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Search: Posts Made By: Lori R
Forum: her2group 02-06-2013, 10:29 AM
Replies: 26
Views: 843
Posted By Lori R
Re: Hospital stay & Hair Loss...makes for a full week:(

Dear Jessica,
I have been thinking of you and while not pleased by the news of surprise challenges you amaze me with your fight!!

Your thoughts about waiting a week to physically and emotionally...
Forum: her2group 01-07-2013, 07:16 PM
Replies: 5
Views: 290
Posted By Lori R
Re: Black lifting nails

Chiming in to add to everyone elses's input... your nails will return.

I had a flare up on an oozing nail and went to the emergency room to have it removed. For some reason it was the last...
Forum: her2group 01-07-2013, 07:02 PM
Replies: 30
Views: 1,204
Posted By Lori R
Re: Stage v- a hard to swallow fact

Dear Yanyan,
I am so proud of you for recognizing the power of "labels" and how meaningless they are.

Even as a 5 1/2 year IV survivor that has actively battled this disease, I HAVE benefited...
Forum: her2group 12-21-2012, 10:01 AM
Replies: 14
Views: 567
Posted By Lori R
Re: Michka, how are you doing?

Michka,
What fantastic news. I am so glad that TDM-1 has been so effective for you.

Thinking of you this holiday season. Enjoy!!!

Love, Lori
Forum: her2group 11-22-2012, 09:32 AM
Replies: 105
Views: 15,537
Posted By Lori R
Re: TDM-1 side effects

Michka,
Yes, yes and yes to the side effects.

Eyes - I mentioned my failing eye site to my Dr. who informed me that the dry eyes were the cause. I went to my opthamolgist who confirmed I have...
Forum: her2group 11-17-2012, 07:32 AM
Replies: 30
Views: 1,058
Posted By Lori R
EmelieB - Is now an Angel

Dear Her2 family,

It is with a peaceful heart that I am posting of Emelie's recent passing. Emelie passed away painlessly on Thursday morning at Denver Hospice with her loving husband Oleh and...
Forum: her2group 11-06-2012, 06:02 AM
Replies: 15
Views: 1,202
Posted By Lori R
Re: Abraxane VS Taxotere ?

Dear Kim,
I was on taxotere as my initial course of treatment. For that treatment I received taxotere once every 3 weeks. I found in manageable until about round 5 when my fingernails became a...
Forum: her2group 10-16-2012, 01:30 PM
Replies: 16
Views: 722
Posted By Lori R
Re: For those with liver mets

Nancy,
My oncologist hasn't given me too much insight into the arm ache. My understanding comes from my interventinal radiologist.

When I had the cryosurgeries, the interventional radiologist...
Forum: her2group 10-16-2012, 10:03 AM
Replies: 16
Views: 722
Posted By Lori R
Re: For those with liver mets

I agree with Steph...if you have concerns, please ask for an abdominal CT. My mets were found via a full body Pet/CT but now that I am an old hand at this, the abdominal CT provides much more...
Forum: Herceptin / Tykerb 10-06-2012, 06:31 AM
Replies: 12
Views: 2,071
Posted By Lori R
Re: Start, stop, start, stop

Vicki,
So sorry to hear of the difficulties you are having with the X/T. There are others on the board with my info than myself so I hope they quickly chime in.

I was not on X/T, but my onc...
Forum: her2group 10-06-2012, 06:03 AM
Replies: 18
Views: 627
Posted By Lori R
Re: five year anniversary!!

So glad you posted the great news!!! I enjoyed envisioning all the mom precious moments you have had these past 5 years.

Here are to many many more!!! Please check in and keep us all...
Forum: her2group 10-04-2012, 05:43 AM
Replies: 21
Views: 945
Posted By Lori R
Re: Memorial Forum?

Great idea to check with Christine.

If I recall, Joe was concerned that if the memorial included treatment history there would be a chance that a new comer would review and try to relate to a...
Forum: her2group 10-02-2012, 05:18 AM
Replies: 244
Views: 12,051
Posted By Lori R
Re: Prayers needed for Sheila

Dear Jen,
Thank you for the update on your mom. I am glad you were able to let her know how much love and positive energy is coming from our merry band of warriors.

