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Search took 0.01 seconds. Search: Posts Made By: Karen t
Forum: Herceptin / Tykerb 12-12-2009, 01:18 PM
Replies: 39
Views: 15,849
Posted By Karen t
Re: herceptin + tykerb (no xeloda)

Hi Darlene - are you still on the Herceptin/Tykerb combo, and how are you doing? I looked online at Suki products and didn't realize there are so many although none is called "oil." What is the...
Forum: Herceptin / Tykerb 12-06-2009, 01:16 PM
Replies: 11
Views: 6,279
Posted By Karen t
Re: What Targeted Therapy after Herceptin and Tykerb fail?

I have been on Herceptin since July 2004 so, yes, it is safe to combine. My period of stable disease occurred after taking Artemisinin for three months - it was a big deal since it was the first time...
Forum: Herceptin / Tykerb 12-05-2009, 05:07 PM
Replies: 11
Views: 6,279
Posted By Karen t
Re: What Targeted Therapy after Herceptin and Tykerb fail?

Have you considered Artemisinin? I did the protocol for three months and experienced stable disease for the first time in over four years; after nine months, I am experiencing progression and am...
Forum: her2group 07-09-2007, 06:36 PM
Replies: 40
Views: 7,564
Posted By Karen t
Estring

Not sure if this could work for you since you are hormone positive, but a friend of mine who is also HRPR+ (and also either BRCA 1 or 2) was given a prescription for Estring and has been using it for...
Forum: Herceptin / Tykerb 04-17-2007, 05:54 PM
Replies: 182
Views: 27,578
Posted By Karen t
Red face Hello Skye, I have been on Herceptin for...

Hello Skye,

I have been on Herceptin for nearly three years and have lots of annoying symptoms but perhaps not the ones you mentioned. More things like runny and crusty nose, splitting nails, some...
Forum: Herceptin / Tykerb 04-17-2007, 05:54 PM
Replies: 689
Views: 292,232
Posted By Karen t
Red face Hello Skye, I have been on Herceptin for...

Hello Skye,

I have been on Herceptin for nearly three years and have lots of annoying symptoms but perhaps not the ones you mentioned. More things like runny and crusty nose, splitting nails, some...
Forum: her2group 04-02-2007, 09:05 PM
Replies: 6
Views: 1,266
Posted By Karen t
Cool Xeloda, Herceptin & Diarrhea!

Several comments here! First of all, I am on Herceptin and 2500mg Xeloda (down from 3000 which was too hard for my system). Also:

1. Herceptin causes diarrhea for me right after the infusion. I...
Forum: her2group 03-29-2007, 10:09 PM
Replies: 32
Views: 3,359
Posted By Karen t
Esther, you are in my prayers. Karen

Esther, you are in my prayers. Karen
Forum: her2group 02-18-2007, 09:48 AM
Replies: 70
Views: 7,675
Posted By Karen t
Dear Tom, I am so sorry for your loss. And,...

Dear Tom,

I am so sorry for your loss. And, even in the midst of your sorrow, you thought about others – reassuring us that the "Beast' was not the cause of your loss. I look forward to hearing...
Forum: her2group 12-21-2006, 11:59 PM
Replies: 6
Views: 1,606
Posted By Karen t
I am on Herceptin and Xeloda - started one month...

I am on Herceptin and Xeloda - started one month ago: weekly H and two weeks on, one week off for the X. In Spring of 2002 had four rounds of AC. After the metastasis in July 2004, started on...
Forum: her2group 12-19-2006, 09:09 PM
Replies: 18
Views: 3,050
Posted By Karen t
Avastin

Thank you Becky. Am looking forward to learning more about Avastin possibilities.
Forum: her2group 12-18-2006, 05:57 PM
Replies: 14
Views: 1,353
Posted By Karen t
Prayer

It's three minutes to eight (five in California). Will do!
Forum: her2group 12-11-2006, 09:30 PM
Replies: 30
Views: 2,812
Posted By Karen t
Bud, I went back and read all of Patty's posts....

