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Search: Posts Made By: pffida
Forum: her2group 08-20-2014, 08:38 PM
Replies: 6
Views: 1,687
Posted By pffida
Re: Cardiac toxicity with Herceptin

I had problems with herceptin, developing cardio myopathy after about 3 or 4 treatments. The oncologist had had good success with waiting about six weeks, then restarting weekly treatments (at lower...
Forum: her2group 03-17-2012, 02:37 PM
Replies: 6
Views: 1,496
Posted By pffida
Re: Herceptin treatment on hold

I, too, had to take a five week Herceptin break. But when I resumed, I received weekly treatments instead of every three weeks. The more frequent, lower doses solved the problem for me. I had about 8...
Forum: her2group 02-11-2010, 09:31 PM
Replies: 10
Views: 1,672
Posted By pffida
Re: Cancer Treatments and employment issues

Just so you all know that COBRA will only kick in if there is a minimum # of employees -- 20, I think. So, very small companies generally don't participate in it. Also, if you are working for a...
Forum: her2group 08-27-2009, 06:31 PM
Replies: 22
Views: 6,866
Posted By pffida
Re: Weekly Or Once Every 3 Weeks---herceptin

I started out with taking Herceptin every three weeks. After I developed Herceptin-induced cariomyopathy, I took a rest for 6 weeks, then resumed weekly Herceptin. My onc had had good results with...
Forum: her2group 07-07-2009, 09:46 PM
Replies: 9
Views: 1,326
Posted By pffida
Port Removal

I just had mine removed two weeks ago, one year after completing Herceptin. The original surgeon who put it in said he would remove it in his office. I moved, so the original surgeon was not...
Forum: her2group 03-13-2009, 10:11 PM
Replies: 20
Views: 2,110
Posted By pffida
My herceptin cough was caused by...

My herceptin cough was caused by herceptin-induced cardiomyopathy. Don't ignore the cough, especially if its disruptive (trying to sit through business meetings) or it keeps you or your significant...
Forum: her2group 01-12-2009, 05:51 PM
Replies: 9
Views: 1,005
Posted By pffida
I started out with it every 3 weeks. When I...

I started out with it every 3 weeks. When I developed cardiomyopathy, I took a herceptin holiday for six weeks. Then I started back with weekly treatments with no further problems.
Forum: her2group 10-09-2008, 05:13 PM
Replies: 8
Views: 938
Posted By pffida
Weekly vs every three weeks for Herceptin

Lida, my oncologist is in Glendora/Pomona, California. Her name is Vandana Agarwal.

I had a echocardiogram upon completion of herceptin back in June, and all was well with my heart. All of my...
Forum: Herceptin / Tykerb 04-03-2008, 07:00 AM
Replies: 10
Views: 2,594
Posted By pffida
I developed cardiomyopathy last fall, the result...

I developed cardiomyopathy last fall, the result of taking Herceptin (every 3 weeks). After a brief rest (5 weeks), I started up again, only this time weekly. I have had no further problems. My...
Forum: her2group 03-28-2008, 02:04 PM
Replies: 20
Views: 1,496
Posted By pffida
I am stage one, MRM, node negative, er/pr- but...

I am stage one, MRM, node negative, er/pr- but was very aggressive with treatment, incluing A-C and Taxol. Am nearing the end of Herceptin. My onc wanted to be as aggressive as possible, and has...
Forum: her2group 03-13-2008, 12:11 PM
Replies: 3
Views: 770
Posted By pffida
Wow, did I read this correctly?

