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Search: Posts Made By: bjj
Forum: her2group 10-23-2006, 05:37 AM
Replies: 3
Views: 985
Posted By bjj
Hi Vicky I'm not on Herceptin and haven't...

Hi Vicky

I'm not on Herceptin and haven't had chemo (Just lumpectomy and rads). I am on tamoxifen though and this has caused me to have really itchy skin. I scratch myself red raw sometimes. I...
Forum: her2group 10-16-2006, 03:20 AM
Replies: 2
Views: 1,146
Posted By bjj
Hi Betty I have been on tamoxifen for 18...

Hi Betty

I have been on tamoxifen for 18 months and suffer from nausea. For a lot of people it settles down after the first few months - you will probably find that it does.

I have found...
Forum: her2group 06-28-2006, 04:43 AM
Replies: 5
Views: 1,116
Posted By bjj
Similarly to Steph I just have to say how pleased...

Similarly to Steph I just have to say how pleased I am that hear that Linda's daughter is back home.

Love

bjj
Forum: her2group 06-25-2006, 04:49 PM
Replies: 39
Views: 3,766
Posted By bjj
Hi Al Factor V Leiden blood is blood that...

Hi Al

Factor V Leiden blood is blood that is more likely to clot - it wasn't know about a few years ago. The following link might help you.

http://www.fvleiden.org/

It might be worth...
Forum: her2group 06-24-2006, 02:09 AM
Replies: 39
Views: 3,766
Posted By bjj
Al I am so sorry to hear about your recent...

Al

I am so sorry to hear about your recent problems - my heart goes out to you.

It might not be relevant but I thought I would mention it anyway. There is a history of clotting in my family...
Forum: her2group 05-14-2006, 02:27 AM
Replies: 6
Views: 1,055
Posted By bjj
Me too. I don't tend to post that much -...

Me too.

I don't tend to post that much - but I lurk around a lot.

It is so very good to see you posting Al. I will be thinking of you and your family especially at the moment.
Forum: her2group 05-10-2006, 12:50 AM
Replies: 27
Views: 3,165
Posted By bjj
I was diagnosed Jan 2005, Grade 2, node negative,...

I was diagnosed Jan 2005, Grade 2, node negative, 16-18mm tumour, ER+. I was advised rads only. Diagnosed before HERA trial results. Had 2 HER2 tests by different hospitals - one negative and one...
Forum: her2group 05-04-2006, 02:41 AM
Replies: 2
Views: 1,214
Posted By bjj
Tumour both positive and negative

Has anyone else had this?

I had one negative result from the hospital I had radiotherapy from and a positive result from my local hospital. IHC3+ from local hospital and IHC1+ and FISH negative...
Forum: her2group 04-28-2006, 12:42 AM
Replies: 107
Views: 11,791
Posted By bjj
Al I am so very sorry to hear about Linda. ...

Al

I am so very sorry to hear about Linda. How kind of you to come and tell us all and to still be able to find it in you at this sad time to offer your advice for anyone considering to spend...
Forum: her2group 04-27-2006, 03:39 AM
Replies: 53
Views: 4,740
Posted By bjj
Thinking of you

Al

I am not good with words but I just wanted to say that I am thinking of you and Linda very much.

Love

bjj xx
Forum: her2group 04-19-2006, 01:59 AM
Replies: 9
Views: 2,494
Posted By bjj
Tamoxifen

Are you on Tamoxifen?

I have had this problem - my oncs say that it is "middle-aged spread" due to tamoxifen.

Nobody warned me about this and I used to suffer from anorexia I have found it...
Forum: her2group 04-15-2006, 03:32 AM
Replies: 7
Views: 1,347
Posted By bjj
You sound like me! I have awful problems not...

You sound like me! I have awful problems not only asking for help but just accepting it when it is offered. A diagnosis of BC hasn't changed that - I still find it hard. My partner says that I am...
Forum: her2group 04-15-2006, 03:24 AM
Replies: 47
Views: 4,068
Posted By bjj
I just wanted to say I am thinking of you both. ...