Bud, I went back and read all of Patty's posts. What a journey for her - and for you. Both of you will be in my continuous prayers. Karen
Forum: her2group 10-16-2006, 08:59 PM
Replies: 3
Views: 1,367
Posted By Karen t
Resistance to Navelbine

Have there been some previous posts about stopping a particular chemo, e.g. Navelbine, when it loses effectiveness and then resuming it successfully after a certain time has elapsed? If so, please...
Forum: her2group 10-16-2006, 08:51 PM
Replies: 18
Views: 2,634
Posted By Karen t
Dear Kelly, Based on nearly five years of...

Dear Kelly,

Based on nearly five years of experience, it seems to me that staying positive - especially when one doesn't feel well - is just too great an expectation. This is not to say that it's...
Forum: her2group 10-16-2006, 08:22 PM
Replies: 45
Views: 4,501
Posted By Karen t
Dear Maryann, Dogs kids ceiling fans and...

Dear Maryann,

Dogs kids ceiling fans and your online friends all await your good news and safe return home. Love and prayers to you.

Karen t
Forum: her2group 10-01-2006, 04:51 PM
Replies: 27
Views: 3,615
Posted By Karen t
CT vs MRI

I had mets to the lungs and on the sternum. Followed up with Navelbine and radiation. Am on wkly Herceptin.

My question is, when should the diagnostic tool be a CT vs an MRI? I told my onc I...
Forum: her2group 10-01-2006, 04:28 PM
Replies: 15
Views: 2,525
Posted By Karen t
Smile To Joe & Christine

Although it may seem that we sometimes take for granted everything that you do, nothing could be further from the truth. Some days I feel like my survival is tied to this site so a big THANK YOU for...
Forum: her2group 10-01-2006, 04:19 PM
Replies: 7
Views: 1,415
Posted By Karen t
I wear a sleeve (Jobst brand available in stores...

I wear a sleeve (Jobst brand available in stores or online) whenever I travel by air, go to higher altitudes (mountains), while exercising or doing repetitive types of housework or yardwork. I also...
Forum: her2group 09-18-2006, 09:56 PM
Replies: 11
Views: 2,208
Posted By Karen t
Unhappy I ordered the Super Curcumin from LifeExtension...

I ordered the Super Curcumin from LifeExtension and when I received it the warning on the bottle says: Do not take with anticancer drugs. Since I'm on Herceptin and Navelbine, I didn't know what to...
Forum: her2group 09-02-2006, 11:34 PM
Replies: 29
Views: 3,086
Posted By Karen t
Dear Michele, A happy belated 20th...

Dear Michele,

A happy belated 20th anniversary to you. You are not alone - we care about you.

Not sure if this is an option but I asked the oncology social worker at the hospital to help me...
Forum: her2group 08-14-2006, 04:34 PM
Replies: 2
Views: 2,995
Posted By Karen t
Virxcan or Essiac

Does anyone have information on these alternative-type treatments for tumors? I was told that virxcan tablets will dissolve tumors and can be used in conjunction with chemo. When I googled virxcan,...
Forum: her2group 08-05-2006, 10:10 PM
Replies: 5
Views: 1,257
Posted By Karen t
Hi Kathy A, I was on weekly Herceptin and...

Hi Kathy A,

I was on weekly Herceptin and Navelbine for 6 mos, took a break, and have been back on weekly H & N now continuously for a year. The only time I notice any pain, e.g. in the area of...
Forum: her2group 07-31-2006, 01:14 PM
Replies: 13
Views: 2,694
Posted By Karen t
Alcohol consumption

My understanding is that alcohol is not recommended for those of us with metastases - not sure why. Does anyone have more definitive information? Meanwhile, I am including an article in today's LA...
Forum: her2group 07-28-2006, 05:21 PM
Replies: 53
Views: 8,278
Posted By Karen t
I was 55 when diagnosed in 2002. During weekly...

I was 55 when diagnosed in 2002. During weekly infusion a couple weeks ago, I met a woman who is her2+ (don't see very many of us) who said she felt a lump two months after a clear mammogram. Turns...
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