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Forum: Herceptin / Tykerb 03-18-2008, 02:34 AM
Replies: 689
Views: 291,377
Posted By kat in the delta
Exclamation Kat in the Delta

NORA, Gerri,
Hi ! I've been finished with mine for I think... a yr+( my memory is terrible).
Yes, I am still having some of the side effects,
and a FEW are getting worse!!!

I just...
Forum: Herceptin / Tykerb 03-18-2008, 12:16 AM
Replies: 689
Views: 291,377
Posted By kat in the delta
Post Kat in the Delta

Well I haven't been out lately... and I think I stayed in the house for 9 days straight..no sunshine.... after going out that nite..dancing... But it WAS worth the effort and I did have FUN !! ...
Forum: Herceptin / Tykerb 02-07-2008, 01:38 AM
Replies: 689
Views: 291,377
Posted By kat in the delta
Unhappy kat in the delta

I feel like I am getting confused with the Kathy that has 4 children who are young.. I have 3 sons in their 20's. My husband looks at me with total disgust.. He will not help me do a thing.. I...
Forum: Herceptin / Tykerb 12-17-2007, 11:32 AM
Replies: 689
Views: 291,377
Posted By kat in the delta
Post Kat in the Delta

Katherine,
Do you still have these poor memory and pain..all side effects? I sure do.. as you can see I agree that Genetech should know. Is this NOT the site ..that reports the after effects...
Forum: Herceptin / Tykerb 12-17-2007, 12:15 AM
Replies: 689
Views: 291,377
Posted By kat in the delta
Unhappy Kat in the Delta

I had the basic Adrimy/Cytox..weeklyx 4 and all the hair came out..
which was not too bad..
Before THAT.. I had a Masectomy.. on my Rt. Breast.. That was in Apr. 05..
Well then the IV's...
Forum: Herceptin / Tykerb 12-16-2007, 11:46 PM
Replies: 689
Views: 291,377
Posted By kat in the delta
Unhappy Kat in the Delta

I had the basic Adrimy/Cytox..weekly and all the hair came out.. which was not too bad..
Before THAT.. I had a Masectomy.. on my Rt. Breast.. That was in Apr. 05..
Well then the IV's...
Forum: Herceptin / Tykerb 12-16-2007, 02:19 AM
Replies: 689
Views: 291,377
Posted By kat in the delta
Smile Kat in the Delta

Dear ..tube... I have chemobrain..
so I couldn't remember your whole name.. sorry.. but,
How are you doing now? Has your heart recovered? What were your Numbers on the last echo-cardio. you...
Forum: Herceptin / Tykerb 10-27-2007, 03:19 PM
Replies: 689
Views: 291,377
Posted By kat in the delta
Thumbs down Kat in the Delta

I read on the package insert of Herceptin recently
that your Onc should be testing your heart at least every
3 month,,,not 6 months.....or MORE often if you have any
symtoms....short of...
Forum: Herceptin / Tykerb 10-22-2007, 08:11 PM
Replies: 689
Views: 291,377
Posted By kat in the delta
Thumbs down Kat in the Delta

Hey person with the brown spots, too...,
AS you can see...I am chemo-brained too. I now think IT is also from poor circulation to the Brain..lack of O2.
Do you mind telling me or asking WHAT...
Forum: Herceptin / Tykerb 10-22-2007, 12:22 PM
Replies: 689
Views: 291,377
Posted By kat in the delta
Post Kat in the Delta

They are from poor circulation back to your heart...and are iron deposits... probably caused by the herceptin...sometimes you may not notice them until 12 months later.... Do your ankle or feet...
Forum: Herceptin / Tykerb 10-22-2007, 10:30 AM
Replies: 689
Views: 291,377
Posted By kat in the delta
Thumbs down kat in the Delta

Maryanne or Harrie,
Are you one in the same ...or were 2 people on the Hercptin/Tykerb site ?- just wondering.
In that article, I read that of the people with Her2 Positive BC,only 8 % DID NOT...
Forum: Herceptin / Tykerb 10-20-2007, 12:33 AM
Replies: 689
Views: 291,377
Posted By kat in the delta
Smile Kat in the Delta

