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Search took 0.01 seconds. Search: Posts Made By: Colleen007
Forum: her2group 08-14-2013, 01:15 PM
Replies: 2
Views: 1,490
Posted By Colleen007
Re: PET Scan Prep

I just came from having a PET scan. They told me to avoid breads, pastas, potatoes for 24 hours beforehand (and to have a high protien diet). So, for dinner last night, I had chicken breast and...
Forum: her2group 08-07-2013, 11:30 AM
Replies: 17
Views: 2,717
Posted By Colleen007
Re: Neupogen Shots? Standard With Navelbine?

I have been on Navelbine for a few years (3 weeks on and one week off). I get Neupogen and Neulasta shots after treatments to boost the white blood counts. I have gone without, but that has meant I...
Forum: her2group 04-23-2012, 05:08 PM
Replies: 4
Views: 1,689
Posted By Colleen007
Re: compression fracture.......do a procedure? stage IV

Hi there,

I had vertebroplasty (similar to kyphoplasty) in 2006. I was initially diagnosed with bone mets in my spine and the initial chemo did such a good job of eating away the cancer, that it...
Forum: her2group 01-17-2012, 08:11 AM
Replies: 7
Views: 1,815
Posted By Colleen007
Re: new article summarizing her2+ bc treatment opptions beyond herceptin

Great info for my "arsenal". Thank you!
Forum: her2group 06-21-2011, 11:43 AM
Replies: 12
Views: 1,949
Posted By Colleen007
Re: Navelbine

I have been on Navelbine for over 4 years. I also find it easy to take with my biggest side effects being low white blood count (I get Neupogen and Neulasta injections for this), heartburn, and...
Forum: her2group 05-28-2011, 08:35 AM
Replies: 21
Views: 13,432
Posted By Colleen007
Re: Neupogen & Neulasta Bone Pain YIKES!!!!!

Hi Sheila,

I have been on Neupogen and Neulasta for awhile...the pain will lessen over time (or maybe I just got used to it??). Meanwhile, I used Ibuprofen...you can get a prescription for 600...
Forum: her2group 05-11-2011, 12:34 PM
Replies: 9
Views: 1,756
Posted By Colleen007
Re: Navelbine question

Hi Michka,

My main side effect is low white blood count. So, I get Neupogen and Neulasta injections after each treatment (self-injected). I get Neupogen for 3 days following week 1 and week 2...
Forum: her2group 05-09-2011, 07:44 AM
Replies: 9
Views: 1,756
Posted By Colleen007
Re: Navelbine question

I have been on Navelbine and Herceptin for 4 years now. My oncologist schedules my Herceptin so that when I have my Navelbine for 3 weeks on and 1 week off, my week off of Navelbine is also an off...
Forum: her2group 02-08-2011, 12:35 PM
Replies: 15
Views: 1,815
Posted By Colleen007
Re: Apheresis Help

I was having problems of no blood return from my port...when I was lying down on a bed (as opposed to one of the chairs in the infusion room), I got great return. We think it was my position. Try...
Forum: her2group 01-20-2011, 11:55 AM
Replies: 13
Views: 1,985
Posted By Colleen007
Re: Port doesn't return blood

Hi Marcia,

I just had the Altiplase (also called "Cath-Flo") last Friday. It is just as Elaine describes...they accesed both sides of my port then pushed it through (kind of like how they push...
Forum: her2group 01-19-2011, 06:37 AM
Replies: 389
Views: 154,952
Posted By Colleen007
Re: Calling all stage iv sisters

Passed my 5 year Stage IV mark in October (originally diagnosed at Stage IV with mets to bone and liver). And am thankful that I am HER2+ as I think that has given me many more treatment options...
Forum: her2group 01-19-2011, 06:30 AM
Replies: 14
Views: 1,663
Posted By Colleen007
Re: NY Times article on stage IVs with stats and singling out her2+ breast

I read this article yesterday and it gave me a jolt because I have tried to not pay any attention to the statistics (I passed my 5 year mark as a Stage IV back in October and according to the stats,...
Forum: her2group 12-17-2010, 09:02 AM
Replies: 6
Views: 6,659
Posted By Colleen007
Re: anyone on navelbine / herceptin?

