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Search took 0.01 seconds. Search: Posts Made By: Sue2001
Forum: her2group 06-11-2006, 05:10 PM
Replies: 53
Views: 8,340
Posted By Sue2001
Dx at age 41. Nice poll AA, I've often...

Dx at age 41.

Nice poll AA, I've often wondered if Her-2 women get cancer at a younger age.
Forum: her2group 06-04-2006, 03:07 PM
Replies: 25
Views: 5,320
Posted By Sue2001
Christine and Joe, The two of you are...

Christine and Joe,

The two of you are amazing! Thanks so much to you both. Sue
Forum: her2group 05-29-2006, 07:07 AM
Replies: 109
Views: 13,664
Posted By Sue2001
Maryanne, I just read your post and wanted...

Maryanne,

I just read your post and wanted to let you know that you are in my prayers. I will be sending postive, healing thoughts your way. I know a woman who had the same thing happen and she...
Forum: her2group 05-28-2006, 07:54 PM
Replies: 23
Views: 2,636
Posted By Sue2001
I don't have any new information for you but just...

I don't have any new information for you but just wanted to respond. Whenever I hear this type of story it makes me so sad. I am so sorry that your mother has to put up with the poor behavior of...
Forum: her2group 05-28-2006, 07:40 PM
Replies: 24
Views: 4,151
Posted By Sue2001
Hi, I had the same treatment as your mother. I...

Hi, I had the same treatment as your mother. I found the Taxol and Herceptin to be much more tolerable than the AC. My side effects for each:

A/C: Some nausea the first few days
...
Forum: her2group 05-28-2006, 07:23 PM
Replies: 4
Views: 1,066
Posted By Sue2001
Hi Sandy, I recently got a new Jobst glove...

Hi Sandy,

I recently got a new Jobst glove and sleeve. The glove was longer than usual in the wrist area but the sleeve was the same as always. I know that they do come in short, regular and...
Forum: her2group 05-21-2006, 04:40 PM
Replies: 2
Views: 1,297
Posted By Sue2001
This is wonderful. What a great site for kids. ...

This is wonderful. What a great site for kids. Thanks, Sue
Forum: her2group 05-08-2006, 07:33 PM
Replies: 8
Views: 1,457
Posted By Sue2001
Monique, I found that I was very sensitive...

Monique,

I found that I was very sensitive to the sun while on Herceptin. I burned very easily, even while wearing sunscreen, and I did get a rash along with the burn a couple of times. I ended...
Forum: her2group 05-08-2006, 07:19 PM
Replies: 27
Views: 3,160
Posted By Sue2001
Suzan, I was part of the clinical trial...

Suzan,

I was part of the clinical trial giving Herceptin to early stage bc patients so I received Herceptin. In talking with my onc last week, he said that he is currently recommending Herceptin...
Forum: her2group 05-08-2006, 07:14 PM
Replies: 4
Views: 1,058
Posted By Sue2001
Irene, I was only on Herceptin for 1 year...

Irene,

I was only on Herceptin for 1 year but I had muscle cramps in my legs and back that started while on Herceptin. I never had spasms prior to that. They decreased somewhat when I stopped...
Forum: her2group 05-06-2006, 07:48 PM
Replies: 20
Views: 2,331
Posted By Sue2001
Hi Kat, I was in a clinical trial in...

Hi Kat,

I was in a clinical trial in 2001-2002 and I received Herceptin for 1 year. Tumor markers were checked every 3 months. I was talking with my oncologist the other day and he said that he...
Forum: her2group 05-05-2006, 09:59 PM
Replies: 6
Views: 1,008
Posted By Sue2001
This is very interesting -- thanks for the post. ...

This is very interesting -- thanks for the post.

It's difficult to explain to others what this fatigue feels like. I've always wondered why it didn't go away after treatment stopped. Sometimes...
Forum: her2group 04-26-2006, 08:26 PM
Replies: 11
Views: 1,441
Posted By Sue2001
Joe, Great news. Please keep us posted.

