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Search: Posts Made By: Joan S.
Forum: her2group 08-07-2011, 08:46 AM
Replies: 389
Views: 127,207
Posted By Joan S.
Re: Calling all stage iv sisters

Diagnosed April 2007 initially with Stage 4. It's been a battle but I have seen my daughter get married and have my first Grandchild! I am living a very full and happy life!
Forum: her2group 08-07-2011, 08:40 AM
Replies: 16
Views: 2,344
Posted By Joan S.
Re: Surgery for Stage IV at DX?

Dear Amy,
Everyone has a different experience. I was also diagnosed initially with Stage 4 in April '07. I had 6 1/2 months of taxol, herceptin and zometa. I responded so well that my onc...
Forum: her2group 07-31-2011, 04:57 PM
Replies: 1
Views: 1,572
Posted By Joan S.
Hyperthermic Radiation

I have had a recurrence to the chest wall. The tumors are in the skin. I am stable every place else. I have to be very thankful for that. It was recommended that I do hypothermic radiation. It...
Forum: Herceptin / Tykerb 02-05-2011, 06:59 AM
Replies: 39
Views: 13,908
Posted By Joan S.
Re: herceptin + tykerb (no xeloda)

I have been on Tykerb since December 2010. No xeloda. I have also been on herceptin since July 2007. So far so good with Tykerb. I take 5 pills a day. It has reduced the tumor on my chest wall...
Forum: her2group 09-26-2009, 03:16 AM
Replies: 56
Views: 4,482
Posted By Joan S.
Re: Surviving & Thriving Re: HER2 positive and 10 years out?

Dear jessica,
I saw your Emory U. video. It was very inspiring. Thank you! I noticed that you say you take chemo but it looked like they were pills. Would you mind telling me what it is. I just...
Forum: her2group 07-05-2009, 08:30 AM
Replies: 9
Views: 1,546
Posted By Joan S.
Smile Need to make a decision!

Thank you for your quick response. Yes, I have had several opinions. I have had opinions from three different oncologists and two surgeons and various physicians. The oncs say lumpectomy, the...
Forum: her2group 07-05-2009, 06:48 AM
Replies: 9
Views: 1,546
Posted By Joan S.
Exclamation Need to Make a Decision Quickly!

With all the experience of you ladies out there, I thought you could give me some advice....I was diagnosed with stage 4 Her2 +++, er+. I had 7 months of herceptin, zometa and taxol(no surgery). ...
Forum: her2group 09-05-2008, 07:53 AM
Replies: 15
Views: 1,449
Posted By Joan S.
Herceptin Side Effects

I have been on Herceptin for over a year now and the main side effect for me is fatigue. I find that exercise really helps to give me energy(and it's good for us) and I try to pace myself. By about...
Forum: her2group 05-15-2008, 06:12 AM
Replies: 17
Views: 1,931
Posted By Joan S.
Surgery for Stage IV Breast Cancer

Dear "Unregistered"
Thank you so much for your very thorough response. It was extremely helpful.
I found it interesting that you, like me, had widespread metastatic breast cancer and they still...
Forum: her2group 05-06-2008, 10:07 AM
Replies: 17
Views: 1,931
Posted By Joan S.
Surgery for Stage IV?

Oops! It would have been helpful for me to mention that they suggested a mastectomy. If I had a mastectomy I would hope I would be a good candidate for reconstruction as well.
Forum: her2group 05-06-2008, 09:14 AM
Replies: 17
Views: 1,931
Posted By Joan S.
Surgery for Stage IV?

Ladies,
I need your advice. I was diagnosed with stage IV a little over a year ago. I was on Herceptin and taxol for about 7 1/2 months. After a very good outcome and some severe neuropathy, I...
Forum: her2group 03-22-2008, 07:02 AM
Replies: 23
Views: 1,922
Posted By Joan S.
Did the survey. Well thopught out survey! Happy...

Did the survey. Well thopught out survey! Happy to do anything that promotes study of breast cancer and can shed new light on our plight!
Forum: her2group 03-09-2008, 12:54 PM
Replies: 16
Views: 2,698
Posted By Joan S.
I sure hope it's not over once you get liver...

I sure hope it's not over once you get liver mets! I have liver mets, a bone met and one on the rib. I was diagnosed 7 months after a "supposedly" clear mammogram and a month before my daughter's...
Forum: her2group 11-05-2007, 05:45 AM
Replies: 12
Views: 1,339
Posted By Joan S.
Question Neulasta

Hi! You guys are a wealth of information.
My white blood cell count has been hovering around 2.9-3.1 lately. I was reading an article about Dana Farve(Green Bay Packer's wife) who survived...
Forum: her2group 10-19-2007, 07:34 PM
Replies: 1
Views: 752
Posted By Joan S.
Good Article

Dear Robin,
I found this article recently as well. I sent it to as many of my friends as I could. Hopefully, it will save someone. Boy, do I wish I had had this article 3 years ago when they found...
Forum: Herceptin / Tykerb 10-15-2007, 05:36 PM
Replies: 19
Views: 6,042
Posted By Joan S.
I am on herceptin/taxol every week for three...

I am on herceptin/taxol every week for three weeks and then one week off. I have been on this regime since July and if my body holds up I will be on it for three to four more months. So far the...
Forum: Herceptin / Tykerb 09-15-2007, 07:32 AM
Replies: 689
Views: 226,348
Posted By Joan S.
I am on Herceptin and Taxol so I am not sure what...

I am on Herceptin and Taxol so I am not sure what is causing what but it was very interesting to hear about the nosebleeds. That is definitely one side affect that I am having. I was off for two...
Forum: Herceptin / Tykerb 09-15-2007, 07:13 AM
Replies: 19
Views: 6,042
Posted By Joan S.
Hmmmm! I am learning a lot from you guys. I am...

Hmmmm! I am learning a lot from you guys. I am fairly new to this board. I just finished my eighth treatment of Herceptin and Taxol. My doctor has not recommended having a MUGA done. Is this...
Forum: her2group 09-15-2007, 06:47 AM
Replies: 10
Views: 1,518
Posted By Joan S.
Happy New Year!

L'Shanah Tov,
May this be a year of renewed strength and GOOD HEALTH for all of us! May good hear our prayers and keep our loved ones happy and in good health.
Joan
Forum: her2group 09-11-2007, 06:49 PM
Replies: 18
Views: 1,981
Posted By Joan S.
Taxol and Hair Loss

I am going into my third round of taxol and herceptin. Before I started chemo, I got a "short" haircut. After three weeks my hair was all over the place. I went back to my hairdresser to get an...
Forum: her2group 09-11-2007, 06:32 PM
Replies: 5
Views: 1,393
Posted By Joan S.
Headaches

I am fairly new to this site and I am amazed how much I am learning from all of you! I am so encouraged by all of your strength! I am entering my third round of taxol and herceptin. For the past...
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