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Forum: her2group

09-21-2008, 07:36 PM

Replies: 13

bye xeloda! - hello my old friend herceptin! and tykerb stay right where you are...

Views: 2,105

Posted By Laura

I don't post often. You are not repeating...

I don't post often. You are not repeating yourself. I was able to get Tykerb, Xeloda and Herceptin approved by my insurance company off label. I was on Herceptin after diagnosis, taken off when my...

Forum: her2group

09-21-2008, 05:30 PM

Replies: 13

bye xeloda! - hello my old friend herceptin! and tykerb stay right where you are...

Views: 2,105

Posted By Laura

I am in somewhat of a similar situation. Bone and...

I am in somewhat of a similar situation. Bone and brain mets (brain was diagnosed January of 08- had innumerable tiny lesions – now down to one) bones are riddled with small mets. I added Herceptin...

Forum: her2group

04-21-2008, 12:37 PM

Replies: 8

Brain Radiation--Scarey stuff

Views: 1,361

Posted By Laura

D.W. I have no cognitive or memory...

D.W.

I have no cognitive or memory problems.

Laura

Forum: her2group

04-20-2008, 06:56 PM

Replies: 8

Brain Radiation--Scarey stuff

Views: 1,361

Posted By Laura

DW, I was also told that my hair might not grow...

DW,
I was also told that my hair might not grow back. Yikes! It was more troublesome for me than the no-reconstruction after mastectomies. It is such a visual thing that tells everyone you come...

Forum: her2group

11-29-2007, 01:37 PM

Replies: 7

~Has Anyone Tried Magace For Appetite???

Views: 1,379

Posted By Laura

I use Megace as an appetite stimulant. It is...

I use Megace as an appetite stimulant. It is also used to reduce fatigue. It works on both counts for me.

Forum: her2group

06-09-2007, 07:00 AM

Replies: 11

tykerb - success without rash?

Views: 1,258

Posted By Laura

I have been worried about that also. I had a...

I have been worried about that also. I had a rash on my face with Herceptin but nothing with Lapatinib. I believe everyone reacts differently. And side effects are not normally definitive signs of...

Forum: her2group

11-25-2006, 12:04 PM

Replies: 3

Anyone find out late that they are multi-focal er+

Views: 1,173

Posted By Laura

Anyone find out late that they are multi-focal er+

Hello all
I was diagnosed in Mar 06 er-/pr-, her2+++ with mets to bone. T/C/H and Zometa brought me to complete response in 3 or 4 months. I struggled with a decision to have bilateral mastectomies...

Forum: her2group

11-20-2006, 03:02 PM

Replies: 4

looking for help and guidance on next step

Views: 1,401

Posted By Laura

looking for help and guidance on next step

I am hoping you all will not only offer some help but also give me some hope. I was diagnosed 03/06 with stage iv er-/pr- her2+++ mets to the bone (about 5 locations). I went through 4 cycles (each...

Forum: her2group

10-09-2006, 05:53 PM

Replies: 20

Stage IV and Mastectomy

Views: 3,228

Posted By Laura

I haven't had any surgery or radiation. I have...

I haven't had any surgery or radiation. I have no family history of breast cancer. The primary tumor was about 7cm at diagnosis. After one month, it was no longer palpable, CT scan at 4 months...

Forum: her2group

10-09-2006, 02:08 PM

Replies: 20

Stage IV and Mastectomy

Views: 3,228

Posted By Laura

I am the sister that Amy has been talking about....

I am the sister that Amy has been talking about. I have a father/daughter oncologist team... one in Chicago, one in Milwaukee. They both say that current, standard treatment would be to not have the...

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