HonCode

Go Back   HER2 Support Group Forums > Search Forums
Register Gallery FAQ Members List Calendar Search Today's Posts Mark Forums Read

Showing results 1 to 25 of 500
Search took 0.13 seconds.
Search: Posts Made By: Lien
Forum: her2group 01-06-2019, 11:28 AM
Replies: 78
Views: 7,314
Posted By Lien
Re: ZW25 clinical trial - day one

Hi Flori,
Just checking how you are doing. Drop us a line if and when you feel like it.

Love
Jacqueline
Forum: her2group 11-01-2018, 08:39 AM
Replies: 10
Views: 2,354
Posted By Lien
Re: Chemo Not Needed for Most Early Breast Cancer: TAILORx

As I live in the Netherlands, things are done differently here. I was borderline Her2 positive and Herceptin was only available for metastatic disease at the time. I had radiotherapy & 5 years of...
Forum: her2group 09-24-2018, 07:39 AM
Replies: 78
Views: 7,314
Posted By Lien
Re: ZW25 clinical trial - day one

Hang in there, Flori! Hope the new drug will make your horizon shine bright before you. Sending hugs for the hard moments. Use as needed.
Forum: her2group 04-01-2018, 03:06 PM
Replies: 39
Views: 8,913
Posted By Lien
Re: Kadcyla n me

Hi Flori,
That sounds really tough. Can't blame you for wanting to discontinue this treatment if the scans are not so great. Still hoping the SE's will subside with subsequent cycles and scans will...
Forum: her2group 03-12-2017, 11:16 AM
Replies: 7
Views: 4,214
Posted By Lien
Re: Oh come on now....

After my surgery I had a huge infection in my scar tissue. It was very painful and I worried about it a lot. Then my oncologist told me that having an infection in the area actually may be...
Forum: her2group 12-16-2016, 03:44 PM
Replies: 40
Views: 12,905
Posted By Lien
Forum: her2group 09-14-2016, 04:33 AM
Replies: 12
Views: 5,039
Posted By Lien
Re: Just Starting Out and Scared To Death

Hi Grammy,

Of course you are scared and out of your depth. Hearing the words: "you have cancer" is a terrible experience. I really thought I was not going to see my kids grow up. They were 3, 8,...
Forum: her2group 08-18-2016, 08:15 AM
Replies: 11
Views: 4,915
Posted By Lien
Re: 10 years and in trouble

Hi Michka,

Sorry to hear you have some progression in your liver and perhaps spine. You might also want ti look into trials in the Netherlands, England and Germany. I can help you with the first...
Forum: her2group 07-31-2016, 08:04 AM
Replies: 10
Views: 3,682
Posted By Lien
Re: Can anybody help please?

Many of us go through the same stages. Especially when you have a business to run and 4 kids to take care of, you may go into survival mode and when you finally, finally feel things are getting under...
Forum: her2group 07-31-2016, 07:53 AM
Replies: 18
Views: 4,374
Posted By Lien
Re: Progress Report from Ceesun!

Excellent news! Hope you will be able to go back to just Vit H and have your hair grow back.
Forum: her2group 07-28-2016, 10:23 AM
Replies: 13
Views: 4,127
Posted By Lien
Re: Anybody taken tamoxifen after 10years of arimidex?

Christal ball, pesky autocorrect set to Dutch language...
Forum: her2group 07-28-2016, 10:22 AM
Replies: 13
Views: 4,127
Posted By Lien
Re: Anybody taken tamoxifen after 10years of arimidex?

Why would you want to keep taking anything after 10 years? Did you have advanced stage disease? Other risk factors? I had 5 years of Arimidex and decided to quit, as the risk reduction after that was...
Forum: her2group 06-22-2016, 11:54 AM
Replies: 72
Views: 26,773
Posted By Lien
Re: I think I'm in trouble!

