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Search: Posts Made By: tousled1
Forum: Herceptin / Tykerb 12-20-2007, 06:10 PM
Replies: 689
Views: 291,900
Posted By tousled1
Kathy, My heart goes out to you. It's a...

Kathy,

My heart goes out to you. It's a tough battle fighting breast cancer without adding all the other BS into the mix. Four children under the age of 14 - WOW! You have a full plate right...
Forum: Herceptin / Tykerb 09-29-2007, 09:17 AM
Replies: 689
Views: 291,900
Posted By tousled1
The tablet or pill he was talking about was...

The tablet or pill he was talking about was Tamoxifan which has nothing at all to do with node negative or positive. It has to do with whether you are estrogen/progesterone postive. I think you...
Forum: Herceptin / Tykerb 09-26-2007, 10:01 AM
Replies: 689
Views: 291,900
Posted By tousled1
Kathy, I'm so encouraged to read that the...

Kathy,

I'm so encouraged to read that the Taxol/Herceptin is shrinking your lung mets. I have a personal interest as I too have lung mets and am on Taxol. I'm getting Cqrboplatin with the...
Forum: Herceptin / Tykerb 09-24-2007, 07:20 AM
Replies: 689
Views: 291,900
Posted By tousled1
Mary Lou, Sounds like you managed to get...

Mary Lou,

Sounds like you managed to get through your treatment without too many side effects. As to when you will begin to feel normal again -- big question! Everyone is different and...
Forum: Herceptin / Tykerb 09-22-2007, 04:21 PM
Replies: 689
Views: 291,900
Posted By tousled1
Tamara, Try Glucosamine/Chondroitin...

Tamara,

Try Glucosamine/Chondroitin Complex. It was recommended to me by my neurosurgeon after my back surgery. I find that it helps immensley with the bone/joint pain from Herceptin.
Forum: Herceptin / Tykerb 02-19-2007, 08:18 AM
Replies: 689
Views: 291,900
Posted By tousled1
With so many new members, I thought I'd bring...

With so many new members, I thought I'd bring this discussion up to the front again. Perhaps it can help the newcomers
Forum: Herceptin / Tykerb 01-28-2007, 07:05 PM
Replies: 689
Views: 291,900
Posted By tousled1
Penny, Here is how Herceptin is usually...

Penny,

Here is how Herceptin is usually reconstituted.

HERCEPTIN is a sterile, white to pale yellow, preservative-free lyophilized powder for intravenous (IV) administration. The nominal...
Forum: Herceptin / Tykerb 01-28-2007, 12:42 PM
Replies: 689
Views: 291,900
Posted By tousled1
Penny, I'm still on Herceptin and since I...

Penny,

I'm still on Herceptin and since I started Herceptin I have been plaqued with severe joint/bone pain - especially in the hip area. My last three treatments I had them reconstitute the...
Forum: Herceptin / Tykerb 12-09-2006, 10:26 PM
Replies: 689
Views: 291,900
Posted By tousled1
Moving this up

Since we have so many new members, I am taking the liberty of moving this thread up. I'm sure that the "newbies" might find it helpful.
Forum: Herceptin / Tykerb 10-20-2006, 04:45 PM
Replies: 689
Views: 291,900
Posted By tousled1
Jennid, When I told my oncologist about my...

Jennid,

When I told my oncologist about my side effects she said "you shouldn't have any side effects with Herceptin." I told her she was wrong and that she should come to this site and check...
Forum: Herceptin / Tykerb 10-16-2006, 11:46 PM
Replies: 689
Views: 291,900
Posted By tousled1
I am on Herceptin only and I experience the...

I am on Herceptin only and I experience the following:

1. trouble concentrating and trouble with short term memory also trouble with finding words - I know what I want to say but sometimes the...
Forum: Herceptin / Tykerb 09-30-2006, 04:34 PM
Replies: 689
Views: 291,900
Posted By tousled1
No steroids here

Vicki,

I am on straight Herceptin -- no steroids -- no nothing except Herceptin. Only time I had steroids was as a pre-med with the Taxatore.
Forum: Herceptin / Tykerb 09-30-2006, 05:45 AM
Replies: 689
Views: 291,900
Posted By tousled1
I started Herceptin only one week after my...

I started Herceptin only one week after my surgery and the plan was to do it every 3 weeks. Well, I got my first Herceptin dose and I experienced such severe side effects that I decided to go the...
Forum: Herceptin / Tykerb 09-29-2006, 01:45 PM
Replies: 689
Views: 291,900
Posted By tousled1
Mary, Most doctors stop the herceptin once...

Mary,

Most doctors stop the herceptin once your LVEF gets to 50. Then when you're off it a while your LVEF will come back up and you can continue the herceptin.
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