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Search: Posts Made By: KaiM
Forum: her2group 04-13-2019, 04:22 PM
Replies: 12
Views: 1,329
Posted By KaiM
Re: Will be 8yrs NED from Stage IV in April

Congrats Kim!! I will be joining the 8 year club with you this year! Diagnosed stage 4 de novo in 2011 with a three month old and Mets to my liver, lungs and throughout my bones I am on vitamin H and...
Forum: her2group 03-19-2019, 11:24 PM
Replies: 16
Views: 10,734
Posted By KaiM
Re: Anyone Stage IV De Novo With 10+ Years NED?

Diagnosed Stage 4 de novo in 2011 with a 3 month old baby. After surgery and a course of TCH, I have been stable on a cocktail of Herceptin and Tykerb since, almost 8 years! So much has changed since...
Forum: her2group 03-19-2019, 11:12 PM
Replies: 3
Views: 729
Posted By KaiM
Re: herceptin injection approved!!!!

I have been following the approval of this new Vit H shot and I am wondering if anyone knows how they cater the volume of drug in the injection to your body weight?
Forum: her2group 03-06-2017, 10:45 PM
Replies: 40
Views: 13,474
Posted By KaiM
Re: 15 years stage IV - no drugs in 8yrs - still NED

Steph, what wonderful news! I do not visit this site as often as I did the first couple years after my diagnosis. Your story has always stuck with me and given me hope. Please never stop sharing your...
Forum: her2group 03-08-2016, 09:05 PM
Replies: 17
Views: 5,149
Posted By KaiM
Re: discovering why some Stage IVs are exceptional responders to herceptin/lapatinib(

I am not sure if I qualify as a long term responder yet, but I sure do plan on getting there. I believe the reason I have been stable/NED since I finished my initial chemo and switched to Herceptin...
Forum: her2group 02-13-2016, 11:27 AM
Replies: 389
Views: 122,829
Posted By KaiM
Re: Calling all stage iv sisters

I haven't posted here in a long time, but wanted to check in to give hope where I can. I need to update my signature, as my latest scan (Jan) still shows all is stable for me. I have been on...
Forum: her2group 01-19-2015, 09:06 PM
Replies: 16
Views: 2,059
Posted By KaiM
Re: How many of us are taking some kind of medication for depression?

I was having such bad anxiety attacks after diagnosis I would hardly sleep, and then after several rounds of chemo was experiencing intense hot flashes a dozen times a day. My doc put me on Paxil to...
Forum: her2group 12-23-2014, 09:29 PM
Replies: 19
Views: 2,103
Posted By KaiM
Re: More Good Results on Perjeta

Yay! That sure is the best gift! May NED be just around the corner for you in 2015 :)
Forum: her2group 12-12-2014, 08:42 PM
Replies: 14
Views: 2,654
Posted By KaiM
Re: Alcohol

I'm in the same boat as Amy, stage 4 from the get go, not worried about reaccurance. I have never been a big drinker, but I do enjoy a drink here and there. I stopped completely when I was first...
Forum: her2group 12-12-2014, 08:32 PM
Replies: 19
Views: 2,188
Posted By KaiM
Re: Six Year Anniversary

What a beautiful post! Congrats Alice! And many many more to come!
Forum: her2group 12-12-2014, 08:24 PM
Replies: 6
Views: 1,599
Posted By KaiM
Re: Reconstruction Re-do?

I agree with everyone, it is you who have to live with and in your body for the rest of your life, so it is very important you discuss your feeling with your PS. It is not vain, especially if it is...
Forum: her2group 12-12-2014, 08:12 PM
Replies: 15
Views: 1,893
Posted By KaiM
Re: Sheila gone 2 years but never forgotten..

I miss Sheila, her warmth and intelligence remain with me.
Forum: her2group 12-12-2014, 08:09 PM
Replies: 6
Views: 3,767
Posted By KaiM
Re: Simple cheap drugs already approved vs. osteoporosis may prevent, reverse her2+br

Very interesting! I have been on biophosphates (zoo meta and Xgeva) since my initial diagnosis three years ago and as Gumby said 'all is good'!
Forum: her2group 12-10-2014, 10:04 AM
Replies: 2
Views: 1,308
Posted By KaiM
Emotional Rollercoaster

The last week was quite a ride for me. I had my routine 3 month scan on Monday, and then on the way home stopped for some lunch. As I was leaving I heard my name and turned around to see a mom from...
Forum: her2group 12-08-2014, 10:38 AM
Replies: 38
Views: 6,205
Posted By KaiM
Forum: her2group 12-01-2014, 05:13 PM
Replies: 49
Views: 6,831
Posted By KaiM
Re: Prayers for Kristin Schwick

My heart is breaking at this news. I shared a bond with Kristin, being a mom with young ones and a stage IV diagnoses from the gate. I pray for peace and strength for her family.
Forum: her2group 11-08-2014, 07:18 PM
Replies: 7
Views: 1,312
Posted By KaiM
Re: Arizona Voters " Overwhelmingly " pass Right To Try

A big thank you for sharing this wonderful news and for all you do for our community.
Forum: her2group 11-08-2014, 07:14 PM
Replies: 389
Views: 122,829
Posted By KaiM
Re: Calling all stage iv sisters

Just checking in and hopefully giving hope to new members. I just passed my 3 year mark since being initially diagnosed stage IV. I am living a full life and raising my kiddos. I wasn't even sure my...
Forum: her2group 11-08-2014, 07:04 PM
Replies: 49
Views: 6,831
Posted By KaiM
Re: Prayers for Kristin Schwick

Kristin, I am holding you and your family in my heart. Sending prayers for strength and comfort.
Forum: her2group 05-26-2014, 07:54 PM
Replies: 41
Views: 6,034
Posted By KaiM
Re: Ten Years Stage 4 and still A-OK

Yay Kim! Your story gives me a bucket of hope, thank you! And Happiest of Birthdays!
Forum: her2group 03-23-2014, 09:33 PM
Replies: 7
Views: 1,391
Posted By KaiM
Re: Chronic pain- who's got it?

No Evidence of Dead! That's my new definition of NED, thanks Kristin! ((Hugs))
Forum: her2group 03-23-2014, 09:30 PM
Replies: 3
Views: 1,037
Posted By KaiM
Re: The Support of Friends in the Battle

Amazing display of friendship!
Forum: her2group 03-23-2014, 09:29 PM
Replies: 2
Views: 885
Posted By KaiM
Re: Safe zometa interval for bone metastases

I have always gotten my bone strengthening meds at six week intervals too. I started two years ago on zoo meta and just recently switched to Xgeva only because it is given as an injection and cuts...
Forum: her2group 03-19-2014, 07:59 PM
Replies: 7
Views: 1,391
Posted By KaiM
Re: Chronic pain- who's got it?

Kristin, I have bone mets to my spine, pelvis and sternum. I totally understand the pain, and have used different over the counter and prescrip meds to deal with the pain. The weird thing now is that...
Forum: her2group 02-27-2014, 08:40 PM
Replies: 9
Views: 4,963
Posted By KaiM
Smile Re: Metastatic Breast Cancer to 5+ Yrs. NED--Question

Having metastatic disease from the get go, I find this a very interesting thread. After my initial surgeries and 6 or so months of chemo, I have remained stable on Herceptin, Tykerb and Xgeva for two...
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