What a journey! Any results yet? It's all very intriguing.
Forum: her2group 01-03-2016, 07:21 AM
Replies: 5
Views: 3,190
Posted By Lien
Re: Advice From the Group

In my country, the Netherlands, Europe, where we have similar outcomes to your country, we have the following schedule:
Checkups every three months for the first 6 months. Then twice a year until...
Forum: her2group 12-15-2015, 03:10 PM
Replies: 42
Views: 16,650
Posted By Lien
Re: Karen has moved on

Thank you for letting us know. It's hard to grasp that she's gone. She was so very much alive. Hugs to all who loved her, laughed with her, felt her warmth, enjoyed her intelligence and shared a part...
Forum: her2group 10-04-2015, 12:41 PM
Replies: 7
Views: 3,065
Posted By Lien
Re: "why did I get breast cancer" starting to be answered & it seems to be 80% bad lu

I guess we want control over our lives and health. That makes life less scary. I remember traveling in Peru and Equador, in 1983, where locals seemed indifferent to the dangers of diseases and...
Forum: her2group 09-13-2015, 11:55 AM
Replies: 9
Views: 2,368
Posted By Lien
Re: Not sure what to do about surgery

Hi Mama Bexar,

Glad you have that behind you. Clear margins and negative nodes are very good news. It seems to me that you have an excellent chance of never having to deal with breast cancer...
Forum: her2group 08-20-2015, 09:12 AM
Replies: 0
Views: 1,332
Posted By Lien
Toupim & post-surgery camisoles

Hi all,

As I was browsing through my Facebook friends, I discovered that someone I used to know has developed the Toupim, a very comfortable hairpiece that isn't itchy or uncomfortable. She...
Forum: her2group 08-16-2015, 12:08 PM
Replies: 17
Views: 27,514
Posted By Lien
Re: A Special Note on Christine's Birthday, From Her Daughter

Dear Danielle and Debra,

Your Mom and Dad made a difference. Because of them, so many women and men feel less afraid, less alone and more hopeful during the toughest time of their lives. Their...
Forum: her2group 08-11-2015, 02:08 PM
Replies: 11
Views: 2,201
Posted By Lien
Re: Melanoma

Hi Janis,

Not fun, this. My best friend is a dermatologist and she says there are quite a few new treatments that are keeping more people recurrence-free after a melanoma diagnosis. So it seems...
Forum: her2group 08-11-2015, 02:04 PM
Replies: 12
Views: 2,161
Posted By Lien
Re: Looking for advice and suggestions please

What a scare! I hope the WBR kills those mets fast. You will not be the first to beat this!

Love

Jacqueline
Forum: her2group 08-05-2015, 02:55 AM
Replies: 32
Views: 4,435
Posted By Lien
Re: Going back on Abraxane

Hi Amy,

I'm extremely sensitive to molds too. I found that drying out & spraying the afflicted area with a borax solution really helps. Glad you found a way to deal with it. Often these allergies...
Forum: her2group 07-14-2015, 06:36 AM
Replies: 28
Views: 10,838
Posted By Lien
Re: Teeth

I have had dental problems for a long, long time, ever since some cheapo dentist put some cheap fillings in my mouth. Turned out to be allergic to them and have had health issues since. Breast cancer...
Forum: her2group 07-11-2015, 12:05 PM
Replies: 39
Views: 3,829
Posted By Lien
Re: All clear Mammo and ten years out!

I get checkups with a mamma-care nurse practitioner who works at my breast surgeon's office. If at any time she is worried about anything at all, she calls him in. Because of my scarring, I don't get...
Forum: her2group 07-08-2015, 08:08 AM
Replies: 32
Views: 4,435
Posted By Lien
Re: Going back on Abraxane

Sorry about the tougher chemo. Of course you hate to lose your hair! I never had chemo, but I have a chronic gut infection that makes me look very pale. People kept commenting on that, and it made me...
Showing results 1 to 25 of 500

 
Forum Jump

All times are GMT -7. The time now is 09:19 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2019, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007
free webpage hit counter