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Search: Posts Made By: koolmom
Forum: Keeping Your Mind Off of BC 05-15-2009, 12:29 AM
Replies: 2,096
Views: 267,909
Posted By koolmom
flow ----- flew

flow ----- flew
Forum: her2group 04-10-2009, 11:41 AM
Replies: 6
Views: 1,594
Posted By koolmom
Forum: her2group 04-10-2009, 11:41 AM
Replies: 6
Views: 1,594
Posted By koolmom
Cool Thank you for the info

I see a lot of you have also had lung mets. I'm getting really stressed about this. Sometimes I feel like I am short of breath, but in all reality, I think it is anxiety. I don't think the two...
Forum: her2group 01-13-2009, 11:43 AM
Replies: 17
Views: 1,689
Posted By koolmom
Good Thoughts and Prayers

Just remember, most aches and pains are not cancer related. Of course, our mind tells us it is. So anytime those scary thoughts come in to your mind, just replace it with a positive one....it's...
Forum: her2group 01-09-2009, 07:07 AM
Replies: 29
Views: 3,103
Posted By koolmom
Inspiration

You are an inspiration to us all. We all will continue to put one foot in front of the other. Just like the "footprints" poem, if you get weaek and you only see one set of footprints, it will be us...
Forum: her2group 01-09-2009, 06:57 AM
Replies: 21
Views: 2,301
Posted By koolmom
Update

Okay - Saw the doctor yesterday. She still did not say 100% these were lung mets (however, the report did say suspicious for metastatic disease). They are too tiny to even be seen on a PET. She...
Forum: her2group 01-09-2009, 06:51 AM
Replies: 21
Views: 2,301
Posted By koolmom
Mary Anne Where do I get CO-Q 10?

Mary Anne
Where do I get CO-Q 10?
Forum: her2group 01-06-2009, 09:53 PM
Replies: 21
Views: 2,301
Posted By koolmom
Keep the good news coming

Couldn't wait to get home to see if I had had any encouraging messages and of course I did. Thanks you guys.
'
I have an appointment Thursday to go over results. I'll know more then. Currently...
Forum: her2group 01-06-2009, 02:14 PM
Replies: 21
Views: 2,301
Posted By koolmom
? Lung Mets

I could really use some encouragment from you girls. Just found out that I may have 2 lung mets. 1 6 mm and 1 7 mm. Want to know what you girls have been through, what you have tried and what...
Forum: Herceptin / Tykerb 11-11-2008, 02:26 PM
Replies: 9
Views: 2,181
Posted By koolmom
I only have one daughter - she is turning 18...

I only have one daughter - she is turning 18 tomorrow. My prayer was to get her through highschool (which I have almost done). My next prayer is to get her through college.

What area do you...
Forum: Herceptin / Tykerb 11-11-2008, 09:42 AM
Replies: 9
Views: 2,181
Posted By koolmom
Posting profile

D.W. I clicked on User CP, but I don't see box to post my history. I must have a dumb streak going on today!
Forum: Herceptin / Tykerb 11-11-2008, 09:39 AM
Replies: 9
Views: 2,181
Posted By koolmom
Red face Thanks

D.W. Thanks for the info. I was dx in March 2004 w/7 nodes positive. Did the AC/Taxol/Cytoxin. (Before Herceptin was released). 32 rad treatments. Next year had cervical nodes positive/took out...
Forum: Herceptin / Tykerb 11-11-2008, 07:29 AM
Replies: 9
Views: 2,181
Posted By koolmom
D.W. I'm glad to have someone to talk to about...

D.W.
I'm glad to have someone to talk to about this. I was so bummed about having to go off Tykerb/Xeloda. It was so easy! I also seem to get nauseated after my Herceptin/Navelbine. By Sunday...
Forum: Herceptin / Tykerb 11-10-2008, 10:33 AM
Replies: 9
Views: 2,181
Posted By koolmom
Question Herceptin/Navelbine

Wanted to pick your guys brains. I have been on this combination about 2 1/2 years ago and did fine. I was then on Tykerb/Xeloda, but have recently been taken off and put back on...
Forum: her2group 10-13-2008, 08:34 AM
Replies: 2
Views: 1,358
Posted By koolmom
Hilum Lymph Nodes

Just wondering...My recent PET showed increased activity on the hilum lymph node and a vascular lymph node. I had 7 positive lymph nodes initially (axillary), then 5 nodes positive cervical region. ...
Forum: Herceptin / Tykerb 10-13-2008, 08:20 AM
Replies: 2
Views: 1,474
Posted By koolmom
Cool I have been on Tykerb/Xeloda for 18 months. I...

I have been on Tykerb/Xeloda for 18 months. I always had worse diarreha when not on the Xeloda for the week. Symtpoms came and went. Some days were not bad and then some days I had pretty bad...
Forum: Herceptin / Tykerb 03-03-2008, 05:44 PM
Replies: 6
Views: 2,279
Posted By koolmom
My oncologist said if you lacked the enzyme the...

My oncologist said if you lacked the enzyme the diarrhea would be so bad you could end up in the hospital. She said you would know within a week of taking the drug. So side effects, even if think...
Forum: Herceptin / Tykerb 01-15-2008, 02:32 PM
Replies: 15
Views: 2,336
Posted By koolmom
Yeah! Great news! Horray to Tykerb/Xeloda!

Yeah! Great news! Horray to Tykerb/Xeloda!
Forum: Herceptin / Tykerb 01-15-2008, 02:29 PM
Replies: 4
Views: 1,955
Posted By koolmom
Congrats to her. Hope it works as well for me!

Congrats to her. Hope it works as well for me!
Forum: her2group 06-27-2007, 07:36 PM
Replies: 6
Views: 1,437
Posted By koolmom
Xeloda/Tykerb and Hairloss?

I posted a couple of weeks ago and thanks for the great responses regarding my scalp being very sore. Now my hair is starting to comeout. It is not as severe as with the first chemo, but it is more...
Forum: Herceptin / Tykerb 06-13-2007, 05:39 AM
Replies: 9
Views: 2,628
Posted By koolmom
Cool Thank you for response

Thanks for your responses! Glad to know I'm not the only one. I did call my oncologist and asked them regarding this. Symptoms of scalp soreness along with weird headaches, they wanted me to get...
Forum: Herceptin / Tykerb 06-11-2007, 06:33 AM
Replies: 9
Views: 2,628
Posted By koolmom
Xeloda/Tykerb Scalp Sore

Okay this is weird, may not be related to these drugs at all, but I thought i would see if anyone else was having this problem. My scalp is really really sore. It seems to be more on the top of...
Forum: Herceptin / Tykerb 05-06-2007, 07:04 PM
Replies: 27
Views: 4,649
Posted By koolmom
Question Esther, I just posted on another board but...

Esther,

I just posted on another board but I have having the same rash on my face. Have you found anything that worked yet? My cheeks are all splotchy and I have little blisters that I thought...
Forum: Herceptin / Tykerb 05-06-2007, 06:57 PM
Replies: 9
Views: 2,622
Posted By koolmom
Wink I'm new to the board, but wanted to say...

I'm new to the board, but wanted to say CONGRATTTTSSSS!!!! I feel like I have a new family.
Forum: Herceptin / Tykerb 05-06-2007, 06:53 PM
Replies: 30
Views: 5,245
Posted By koolmom
Thumbs down Okay, something else weird is happening. Of...

Okay, something else weird is happening. Of course, I attribute everything to the meds. I look like a 37 year old teenager. My face has started breaking out all over my cheeks. Just in the past 2...
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