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Search: Posts Made By: NEDenise
Forum: her2group 04-10-2013, 06:23 AM
Replies: 105
Views: 17,124
Posted By NEDenise
Re: Brain Mets - new or old?

KG
Keeping my fingers crossed for good info on Thursday. In the meantime, sleep probably is a comfort to your mom...being off balance is a disconcerting feeling.

Try not to let yourself get...
Forum: her2group 03-22-2013, 05:09 AM
Replies: 105
Views: 17,124
Posted By NEDenise
Re: Brain Mets - new or old?

%*$#@! @$%&&!!

Had to go back up to 8mg per day. Balance was getting worse. Hands were starting to shake again.

I think maybe I need to start reminding myself hourl to view this mess as a...
Forum: her2group 03-20-2013, 04:31 PM
Replies: 105
Views: 17,124
Posted By NEDenise
Re: Brain Mets - new or old?

Thanks, friends!

You gus are always just what the doctor ordered!

I dropped back to 6mg on Tuesday...and I think I'm a little off balance...but I'm going to stick it out for a day or two and...
Forum: her2group 03-18-2013, 03:45 PM
Replies: 105
Views: 17,124
Posted By NEDenise
Re: Brain Mets - new or old?

Hi Friends...
Can you believe I'm still on 8 mg of decadron per day...and can't seem to drop any further without the dizziness/balance mess starting up again!? My face is immense! I feel like each...
Forum: her2group 03-08-2013, 06:47 AM
Replies: 105
Views: 17,124
Posted By NEDenise
Re: Brain Mets - new or old?

Jill,
Nexium is for reflux...you know...reeeeaaaallly bad indigestion. Mine actually burns my voicebox if left untreated...so that's not really an option. But I CAN take the Nexium waaaaay after...
Forum: her2group 03-06-2013, 08:01 AM
Replies: 105
Views: 17,124
Posted By NEDenise
Re: Brain Mets - new or old?

The PRIZE is all the love!!
Thanks everyone!!

:) Denise
Forum: her2group 03-05-2013, 05:49 PM
Replies: 105
Views: 17,124
Posted By NEDenise
Re: Brain Mets - new or old?

Ok!
So at the neurologist today I got a definite maybe. Which, as we all realize is way better than definite bad news!

Here's the news... since the symptoms seem to be resolving with...
Forum: her2group 03-05-2013, 10:23 AM
Replies: 105
Views: 17,124
Posted By NEDenise
Re: Brain Mets - new or old?

Thank you so much for the giggle!!

When I re-read it later...I noticed it said stink...instead of stint...but I wasn't sure which I liked better! To be mentioned in the same breath as our dear...
Forum: her2group 03-05-2013, 06:22 AM
Replies: 105
Views: 17,124
Posted By NEDenise
Re: Brain Mets - new or old?

Mario, Paul, Friends...
Thanks for hanging in with me on this. I will definitely be talking IT Herceptin before considering a craniotomy. It just makes so much sense to me. The ONLY hesitation I...
Forum: her2group 03-03-2013, 03:32 PM
Replies: 105
Views: 17,124
Posted By NEDenise
Re: Brain Mets - new or old?

Just checking in, friends!
Still hanging in there. :)
Steroids are really starting to aggravate my tummy. Besides my regular Nexium I'm popping Maalox like M&Ms.

And, naturally, my sleep cycles...
Forum: her2group 03-01-2013, 06:48 AM
Replies: 105
Views: 17,124
Posted By NEDenise
Re: Brain Mets - new or old?

Morning Friends,
Hot bath...chamomile tea...check! Thanks for the idea, it helped calm me down enough for a nap last night!

Thanks for all the votes of confidence. Your opinions matter to me....
Forum: her2group 02-28-2013, 02:07 PM
Replies: 105
Views: 17,124
Posted By NEDenise
Re: Brain Mets - new or old?

Well...
It's not good news or bad news...it's unclear news.

There is definitely increased swelling in the area around where the larger lesion was zapped. It's very unclear as to whether this...
Forum: her2group 02-28-2013, 06:02 AM
Replies: 105
Views: 17,124
Posted By NEDenise
Re: Brain Mets - new or old?

No news yet.
If I don't hear by 9 am...I'm going to call. Patience is usually one of my virtues...but today...not so much! :)

Denise
Forum: her2group 02-27-2013, 07:19 AM
Replies: 105
Views: 17,124
Posted By NEDenise
Re: Brain Mets - new or old?

Thank you my friends!
Your prayers and encouragement mean so much...more than I can express! You are a rock in stormy seas...a safe little island of hope where I can catch my breath and know that...
Forum: her2group 02-25-2013, 11:33 AM
Replies: 105
Views: 17,124
Posted By NEDenise
Brain Mets - new or old?

Well,
I thought the dizziness was linked to all the pain meds from my stupid back surgery. But I haven't had any pain meds for two weeks, and I still keep losing my balance.

Soooo...I'm back on...
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