I just wanted to say I am thinking of you both.

Best wishes to you.

Bjj
Forum: her2group 04-03-2006, 06:13 AM
Replies: 10
Views: 3,410
Posted By bjj
Thanks

Thanks everyone for your postings - I really do appreciate your help and support.

I think I need to get an appointment with my oncologist to get checked out. Fingers firmly crossed that I am ok...
Forum: her2group 04-02-2006, 08:14 AM
Replies: 10
Views: 3,410
Posted By bjj
Swollen Neck lymph nodes

Hi

I have two HER2+ results - one negative and one positive. I am assuming I am HER2 positive.

January 2005 I had 16-18mm breast cancer lump removed. It was Grade 2, ER+, axillary nodes were...
Forum: her2group 01-18-2006, 05:51 AM
Replies: 1
Views: 817
Posted By bjj
Thalidomide

Hi

I'm in the UK. I know someone - a lady in her 70s who is on Thalidomide. She has myeloma (I think it is a blood/bone cancer). She has been on chemotherapy - tablet form - at home and has...
Forum: her2group 12-30-2005, 04:57 PM
Replies: 1
Views: 1,191
Posted By bjj
Breast cancer survivors

This has been posted on the British Breast Cancer Care site and has caused some debate!

http://www.eurekalert.org/pub_releases/2005-12/wuso-rer122105.php
Forum: her2group 12-19-2005, 10:44 AM
Replies: 2
Views: 1,351
Posted By bjj
Different results clarified

Quick recap - I had an HER2 test done in Feb by the Royal Marsden Hospital, London. It was negative, I was unaware of it at the time. I pressed my local oncologist to do a test in October which she...
Forum: her2group 12-05-2005, 01:49 AM
Replies: 2
Views: 1,156
Posted By bjj
Thanks

Thanks for such an informative reply. I really appreciate you spending the time to get back to me.

Thanks

bjj
Forum: her2group 12-04-2005, 05:00 AM
Replies: 2
Views: 1,156
Posted By bjj
Oncs - mortality rate not recurrence rate

Hi

I saw two different oncs last week regarding my differing HER2 results (one definitely positive and one definitely negative). I am working on the assumption that I am positive (whilst they...
Forum: her2group 12-04-2005, 04:47 AM
Replies: 29
Views: 3,350
Posted By bjj
Hi Robyn

Just wanted to say that I know how you feel.

I am in the UK. I had WLE in January, tumour 1.6 cm, ER+, clear lymph nodes, and have recently found out that I am probably HER2+++ (still waiting...
Forum: her2group 12-04-2005, 04:29 AM
Replies: 18
Views: 2,906
Posted By bjj
Pesticides

I'm in the UK so name of the stuff might be different.

My Mum used to hang up Vapona air strips in the kitchen to keep the flies out (I lived on a farm). The instructions said not to use them...
Forum: her2group 11-30-2005, 08:47 AM
Replies: 1
Views: 817
Posted By bjj
Thanks

Thanks Joe

I'm in the UK and my oncologist told me on the phone last night that she is going to the conference. She is hoping to pick up info on benefits (or lack of) of tamoxifen on HER2...
Forum: her2group 11-26-2005, 04:05 AM
Replies: 9
Views: 2,082
Posted By bjj
Second opinion

I saw a consultant at the Royal Marsden, London yesterday - a leading cancer hospital in the UK.

She was very very good and took a lot of trouble to explain things clearly to me. She said that...
Forum: her2group 11-25-2005, 03:38 AM
Replies: 9
Views: 2,082
Posted By bjj
Thanks

Thanks to you all for your responses.

Karen - I am seeing this afternoon the consultant I was under for my radiotherapy - she knows that I have two different test results for HER2 but recognised...
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