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Search: Posts Made By: forher
Forum: her2group 01-24-2016, 06:56 AM
Replies: 10
Views: 4,426
Posted By forher
Re: 2016 UPDATED SUPPLEMENT LIST must read

Andi, thank you for sharing and caring. I am going to print this out and compare it to my cabinet of supplements. In the past year, I have added multiple supplements to my diet. They are so hard to...
Forum: her2group 01-22-2016, 08:10 PM
Replies: 19
Views: 5,727
Posted By forher
Re: Do you take Metformin?

Also metformin can cause diarrhea and it can be compounded if you take other chemo that causes diarrhea. And sometimes I only take one tab. I've done some experimenting to check my glucose without...
Forum: her2group 01-22-2016, 08:00 PM
Replies: 19
Views: 5,727
Posted By forher
Re: Do you take Metformin?

I take metformin. Had no problem getting a prescription from my onc. She even asked me what dose I wanted, maybe she was testing me to see if I had done my homework. But I asked for 500mg tabs. I...
Forum: her2group 01-21-2016, 09:28 PM
Replies: 19
Views: 5,985
Posted By forher
Re: Cancer as a Metabolic Disease, are we treating cancer incorreclty?

Hi waterdreamer,
Thanks for sharing! I'm always looking for a good read!

I just started reading the lucky years.
Sorry the link is not live. I'm typing from my phone....
Forum: her2group 01-07-2016, 12:45 PM
Replies: 35
Views: 19,335
Posted By forher
Re: Working thread - what do you think the HER2+ standard of care should be really?

I haven't had a chance to read everyone's posts. But I wanted to resonate a few points probably already suggested and more:
1. connections to a integrative or nutritionist
2. brain scans at dx (I...
Forum: Articles of Interest 01-05-2016, 07:53 PM
Replies: 13
Views: 25,939
Posted By forher
Re: Fasting to enhance chemo

I agree about the weight loss, I am doing a calorie-reduced ketogenic diet. Thanks for sharing. I find that I can only do intermittent fasting, about 24-28 hours at most. Then I have to eat something...
Forum: her2group 01-05-2016, 07:46 PM
Replies: 14
Views: 5,763
Posted By forher
Re: PSA: Get your brain scanned

Annette, I am so glad you got the brain scan. Sorry to hear of the brain mets. I have 11 lesions. I have not done WBRT. I have done SRS.
In fact one woman had 19 of her lesions all zapped with SRS...
Forum: Articles of Interest 01-05-2016, 12:40 PM
Replies: 13
Views: 25,939
Posted By forher
Re: Fasting to enhance chemo

Anyone fasting during brain rads?
Forum: her2group 01-05-2016, 12:33 PM
Replies: 14
Views: 5,763
Posted By forher
Re: PSA: Get your brain scanned

Agreed.
My onc did a baseline brain MRI when I was dx'd in June 2013. I guess not everyone gets one. It was clear.
Then headaches prompted a second MRI 15 months later, only a month after I...
Forum: her2group 01-05-2016, 12:29 PM
Replies: 48
Views: 32,240
Posted By forher
Re: My leptomeningeal journey

Agness, this reads like a gripping novel! Thank you for sharing. I look forward to reading all your posts.
I get brain mris quite frequently, every 6 weeks, yeah I'm not too crazy about the...
Forum: her2group 12-23-2015, 10:57 AM
Replies: 48
Views: 32,240
Posted By forher
Re: My leptomeningeal journey

ann, you are an exceptional woman. You are going to get exceptional results. Thank you for sharing your journey. Warm regards, letranger
Forum: her2group 12-15-2015, 05:07 PM
Replies: 4
Views: 3,478
Posted By forher
Re: chemicals in new home-harmful?

Can't say I know much but you can get a radon test especially if there is a lot of granite in the kitchen. I believe the owners are supposed to hang these "absorbers" or whatever they are called for...
Forum: her2group 12-15-2015, 04:57 PM
Replies: 8
Views: 7,601
Posted By forher
Re: Using a Ketogenic Diet to Fight Cancer Metabolically

I have a super low appetite and can't eat much, but have tried to eliminate all carbs and sugar. I've read that one can go into ketosis with a low caloric diet. I have ordered ketostix to see if I am...
Forum: her2group 12-15-2015, 04:50 PM
Replies: 22
Views: 7,722
Posted By forher
Re: Approaching 5 yr cancerversary but running out of options

Yanyan,
I can imagine this being a scary time. I hate that you're facing progression. I have little input but I just wanted to reply to your post.
Ok, so have you tried xeloda?
Edited:
Now that I...
Forum: her2group 12-13-2015, 12:23 PM
Replies: 42
Views: 19,771
Posted By forher
Re: Karen has moved on

Thank you for the update although I hate reading the words. Such a loss. Heartfelt condolences to Karen's family.
Forum: her2group 11-20-2015, 02:36 PM
Replies: 43
Views: 11,836
Posted By forher
Re: Karen

Any news on Karen?
Please keep us posted.

Dear Karen,
We are all awaiting your post to say that you are home and comfortably recovering. Eat well. Rest well. Hoping a new plan is already in...
Forum: her2group 08-30-2015, 10:53 PM
Replies: 10
Views: 2,621
Posted By forher
Re: Gabapentin - side effects

I have neuropathy, too, and have an Rx for neurontin, but never really used it. My neurosurgeon put me on Lyrica. I tried it for a month. Decided I didn't want to take any more meds. But I think it...
Forum: her2group 08-10-2015, 05:22 PM
Replies: 32
Views: 5,784
Posted By forher
Re: 10 years today!!!

wishing you many more "big days"! cheers, pinkgirl! (another awesome thread that belongs as a sticky!)
Forum: her2group 08-10-2015, 05:20 PM
Replies: 11
Views: 3,589
Posted By forher
Re: The Continuing Saga of Amy's Lungs

Amy, I have been keeping up with your story and was happy to see your update. I hope you sue the landlord.
Forum: her2group 08-10-2015, 05:14 PM
Replies: 12
Views: 2,436
Posted By forher
Re: Looking for advice and suggestions please

Good luck, Keri. Thinking of you! It's great that you have other tx plans for after WBRT! Please keep up posted.
Forum: her2group 08-10-2015, 05:12 PM
Replies: 39
Views: 6,239
Posted By forher
Re: 10 yrs brain mets - still NED ...

Bumping this up for the new brain met-sters. Wish this was a sticky or whatever you call it. It is one of my (and my husband's) favorite threads.
Forum: her2group 08-10-2015, 04:56 PM
Replies: 26
Views: 5,341
Posted By forher
Re: Brain Met

Hi, I'm a met-ster. I have several. I wanted to commend you the support your are giving your girlfriend. It's undoubtedly a scary time for the both of you. My husband also started coming here for...
Forum: her2group 08-04-2015, 11:40 AM
Replies: 12
Views: 2,436
Posted By forher
Forum: her2group 08-03-2015, 09:43 PM
Replies: 10
Views: 3,360
Posted By forher
Re: IT Herceptin needed in Canada

Cristina,
I'm so sorry to hear your news and I wanted to reach out to you. I know this must be a very scary time for you. Plus you have a little one! I don't have any knowledge of trials in Canada,...
Forum: her2group 07-28-2015, 09:14 AM
Replies: 1
Views: 1,869
Posted By forher
Re: Would giving a year of neratinib after completion of chemo& a yr of herceptin pre

Hi Lani, can you help explain these results? What I'm understanding is that there was not much difference in DFS for both arms of the study. Am I reading this wrong?
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