Joe,

Great news. Please keep us posted.
Forum: her2group 04-26-2006, 08:13 PM
Replies: 63
Views: 9,167
Posted By Sue2001
Lyn, I am thinking of you and including you...

Lyn,

I am thinking of you and including you in my prayers each day. Please keep us posted.

Love, Sue
Forum: her2group 04-24-2006, 04:40 PM
Replies: 198
Views: 30,400
Posted By Sue2001
Excellent idea! I found a lump while in the...

Excellent idea!

I found a lump while in the shower. Ultrasound showed 3 tumors.
Dx 1-11-01 at age 40.
Stage 3
ER-, PR-
Her2+++
4/13+ lymph nodes
Mastectomy on one side 2-6-01, had to take...
Forum: her2group 04-20-2006, 07:35 PM
Replies: 10
Views: 1,374
Posted By Sue2001
Same thing happened to me -- hair started to grow...

Same thing happened to me -- hair started to grow somewhat but eyebrows and eyelashes fell out. The hair on my head grew but it was very thin, unhealthy and stopped when it reached about 1/2 inch in...
Forum: her2group 04-16-2006, 10:24 PM
Replies: 9
Views: 1,658
Posted By Sue2001
I had weekly Herceptin and did not take Decadron....

I had weekly Herceptin and did not take Decadron. I was given Benadryl with the first infusion of Herceptin, which was a double dose, but from then on I didn't receive any pre or post infusion meds...
Forum: her2group 04-14-2006, 07:32 PM
Replies: 5
Views: 1,088
Posted By Sue2001
Hi Ann, I had a mastectomy and lost most of...

Hi Ann,

I had a mastectomy and lost most of my chest muscles too. I have shoulder problems and lymphedema on that side. I was told by the onc nurse to never get have blood drawn or get blood...
Forum: her2group 04-13-2006, 07:57 PM
Replies: 13
Views: 1,878
Posted By Sue2001
Hi, I also have extremely pale skin and ended up...

Hi, I also have extremely pale skin and ended up with some bad burns. I thought for sure I would have scars for the rest of my life but I was amazed at how quickly it healed. Within a week it no...
Forum: her2group 04-13-2006, 07:36 PM
Replies: 14
Fyi
Views: 1,384
Posted By Sue2001
Congratulations on the new doctor! He sounds so...

Congratulations on the new doctor! He sounds so much better than the last. A doctor with a positive outlook is so very important. Good luck with the tests and let us know the outcome. Take care,...
Forum: her2group 04-13-2006, 07:26 PM
Replies: 63
Views: 9,167
Posted By Sue2001
Dear Lyn, Please know that I am thinking of...

Dear Lyn,

Please know that I am thinking of you, sending you warm healing thoughts, and including you in my prayers. I am fairly new to this site but I have enjoyed reading your posts. Keep us...
Forum: her2group 04-11-2006, 05:09 PM
Replies: 15
Views: 1,937
Posted By Sue2001
Smile Congratulations!!! Excellent news.Sue

Congratulations!!! Excellent news.Sue
Forum: her2group 04-09-2006, 07:03 PM
Replies: 14
Views: 4,277
Posted By Sue2001
I'm with you

I had a right mastectomy in 2001 and have been happy being lopsided for the past 5 years. My doctor really pushed me to get a reconstruction and was surprised when I decided not to have it done. If...
Forum: her2group 04-09-2006, 06:49 PM
Replies: 15
Views: 1,818
Posted By Sue2001
My goodness Maryann, what a way to spend your...

My goodness Maryann, what a way to spend your weekend! I'm so glad everything worked out ok and also that you made it home in time for Desperate Housewives. You have a wonderful outlook on life and...
Forum: her2group 04-05-2006, 01:05 PM
Replies: 31
Views: 5,258
Posted By Sue2001
I had a single mastectomy and often go without a...

I had a single mastectomy and often go without a bra or prosthesis. Like Lolly, I have trouble with lymphedema and a bra causes problems after a while. I felt uncomfortable at first but now I don't...
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