems to be keeping it at bay. Just remember if one treatment...
Forum: her2group 01-04-2008, 01:20 PM
Replies: 9
Views: 1,460
Posted By Verna
Zometa is probaly one of the easiest treatments...

Zometa is probaly one of the easiest treatments I've had to do. No side effects for me. I get a 20 minute treatment every 4 weeks and have for 2 years now. I do worry about needing dental work, but...
Forum: her2group 12-20-2007, 09:13 AM
Replies: 39
Views: 4,043
Posted By Verna
Irene, I go to Gulfcoast Onc (St.Josephs),...

Irene,

I go to Gulfcoast Onc (St.Josephs), Dr. David Wright. But I also see Nakita Shah at MD Anderson in Orlando every 3 months after scans. They are both great Dr's.,I love them both.

Have...
Forum: her2group 12-19-2007, 02:09 PM
Replies: 39
Views: 4,043
Posted By Verna
Irene, Have you checked with MD Anderson in...

Irene,
Have you checked with MD Anderson in Orlando? I see a local onc here in Tampa, and follow up every 3 months after scans with an onc at MD Anderson. They seem to work miracles there.
Who do...
Forum: Herceptin / Tykerb 11-21-2007, 10:20 AM
Replies: 9
Views: 2,267
Posted By Verna
I had my reconstruction while I was on Herceptin.

I had my reconstruction while I was on Herceptin.
Forum: her2group 11-21-2007, 07:10 AM
Replies: 16
Views: 1,865
Posted By Verna
Lets see....hmmmmm pot killing brain cells or...

Lets see....hmmmmm pot killing brain cells or chemo killing brain cells?

Brownies are sounding pretty good right now.

Have a nice Thanksgiving all you wonderful ladies!
Forum: her2group 11-12-2007, 07:11 AM
Replies: 8
Views: 4,787
Posted By Verna
I only dream of getting mine out, but until they...

I only dream of getting mine out, but until they come up with a pill for Zometa, looks like I will have one for the rest of my life.

Good luck, and congradulations!

Verna
Forum: her2group 11-07-2007, 11:07 AM
Replies: 42
Views: 3,093
Posted By Verna
ok, so the first one did post....

ok, so the first one did post....
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