I had a masc. in Apr. of 2005. and I am in PAIN.... my new Onc. said my chest was very tight...,my New Onc also asked me if I had been doing my EXERCISES,,?? ,( no one told me to do Exercise...
Forum: Herceptin / Tykerb 10-20-2007, 12:15 AM
Replies: 689
Views: 291,377
Posted By kat in the delta
Post kat in the delta

I just read in our local newspaper about someone at Duke Univ. doing a study ...and it mentioned also a DR. Slamon or Slaom-spelling is not correct from UCLA..CAlifornia.
Anyway, he said with a...
Forum: Herceptin / Tykerb 10-08-2007, 01:16 PM
Replies: 689
Views: 291,377
Posted By kat in the delta
I got neuropathy from the taxanes..I took...

I got neuropathy from the taxanes..I took Taxol..some take taxatere...(sorry about the spelling--in a hurry)..
The new thing is just going for a
Targeted treatment that fits You..!!!!!.. Now,...
Forum: Herceptin / Tykerb 10-07-2007, 08:09 PM
Replies: 689
Views: 291,377
Posted By kat in the delta
kat in the delta

I have always heard of finding the" NEW ME" after treatments and have discovered that the NEW ME IS really the "OLDer ME"-with all these damages from the chemos, rads,possibly surgery, and...
Forum: Herceptin / Tykerb 07-06-2007, 01:36 PM
Replies: 689
Views: 291,377
Posted By kat in the delta
kat in the delta

Thanks andi,
Will call for all records/go there now....you are right..kat
Forum: Herceptin / Tykerb 07-06-2007, 12:11 PM
Replies: 689
Views: 291,377
Posted By kat in the delta
kat in the delta

Bailey,
It's not that my Onc. didn't give me my last 2 or so scores.. HE just REfused to have the HEART SCANS even DONE on me !! -He never ORDERED THEM !!!--just wanted me to get the...
Forum: Herceptin / Tykerb 07-05-2007, 01:20 PM
Replies: 689
Views: 291,377
Posted By kat in the delta
I also forgot to mention that I have brown spots...

I also forgot to mention that I have brown spots that go up my ankles like socks... appearing since being on Herceptin, and that my ankle swell even tho' I am thin and taking a fluid pill.
My...
Forum: Herceptin / Tykerb 07-05-2007, 01:16 PM
Replies: 689
Views: 291,377
Posted By kat in the delta
Thumbs down kat in the delta

I have been off herceptin for nearly a year after doing 12 weekly treatments(6 with taxol and 6 without weekly), then a larger dose of Herceptin every 3 wks for a year....MY MEMORY IS NOT BETTER !!! ...
Forum: Herceptin / Tykerb 05-01-2007, 12:33 PM
Replies: 689
Views: 291,377
Posted By kat in the delta
kat in the delta

Sometimes I think these Oncs. are afraid of their own mortality and death so they do not answer any questions...and then again, they also may not want to weigh the pros and cons because there may be...
Forum: Herceptin / Tykerb 06-02-2006, 07:43 AM
Replies: 689
Views: 291,377
Posted By kat in the delta
kat in the delta

Sandy, Do you have pain and take pain meds. for Herceptin side effects??? kat in the delta
Forum: Herceptin / Tykerb 05-30-2006, 12:57 PM
Replies: 689
Views: 291,377
Posted By kat in the delta
Lightbulb kat in the delta

Sandyr,
How long have you had stock in Genetech? Ishould have bought some when I first looked at it in Mar. 2005.
As for the "side effects", I get: swollen extremities-(fingers, ankles...
Forum: Herceptin / Tykerb 05-11-2006, 03:45 PM
Replies: 689
Views: 291,377
Posted By kat in the delta
Thumbs down kat in the delta

Maryl,
What is the chemo drug that some have used that replaces Adriamycin??( the A/C)
Also what is the name of the new drug for Brain metast.??
I wanted to tell my onc/rad. tomorrow. Hope...
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