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Search took 0.02 seconds. Search: Posts Made By: Gina
Forum: her2group 08-12-2009, 12:55 PM
Replies: 21
Views: 1,959
Posted By Gina
Thumbs up Re: On herceptin/dmi trial

If I were you, I would just go back on the Herceptin while off the trial...just to be safe. Herceptin has wiped out all kinds of stuff in my liver...all by itself...hope you stay clear...whatever...
Forum: her2group 03-21-2009, 08:08 PM
Replies: 14
Views: 3,854
Posted By Gina
Exclamation Rather than mega-dosing on Vitamin D, try balancing your Vitamin A and Zinc

Hey, folks,

Have to smile about all the latest "hype" about Vitamin D--most of us OLD timers on this board have been taking it for years...but I just want to emphasize that the body is an entire...
Forum: her2group 09-12-2008, 11:50 PM
Replies: 11
Views: 3,048
Posted By Gina
Ditto on the reishi mushroom to raise WBC's

Even when I was on chemo back in 1998, I did the reishi mushroom and it worked for me...just one note...once you are off blood-lowering types of chemos and just on Herceptin by itself...you might...
Forum: her2group 09-09-2008, 04:15 PM
Replies: 0
Views: 887
Posted By Gina
Specially for RB

http://images.medscape.com/pi/global/ornaments/spacer.gifFound this medscape article fascinating...please enjoy!


Gina

Omega-3 Fatty Acids, but Not Statin Therapy, Cuts Mortality and...
Forum: her2group 08-11-2008, 04:50 PM
Replies: 1
Views: 1,002
Posted By Gina
Arrow Lessons here?? #1) a little dab of phytoestrogen will do...

and 2) there may be other active ingredients in soy besides the phytoestrogens that are beneficial for folks who are her-2 positive...most notably, the high magnesium levels of soy and other bean...
Forum: her2group 06-18-2008, 09:40 AM
Replies: 1
Views: 1,006
Posted By Gina
Question Addressed to Joe--Has Dr. Carney written any new articles this summer

Hi, Joe,

Was looking through my research from last summer and noted Dr. Walt Carney's June 2007 paper and wondered if he had written any thing new that has or is about to be released this...
Forum: her2group 06-18-2008, 09:37 AM
Replies: 110
Views: 12,484
Posted By Gina
Happened on the site today and was so sad to learn the news

Hi, everyone,

Just by chance happened to be on the site today to learn of Lolly's passing. I am too sad for words as I remember her being here as long as I have been on the site.

Deepest...
Forum: Herceptin / Tykerb 06-18-2008, 09:21 AM
Replies: 11
Views: 2,049
Posted By Gina
Exclamation What was the outcome of this?

Very interested to know how you are doing now. Have your doctors checked to see if your bile duct is being blocked by a stone or is inflamed with bacterial infection?

Not to worry, if it is...
Forum: her2group 06-18-2008, 08:55 AM
Replies: 48
Views: 3,922
Posted By Gina
Thumbs up Anti-bacterial effects of Adriamycin/Taxol

Hi Laurie,

CONGRATS!!! Your story is truly amazing, and it made me think of some research I was doing years ago on how a lot of female infertility was caused by undiagnosed bacterial infections...
Forum: Profiles In Courage 06-18-2008, 08:36 AM
Replies: 6
Views: 8,783
Posted By Gina
Highly recommend STAYING ON HERCEPTIN

Hi,

I would guess that the regular herceptin is what is keeping you stable. I have been on herceptin since 1999 and uh...I am STILL kickin'. I have had no chemo since 1998--only herceptin and...
Forum: her2group 01-02-2008, 05:58 PM
Replies: 20
Views: 3,764
Posted By Gina
Arrow Survived multiple liver mets multiple times -- 10 year survivor and still kickin

HavahJ,

Rhonda e-mailed me your post along with a Happy New Year's e-mail earlier today and asked me to come back on the board and send you out a note.

If you search my name and liver mets...
Forum: her2group 10-23-2007, 11:07 AM
Replies: 92
Views: 14,344
Posted By Gina
Special Reply to Grace and to Debbie

Hi, Grace,

We know each other from way back so I take no malice at your comment and I realize that this thread has been a bit heated. I also publically apologize to Debbie for teasing her about...
Forum: her2group 10-23-2007, 09:31 AM
Replies: 13
Views: 2,153
Posted By Gina
Arrow I strongly agree that there is a seasonality to bc metastases

and maybe even to primary tumor as well.