Your mom has always lead the...
Forum: her2group 09-28-2012, 04:52 AM
Replies: 18
Views: 797
Posted By Lori R
Re: For those with mets- what would you want the world to know

Kristen,
I agree with every stated so far. I would add a few words of encouragement. When I was diagnosed my daughter had just started High School. I assumed I would be dead before she graduated...
Forum: Clinical Trials 09-27-2012, 05:41 AM
Replies: 1
Views: 1,261
Posted By Lori R
Re: Started TDM1 clinical trial in Nashville

Hi Angie,
I am glad you were able to get into a TDM-1 trial and receive a chance to use this drug.
I too joined a trial involving Taxol + TDM-1 so at times I am not 100% certain which drug is...
Forum: her2group 09-26-2012, 05:37 AM
Replies: 57
Views: 2,656
Posted By Lori R
Re: Brenda (Hutchibk) needs some love and prayers...

No words.....just tears.

Brenda....I've looked to your fun and witty posts from the VERY beginning. I am being selfish....
Forum: her2group 09-26-2012, 05:32 AM
Replies: 35
Views: 1,287
Posted By Lori R
Re: Scanxiety - Brain MRI & Full Body PET tomorrow~

Jessica,
So good to see your post. I am thrilled for you that you have had time with NED.

So many of us are right with you on the anxiety roller coaster. One moment you can beat it back and...
Forum: her2group 09-18-2012, 06:59 PM
Replies: 105
Views: 15,537
Posted By Lori R
Re: TDM-1 side effects

Hi ,
I am bumping this string up for Nancy L, who was questioningTDM-1 side effects and their timing.

There is a good news story, so keep reading.

I had my first treatment of Taxol + TDM-1 ...
Forum: her2group 09-18-2012, 05:09 AM
Replies: 39
Views: 1,721
Posted By Lori R
Re: Perjeta - leap of faith

Chrisy,
That is fantastic news about gaining access to Perjeta!! What a perfect combo to use while your leg heals.

Thinking of you and send all the best....Lori
Forum: Herceptin / Tykerb 09-16-2012, 11:50 AM
Replies: 32
Views: 8,684
Posted By Lori R
Re: 3 years + on Herceptin, Why

Vonny,
I have a friend whose 27 year old daughter was diagnosed with breast cancer. I believe she located a very specialized oncologist who focuses on fertility issues with young breast cancer...
Forum: her2group 09-16-2012, 11:42 AM
Replies: 24
Views: 991
Posted By Lori R
Re: Wanna be part of a group get well card to the founder of this site?

Dear Christine,

I am in awe of the foresight and hard work that it must have taken to establish the Her2 support site. I can't thank you enough as it has been an emotional life line for me for...
Forum: her2group 09-16-2012, 11:34 AM
Replies: 25
Views: 1,395
Posted By Lori R
Re: Is there benefit in surgery for stage iv's

Vonny,
The most important lesson that I have learned from this site is to be your own advocate. Fight to win every single battle in this war.

I am not a Dr., so I am reluctant to offer medical...
Forum: her2group 09-15-2012, 10:52 AM
Replies: 11
Views: 948
Posted By Lori R
Re: T-DM1 & Pertuzumab Trial Update

Dear Karen,
Thank you again and again and again for the information you provided as I pushed through the process to be included in the Phase II - Taxol + TDM-1 + P (or not) trial.

It is through...
Forum: her2group 09-07-2012, 06:15 AM
Replies: 11
Views: 1,038
Posted By Lori R
Re: Loose fingernails...

I too battled the lifting nails and have some very real world advice to pass along.

The first time on taxotere no neuropathy but my finger started to tingle. I mentioned it to my onc who kind of...
Forum: her2group 09-04-2012, 11:57 AM
Replies: 28
Views: 3,490
Posted By Lori R
Re: TMD1 is coming!

Phil,
I really wish I could help. I JUST started the TDM-1 trial that requires taxol in addition to TDM-1. I wasn't pleased but I could not wait for FDA approval. I am CERTAIN things are working....
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