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Search: Posts Made By: astrid
Forum: her2group 04-01-2008, 12:34 PM
Replies: 0
Views: 849
Posted By astrid
Tamoxifen and regular menstrual cycle

I am ER+ PR + and HER2+.
I was diagnosed in Dec 2005. I completed Herceptin in June of 2007.
I started Tamoxifen in June of 2006. I am pre menopausal.
I started regular periods in January of...
Forum: Herceptin / Tykerb 07-17-2007, 11:31 AM
Replies: 689
Views: 291,499
Posted By astrid
Flushed Tamoxifen down the toilet

Andi, I see you said Flushed Tamoxifen down the toilet. Do you think it hurt you more than helped you?? I have spoken to my ONC about my tamoxifen concerns, but she feels it is the standard of care...
Forum: Herceptin / Tykerb 07-17-2007, 10:49 AM
Replies: 689
Views: 291,499
Posted By astrid
Eye lashes falling out again

I completed one year of Hercpetin on May 22, 2007, almost two months ago and today I noticed my eyelashes are falling out again and I still have to keep my finger nails super short because they split.
Forum: Herceptin / Tykerb 07-16-2007, 05:26 AM
Replies: 689
Views: 291,499
Posted By astrid
Year over

I finished my year of herceptin in May of 2007. I had quite a few side effects that were not listed in the printed material for the drug. My blood pressure rose from 130 over 70 to 155 over 85. It...
Forum: her2group 03-28-2007, 09:10 AM
Replies: 10
Views: 1,418
Posted By astrid
I did not know you could get a small port. I...

I did not know you could get a small port. I have a non heparin port on my left side that is noticeable only when I wear a bathing suit, but I do not care. Funny, when we went to Moorea last year a...
Forum: her2group 03-26-2007, 09:54 AM
Replies: 5
Views: 1,135
Posted By astrid
Calcium citrate is better absorbed than calcium...

Calcium citrate is better absorbed than calcium carbonate by approximately 22% to 27%, either on an empty stomach or co-administered with meals. <?xml:namespace prefix = o ns =...
Forum: her2group 03-26-2007, 09:43 AM
Replies: 7
Views: 1,363
Posted By astrid
When estrogen levels fall, bone density...

When estrogen levels fall, bone density (strength) starts to decline, and, over time, a woman can develop osteoporosis and even fractures. Several alternatives to HRT can help keep bones strong and...
Forum: her2group 03-26-2007, 09:42 AM
Replies: 7
Views: 1,363
Posted By astrid
I just started taking Fosamax with no side...

I just started taking Fosamax with no side effects. I am 49 years old. Fosamax is different from calcium. Osteoporosis actually causes your bones to thin and the density to weaken, creating holes in...
Forum: her2group 03-04-2007, 10:27 AM
Replies: 32
Views: 4,101
Posted By astrid
IHC 2+ ; FISH 3.4; getting Herceptin every three...

IHC 2+ ; FISH 3.4; getting Herceptin every three weeks for a year June 06 to June 07
Forum: her2group 03-01-2007, 07:19 AM
Replies: 11
Views: 1,483
Posted By astrid
Try powered L glutamine for the neuropathy

Try powered L glutamine for the neuropathy
Forum: her2group 03-01-2007, 06:36 AM
Replies: 8
Views: 1,481
Posted By astrid
How did you all know that you had lung mets??

How did you all know that you had lung mets??
Forum: her2group 03-01-2007, 06:34 AM
Replies: 19
Views: 2,625
Posted By astrid
I had a lumpectomy, mainly because my sister had...

I had a lumpectomy, mainly because my sister had a mastectomy and it did not save her. The survival rate does not improve with a mastectomy. She was 40 years old were she died 11 years ago. She...
Forum: her2group 03-01-2007, 06:27 AM
Replies: 11
Views: 1,483
Posted By astrid
My ONC said anything over 1.5CM should have...