I sometimes have a hard time interpreting results of these studies, but does it say that Her2+ that received Herceptin actually fare better than those who are Her2-?
Forum: her2group 02-29-2008, 07:38 PM
Replies: 12
Views: 1,476
Posted By pffida
Coughing and Herceptin

You have a right to be concerned. I also had coughing about six months into my Herceptin treatments. It started slowly and at first, was kind of brushed off by the nurse. When it started keeping...
Forum: her2group 02-07-2008, 11:08 PM
Replies: 4
Views: 1,086
Posted By pffida
Stopping Herceptin

I, too, experienced cardiac problems (reduced ejection fraction). I had an echocardiogram, nuclear stress test, exercise stress test and a halter monitor for a day to monitor racing pulse. After...
Forum: her2group 01-14-2008, 09:44 AM
Replies: 9
Views: 2,855
Posted By pffida
Have you had your heart function tested either...

Have you had your heart function tested either via MUGA or Echo?
Forum: Herceptin / Tykerb 01-10-2008, 07:17 PM
Replies: 11
Views: 2,060
Posted By pffida
Heart problems with herceptin

My symptoms were an unproductive cough and fast pulse. An echocardiogram revealed ejection fraction of around 45%. Oncologist stopped Herceptin for a month to give the heart a chance to heal. We...
Forum: her2group 01-01-2008, 08:52 PM
Replies: 9
Views: 2,855
Posted By pffida
Herceptin Cough

I had a non-productive cough about 1/3 way through Herceptin treatments that were administered every three weeks. The coughing was interfering with meetings at work and keeping me and my husband...
Forum: her2group 12-20-2007, 07:11 AM
Replies: 17
Views: 1,214
Posted By pffida
Herceptin every week versus every three weeks

While taking herceptin every three weeks, I developed cardiomyopathy. Symptoms were an unproductive cough that kept me up at night, plus my pulse was generally in the 100-120 range. After many...
Forum: her2group 12-04-2007, 08:29 PM
Replies: 18
Views: 3,120
Posted By pffida
Thumping in ear

While taking A-C, I developed a horrible sore throat. Took penicillin and it went away. However, I then developed a thumping in my ear. It was the oddest thing -- when I would turn my head,...
Forum: her2group 11-25-2007, 03:04 PM
Replies: 5
Views: 1,777
Posted By pffida
Response to LA Times Article

I read the article in the paper this morning and was concerned about the following statement, "According to Kane, 70% of women treated with Herceptin do not respond to the drug. Knowing which gene...
Forum: her2group 11-25-2007, 02:47 PM
Replies: 14
Views: 1,455
Posted By pffida
Working during chemo

I worked the entire course of A-C and then three rounds of Taxol/Herceptin (didn't receive last Taxol because I was allergic to it). I continue on with Herceptin.

I am the director of an...
Forum: her2group 09-12-2007, 09:35 AM
Replies: 8
Views: 1,504
Posted By pffida
No rash for me. Just itching from the inside --...

No rash for me. Just itching from the inside -- I presume it was the nerves itching if that's possible.
Forum: her2group 09-07-2007, 12:55 PM
Replies: 8
Views: 1,504
Posted By pffida
Had to stop taxol

I should have responded back in June to let you know the final outcome. when the PA discussed my itching with the oncologist, she immediately stopped the taxol since it was an allergic reaction I...
Forum: her2group 08-18-2007, 08:55 AM
Replies: 6
Views: 827
Posted By pffida
I had a hysterectomy at 40 and took hormones for...

I had a hysterectomy at 40 and took hormones for the first couple of years, until my older sister was diagnosed with BC. Had arguments with doctor, who said you're more likely to die of heart...
Forum: her2group 07-06-2007, 09:00 PM
Replies: 3
Views: 2,376
Posted By pffida
Itching

After starting Taxol and Herceptin, I began having terrible itching in either my hands or feet. Each of the three treatments showed progressive itching. I finally made an appointment to see the...
Forum: her2group 06-18-2007, 06:29 PM
Replies: 8
Views: 1,421
Posted By pffida
Changes in Blood Pressure

I, too, experienced wide swings in blood pressure after starting chemo. In January, when I started A-C, I also had spells of light headedness and almost fainting. I bought a monitor and noticed...
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