Hi, guys,

I know I have not been the posting maniac I used to be, but life, work, and a teenager with LEARNER's permit in Washington, DC, take over...
Forum: Inflammatory Breast Cancer 10-23-2007, 08:22 AM
Replies: 14
Views: 4,642
Posted By Gina
Lexi, you are RIGHT on TARGET

Hi, Lexi,

I agree with everything you said. I personally don't have IBC, but I have known a lot of girls from this site and in real life who have had it and almost all of them told me that in...
Forum: Inflammatory Breast Cancer 10-22-2007, 05:29 PM
Replies: 14
Views: 4,642
Posted By Gina
This article just underscores that we are still working from the WRONG IBC model

I promise not to jump on my soap box, but reading this article just underscores to me that we are not treating the disease properly and that is why there has been really no improvement in...
Forum: her2group 10-22-2007, 05:08 PM
Replies: 6
Views: 1,382
Posted By Gina
Then, moderate concern is appropriate...

Hi, Julie,

I have tried to respond twice to you here, but the system keeps throwing me out for some reason. Anyhow, first of all I am so proud that you are getting the markers taken properly,...
Forum: Herceptin / Tykerb 10-22-2007, 04:44 PM
Replies: 7
Views: 2,176
Posted By Gina
Had acne on Herceptin

Many years ago, when I first started taking Herceptin back in 99, I began to get this acne rash all over my face and upper chest. My onc assured me it was NOT from the Herceptin, but my nurses took...
Forum: Herceptin / Tykerb 10-22-2007, 04:37 PM
Replies: 2
Views: 1,877
Posted By Gina
I think herceptin without chemotherapy is the best way

I have been using only herceptin since 1999 with fabulous results...wouldn't do it any other way.

Good luck to your mom...it may have been her lucky day when she could NOT tolerate...
Forum: her2group 10-22-2007, 04:04 PM
Replies: 92
Views: 14,344
Posted By Gina
Thumbs down Sorry, Debbie, But you are just COMPLETELY WRONG!!

are you an oncologist??? LOL hee hee hee hee

Seriously, folks, if any of you out there are her-2 positive at any stage, at any point in the disease, do not heed Debbie's comments.

Regular...
Forum: her2group 10-22-2007, 03:39 PM
Replies: 14
Views: 2,092
Posted By Gina
definitely put in a plug for regular pulling of Serum Her-2

and other tumor markers, like the CA 27.29, the Ca 15, the CA 125, and the CEA, at a minimum.

My two cents...smile...Enjoy the conference--this is a great way to let what patients want be heard....
Forum: her2group 10-22-2007, 03:25 PM
Replies: 6
Views: 1,382
Posted By Gina
some movement in the serum her-2, up or down is normal

Hi, Julie,

Moderate fluctuations in the serum her-2 are to be expected. I would not panic yet...but I would watch the marker carefully to see if it goes on what I call "a run" which means...
Forum: her2group 10-22-2007, 03:09 PM
Replies: 21
Views: 2,828
Posted By Gina
So happy to hear the good news!!!

I hadn't seen you post for a while so I am glad to catch up with you. I highly recommend those climb the wall with your mastectomy arm exercises and agree that moving around as much as you can is...
Forum: her2group 10-10-2007, 03:17 PM
Replies: 8
Views: 2,220
Posted By Gina
Natalie, please share your story with Elizabeth Edwards

Natalie,

I was greatly touched by your case study. So many times, I think we need to re-evaluate all our cancer models and realize that the tumors are merely the symptoms, or artifacts, if you...
Forum: Keeping Your Mind Off of BC 10-10-2007, 02:19 PM
Replies: 38
Views: 4,717
Posted By Gina
Congratulations!! Wish I had realized you were in my area

Hi, Joe, Hi, Christine...

That is FABULOUS..so sorry I missed catching up with you...sure our paths will cross again...

Best of luck for much continued success--no one deserves it more!!!
...
Forum: her2group 10-10-2007, 02:16 PM
Replies: 12
Views: 1,526
Posted By Gina
I am going to the one in Arlington, VA this Sat. 10/13

Hi, folks,

Yes, I registered for the one this weekend at the KeyBridge Marriot off of RT 29 in Arlington...looking forward to it...

Gina
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