My ONC said anything over 1.5CM should have chemo. You are young, but your tumor is small. I did a lot of reading because even though my tumor was 1.8 CM, I wanted to ensure that chemo really...
Forum: her2group 03-01-2007, 06:09 AM
Replies: 27
Views: 4,834
Posted By astrid
Fevers etc.

I had not been having a bad time until my December treatment. I have been on Herceptin since June of 2006. In December, I started to feel really bad about 2 hours after the treatment and then I had...
Forum: her2group 11-26-2006, 06:45 AM
Replies: 18
Views: 2,030
Posted By astrid
Oh, I am glad this has come back up again. I am...

Oh, I am glad this has come back up again. I am losing my eyelashes for the THIRD time. I lost them in March right after I completed chemo. Then I lost them in August, two months after herceptin...
Forum: her2group 11-26-2006, 06:39 AM
Replies: 10
Views: 1,608
Posted By astrid
I also have pain around my lumpectomy site. I...

I also have pain around my lumpectomy site. I will be one year on December 7<SUP>th</SUP> and I thought it was weird that I still have so much scar tissue and tenderness. Hard to tell if you have...
Forum: her2group 11-24-2006, 07:22 AM
Replies: 14
Views: 1,507
Posted By astrid
The first time they ALWAYS deliver it slowly. ...

The first time they ALWAYS deliver it slowly. The usual is 90 minutes. The reason for this is that it is very hard on your heart, so they are looking for an adverse or an allergic reaction. I did...
Forum: her2group 11-21-2006, 09:35 AM
Replies: 10
Views: 1,684
Posted By astrid
As you are node negative you may want to consider...

As you are node negative you may want to consider the clinical study CALGB 40101

www.cancer.gov/clinicaltrials/view_clinicaltrials.aspx?version=healthprofessional&cdrid=69444...
Forum: her2group 11-18-2006, 08:08 AM
Replies: 11
Views: 1,483
Posted By astrid
SOFT trial

arimidex.com (http://www.arimidex.com/arimidex/reduce-risk-cancer.asp)

femara.com

Aromasin.com

Armidex is Anastrozole

Femeara is Letrozole
Forum: her2group 11-14-2006, 03:39 PM
Replies: 7
Views: 1,484
Posted By astrid
I had my estrogen level re run and it was 155. My...

I had my estrogen level re run and it was 155. My ONC blames a bad lab test for the 955. 155 is still kinda high as I’m 48 years old and on tamoxifen. I have not had a real menstrual cycle since...
Forum: Clinical Trials 11-14-2006, 03:33 PM
Replies: 7
Views: 3,243
Posted By astrid
I had my estrogen levels rechecked last week and...

I had my estrogen levels rechecked last week and on Tuesday I was randomized in the SOFT trial for hormone therapy. The SOFT trial is Suppression of Ovarian Function Trial (SOFT). The SOFT trial has...
Forum: her2group 11-10-2006, 05:59 AM
Replies: 15
Views: 2,692
Posted By astrid
I think the necessity for blood work really...

I think the necessity for blood work really depends on the patient and how well they are doing. If blood count is an issue, they will draw it. If you want blood work for your own information ask...
Forum: her2group 11-08-2006, 01:59 PM
Replies: 37
Views: 4,173
Posted By astrid
Well, I had my second MUGA yesterday and my left...

Well, I had my second MUGA yesterday and my left ventricle ejection is 65%. That is actually an improvement over my last MUGA in December of 2005. My blood pressure was also lower than my last...
Forum: her2group 11-07-2006, 05:11 AM
Replies: 37
Views: 4,173
Posted By astrid
Genentech Contact information

I went to:

www.gene.com/gene/medcom/index.jsp (http://www.gene.com/gene/medcom/index.jsp)
Forum: her2group 11-06-2006, 01:56 PM
Replies: 37
Views: 4,173
Posted By astrid
I was able to find contact information for...

I was able to find contact information for Genentech on the web and I emailed them and they called me already and opened a file. They did say that Herceptin is not FDA approved for early stage...
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