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Search: Posts Made By: pmm10414
Forum: her2group 05-02-2013, 08:21 PM
Replies: 5
Views: 3,842
Posted By pmm10414
Re: Hot flashes every 5 minutes??!!

I am 41/2 years out and they are slowly getting better except summer here in FL makes them worse.
Forum: Herceptin / Tykerb 07-22-2012, 05:15 AM
Replies: 689
Views: 290,106
Posted By pmm10414
Re: Please post your two cents on Herceptin "side effects" real or perceived!

Hot flashes were terrible. Within 10 minutes of starting they would start.
Forum: Herceptin / Tykerb 02-20-2012, 11:39 AM
Replies: 689
Views: 290,106
Posted By pmm10414
Re: Please post your two cents on Herceptin "side effects" real or perceived!

I did the same. There are some articles on Internet that state weekly dose is better because it keeps constant dose in body. I had same symptoms even with weekly dose, but I can't imagine what it...
Forum: Herceptin / Tykerb 01-07-2012, 09:25 PM
Replies: 689
Views: 290,106
Posted By pmm10414
Re: Please post your two cents on Herceptin "side effects" real or perceived!

The atarax comes in a cream also. It drove me crazy until I used pills and cream.
Forum: her2group 01-03-2012, 01:48 AM
Replies: 14
Views: 2,984
Posted By pmm10414
Re: Chemo before surgery - anyone do this?

Someone at my support group told mesh did not have surgery. That thought scared me. My pain comes from nerves being severed Iam sure during surgery.
Forum: Herceptin / Tykerb 12-24-2011, 12:58 PM
Replies: 689
Views: 290,106
Posted By pmm10414
Forum: Herceptin / Tykerb 12-24-2011, 12:35 PM
Replies: 689
Views: 290,106
Posted By pmm10414
Re: Please post your two cents on Herceptin "side effects" real or perceived!

They put me on nasonex and I seem to do better. At my last PET scan they said there were permanent narrowing to my right nasal passage. I have been using saline and it seems to relieve discomfort...
Forum: Herceptin / Tykerb 12-23-2011, 03:19 PM
Replies: 689
Views: 290,106
Posted By pmm10414
Re: Please post your two cents on Herceptin "side effects" real or perceived!

Poor thing. I was put on atarax when I had reaction to hormonal changes when I had my son. It worked. I was so itchy I was miserable too. They had a cream too.
Forum: Herceptin / Tykerb 12-23-2011, 03:00 PM
Replies: 689
Views: 290,106
Posted By pmm10414
Re: Please post your two cents on Herceptin "side effects" real or perceived!

Let think good thoughts. Have you tried oatmeal bath for itching?
Forum: her2group 12-22-2011, 08:58 AM
Replies: 12
Views: 2,008
Posted By pmm10414
Re: My Christmas Present

As I tell friends if you have your health you can deal with whatever comes your way.
Forum: her2group 12-22-2011, 05:41 AM
Replies: 12
Views: 2,008
Posted By pmm10414
Re: My Christmas Present

Me too. Doesn't it feel great!
Forum: her2group 12-21-2011, 09:30 PM
Replies: 12
Views: 2,008
Posted By pmm10414
Re: My Christmas Present

YEAH'!!!!!!!!!!! We will be dancing in the street this Christmas.
Forum: Herceptin / Tykerb 12-20-2011, 01:00 PM
Replies: 689
Views: 290,106
Posted By pmm10414
Re: Please post your two cents on Herceptin "side effects" real or perceived!

While I was being treated my tongue swelled up, but my Onc and I decided it was from another drug I was taking. We stopped it and the swelling stopped. Let's hope all goes well for you. Sending...
Forum: Herceptin / Tykerb 12-20-2011, 04:15 AM
Replies: 689
Views: 290,106
Posted By pmm10414
Re: Please post your two cents on Herceptin "side effects" real or perceived!

I agree. It gives you a sense of security. I could not imagine going through taxol again.
Forum: her2group 12-19-2011, 04:10 PM
Replies: 12
Views: 2,008
Posted By pmm10414
My Christmas Present

I was having terrible pain in my abdomen and ribs so my Onc ordered a PET scan. I had it this am. She just called to give me news ni cancer. She said I have inflammation where esophagus meets my...
Forum: Herceptin / Tykerb 12-19-2011, 04:05 PM
Replies: 689
Views: 290,106
Posted By pmm10414
Re: Please post your two cents on Herceptin "side effects" real or perceived!

I had hand issues and thought it was from taxol but it continued when I went to Herceptin only. I felt it is better to deal with that than the chance of my cancer coming back if I stopped early.
Forum: Herceptin / Tykerb 12-19-2011, 12:14 PM
Replies: 689
Views: 290,106
Posted By pmm10414
Re: Please post your two cents on Herceptin "side effects" real or perceived!

Amen! I am not sure when you start counting, but after 3 years from diagnosis I don't think about it first thing when I wake up. I went for PET scan today so the wait begins!
Forum: her2group 12-18-2011, 01:33 PM
Replies: 24
Views: 7,288
Posted By pmm10414
Re: Itchy rash-Herceptin?

Did you try benydrl. I took it at bedtime. It seemed to help me.
Forum: her2group 12-18-2011, 01:32 PM
Replies: 24
Views: 7,288
Posted By pmm10414
Re: Itchy rash-Herceptin?

Agree when you read prognosis for Her2 BC without Herceptin it is not worth the chance. My on told me that soon you will be able to get it as an injection instead of infusion. I wonder if that...
Forum: her2group 12-17-2011, 07:40 PM
Replies: 8
Views: 1,451
Posted By pmm10414
Re: Optometrists

I was not impacted initially, but now almost years after Taxol my vision was worse. Dr not only changed prescription but also said I have start of cateract. My mouth is still dry compared to before.
Forum: her2group 12-17-2011, 07:30 PM
Replies: 17
Views: 2,530
Posted By pmm10414
Re: Feeling low post treatment

You are welcome. I guess they are something we take foe granted. It is like waking up in the morning. Look at that picture - you are smiling!
Forum: her2group 12-17-2011, 02:00 PM
Replies: 17
Views: 2,530
Posted By pmm10414
Re: Feeling low post treatment

Jean you are right hugs are needed right now. Life is so precious especially when you have friends to give you a BIG hug when you need it.
Forum: her2group 12-17-2011, 11:09 AM
Replies: 14
Views: 2,984
Posted By pmm10414
Re: Chemo before surgery - anyone do this?

Yeah! I know we would probably change things if we could with our treatment. In the beginning I recollect being in such a fog I just went with doctor's recommendation t the tumor board. In the...
Forum: her2group 12-17-2011, 05:23 AM
Replies: 17
Views: 2,530
Posted By pmm10414
Re: Feeling low post treatment

I enjoyed the support group I was in when diagnosed. You are able to share a common bond.
Forum: My Healthcare Team 12-17-2011, 04:34 AM
Replies: 0
Views: 6,927
Posted By pmm10414
New Hampshire

Dr. Theresa Ponn is a great breast surgeon and what an advocate for me during treatment. Dr. Peter Crow NHOH was very cautious but he was excellent with my care. Radiologist was Dr Andy Singh. He...
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