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Search: Posts Made By: Kat77
Forum: her2group 01-15-2018, 08:31 PM
Replies: 40
Views: 19,063
Posted By Kat77
Re: Amy? (Mtngrl)

I've been dreading this update. I hope that word can reach her family how important she has been to those who "knew" her through her contributions to this group.

You are all inspirational and...
Forum: her2group 11-02-2017, 04:12 AM
Replies: 15
Views: 7,479
Posted By Kat77
Re: Another year

Awesome! Wishing you many more years. I just passed 3 years S4 myself and am so happy. I was disappointed Dennis Slamon did not win Nobel this year, no one more deserving.
Forum: her2group 10-28-2017, 08:03 PM
Replies: 13
Views: 5,324
Posted By Kat77
Re: Any good chemos I could try?

Sarah Cannon Research Center at Health One in Denver. I think they run numerous clinical trials there. May be worth a 2nd opinion from someone there unless that is where your onc is now.
Forum: her2group 08-05-2017, 07:25 PM
Replies: 28
Views: 11,214
Posted By Kat77
Re: Brief Update

Terrible. She was only 42 I think, she just did not respond to the meds that give us S4's more time these days. Condolences.
Forum: her2group 05-25-2017, 07:04 PM
Replies: 20
Views: 9,756
Posted By Kat77
Re: New Plan

Looks like what I wrote up thread about neratinib was wrong. FDA panel approved for early stage treatment. I can't find anything that it would be of use for us stage 4'ers. Hope your her2+ stays...
Forum: her2group 05-08-2017, 06:23 PM
Replies: 24
Views: 14,263
Posted By Kat77
Re: How Her2+ BC patients develop brain metastases

Seven years is incredible, thank you for the information provided in your posts.
Forum: her2group 05-07-2017, 05:25 PM
Replies: 20
Views: 9,756
Posted By Kat77
Re: New Plan

Thanks for the update, sounds like a wise choice.

As for neratinib, unfortunately does not look good...
Forum: her2group 04-25-2017, 05:09 PM
Replies: 20
Views: 9,756
Posted By Kat77
Re: New Plan

You were walking around with a partially collapsed lung and infected tooth!

I don't have any educated advice, I'd probably stick with onc plan, but I tend to be a by the book person. I have not...
Forum: her2group 03-01-2017, 04:47 PM
Replies: 71
Views: 22,204
Posted By Kat77
Re: Back Pain

Sorry you have to wait so long for scan results, I usually get mine the next day. My back pain was always there but sometimes it hurt more than others. I always think every new ache or cough or...
Forum: her2group 02-23-2017, 12:51 PM
Replies: 71
Views: 22,204
Posted By Kat77
Re: Back Pain

I had back pain before I was diagnosed de novo stage 4 at 37 years old. I had mets to spine exactly where my back pain was. When was your last bone scan? I don't mean to overly concern you but if...
Forum: her2group 02-13-2017, 03:35 PM
Replies: 5
Views: 3,999
Posted By Kat77
Re: 5 year metaversary!

Congratulations, and very well said! "uncertainty, anxiety, night fears, aches and pains, annoying side effects and the medicalisation of my world" is always there. But the good things as well.
Forum: her2group 01-12-2017, 06:52 PM
Replies: 20
Views: 9,233
Posted By Kat77
Re: Metformin, anything new?

https://www.nytimes.com/2016/05/15/magazine/warburg-effect-an-old-idea-revived-starve-cancer-to-death.html?_r=0

I'm on it, no idea if doing any good. Onc made me sign waiver to write script.
Forum: her2group 04-07-2015, 09:02 AM
Replies: 7
Views: 2,261
Posted By Kat77
Re: Mastectomy & Radiation with Stage 4 Diagnosis

Thanks for your responses! The study in India my husband and doctors discounted because those women did not have access to herceptin. The study that is worrisome is the one where the fellow took...
Forum: her2group 04-07-2015, 05:34 AM
Replies: 7
Views: 2,261
Posted By Kat77
Question Mastectomy & Radiation with Stage 4 Diagnosis

Hi - I have been lurking since October when I was diagnosed at 37 years old with Stage 4 BC triple positive with two metastasis to spine. This online support group has been a great source of...
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