I have been on Herceptin and Navelbine for over 3 years. Biggest side effect for me was low white counts so I get Neupogen and Neulasta shots afterwards. I get the Navelbine 3 weeks on/1 week off. ...
Forum: her2group 10-06-2010, 06:20 AM
Replies: 4
Views: 1,717
Posted By Colleen007
Re: experience with zometa?

I've been on Zometa for almost 5 years. I now get it once a quarter. Pam summed up the side effects nicely, but I wanted to add one. When I got my first infusion, I got a fever as well. I know 2...
Forum: her2group 08-30-2010, 10:28 AM
Replies: 11
Views: 2,355
Posted By Colleen007
Re: Aunt just diagnosed, now what?

I also think there is something genetic in my family...just can't figure out what it is. My maternal grandmother had breast cancer, I have breast cancer and my maternal aunt (daughter of my maternal...
Forum: her2group 08-17-2010, 04:40 PM
Replies: 6
Views: 1,395
Posted By Colleen007
Re: How long for receptor test?

I don't think it should take that long...might make sense to call your doctor.
Forum: her2group 08-14-2010, 12:10 PM
Replies: 139
Views: 19,603
Posted By Colleen007
Re: Joe passed on this evening

What a loss. I was always amazed at the loving gesture Joe made to Christine by setting up this website. I have learned so much...and have even found myself thinking how blessed I am that my cancer...
Forum: her2group 08-09-2010, 08:49 AM
Replies: 6
Views: 2,090
Posted By Colleen007
Re: absurdity of bc awareness products (funny)

Thanks for the laugh!
Forum: her2group 06-18-2010, 06:31 AM
Replies: 13
Views: 2,177
Posted By Colleen007
Re: Have to get a port - anything I should know?

I'm going to be up for a new one soon and am offering a suggestion from another woman I know who just got a new port. Put on some of your bras before surgery and make lines with a sharpie marker...
Forum: her2group 03-24-2010, 09:19 AM
Replies: 21
Views: 2,462
Posted By Colleen007
Re: Hope: Stage IV 6 years....gone skiing

KK1 - Thanks for inspiring me. I went skiing at Bretton Woods, NH on Friday and dedicated all my runs to the women on this board who are continuing to show that a Stage IV diagnosis does not mean it...
Forum: her2group 03-14-2010, 06:14 PM
Replies: 17
Views: 5,263
Posted By Colleen007
Re: Radioactive after FDG injection????

I can only share what I have experienced...my husband comes with me to every scan and for the PET w/ FDG, he has to wait in another room. In fact, the tech who injects the FDG leaves me alone it the...
Forum: her2group 03-03-2010, 10:30 AM
Replies: 9
Views: 1,719
Posted By Colleen007
Re: Can I have a Herceptin infusion two weeks after another instead of three?

My oncologist told me that they only do it in weekly doses and 3 week doses. So, whenever I go away, I do the weekly doses for a couple of weeks and then the week before I go away, I get the 3 week...
Forum: her2group 01-31-2010, 03:07 PM
Replies: 46
Views: 10,158
Posted By Colleen007
Re: Positive stories, please come out of the woods

I'll share a very short version of my story that should give you some hope. I was diagnosed in October of 2005 at age 38 while pregnant with my daughter...she turned 4 in October. I just had my...
Forum: her2group 01-28-2010, 08:41 AM
Replies: 13
Views: 1,859
Posted By Colleen007
Re: Advice Please

I'm still going 4+ years after my metastatic diagnosis (liver and bones). Herceptin and Navelbine have been doing the trick for me. Good luck to your mother!
Forum: her2group 01-20-2010, 09:58 AM
Replies: 18
Views: 1,828
Posted By Colleen007
Re: If you have ever had Navelbine, pls reply.

I have been on Navelbine 3 weeks on/1 week off for 2+ years now. I usually get an "80% dose" for each of those 3 weeks and get Neupogen for 3 days after each weekly treatment. If I am going away, I...
Showing results 1 to 25 of 131
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