HonCode

Go Back   HER2 Support Group Forums > Search Forums
Reload this Page Search Results
Register Gallery FAQ Members List Calendar Today's Posts

Page 1 of 2 1 2
Showing results 1 to 25 of 28
Search took 0.01 seconds. Search: Posts Made By: phil
Forum: Clinical Trials 01-24-2012, 12:07 PM
Replies: 60
Views: 25,993
Posted By phil
Re: Access to T DM-1

Thanks schoonder, I hope our mbrs in , Canada, Europe see this ! Further thoughts from above : T DM-1 has fewer s/e overall than other chemos, no hair loss, no mouth sores, because its the first...
Forum: Clinical Trials 01-23-2012, 07:23 PM
Replies: 60
Views: 25,993
Posted By phil
Re: Access to T DM-1

Hi Oregon :
All her2 + pts should be GREATLY encouraged by the development of Herceptin T DM-1. It is the best tx. for Her2 + since the invention of original Herceptin. Researchers have told me they...
Forum: Clinical Trials 01-19-2012, 07:30 PM
Replies: 60
Views: 25,993
Posted By phil
Re: Access to T DM-1

Lorraine made it to Boston ! She did it on her own ( Really a God Thing ! ), her platelets hit 80,000 this past Monday. had a CT Tuesday - No Detectable Disease ! T DM-1 in Boston today ! After 16...
Forum: Clinical Trials 01-12-2012, 09:09 AM
Replies: 60
Views: 25,993
Posted By phil
Re: Access to T DM-1

FYI, " Our Her2 Cancer Struggle " ( on FB), has posted the Video of our December " FDA Blocks Life-Saving Cancer Drug Rally " on Youtube. Please watch all 4 Parts, and pass the links on to your ...
Forum: Clinical Trials 12-18-2011, 06:15 PM
Replies: 60
Views: 25,993
Posted By phil
Re: Access to T DM-1

We had our FDA Blocks Life-saving Cancer Drug Rally. You can see Lorraine on youtube at " Boston FDA Rally ". We will get an edited version of all 5 Speakers out soon. One of the speakers , Peter ,...
Forum: Clinical Trials 11-10-2011, 07:27 PM
Replies: 60
Views: 25,993
Posted By phil
Re: Access to T DM-1

Correction, second dose since Gen. told Lorraine she would have to meet new " criteria " for anew " study ". 13th dose over past year, 7 at 3.6 strength, 5 at 3.0. Great results, great quality of...
Forum: Clinical Trials 11-10-2011, 07:23 PM
Replies: 60
Views: 25,993
Posted By phil
Re: Access to T DM-1

I promised to keep you all up to date. We continue to be stone-walled by top execs at Genentech, and forced by them to travel to Va. Thats the truth, and they continue to try to blame Partners IRB....
Forum: Clinical Trials 10-25-2011, 08:56 AM
Replies: 60
Views: 25,993
Posted By phil
Re: Access to T DM-1

Roche/Genentech are starting trials in Europe w/ T DM-1 . Contact Gen. for details.
Re platelets, blood counts while on t dm-1. Someone e-mailed me about sharks liver oil. Lorraine has been taking...
Forum: Clinical Trials 10-24-2011, 11:56 AM
Replies: 60
Views: 25,993
Posted By phil
Re: Access to T DM-1

For trials they accept platelets of 100, 000 or above. Normal platelts run btween 150,000 to 400,000. The new " study " Gen. is talking about is an extension, for pts who have done well on the drug,...
Forum: Clinical Trials 10-21-2011, 07:23 AM
Replies: 60
Views: 25,993
Posted By phil
Re: Access to T DM-1

Dont forget , Sign our petition : " FDA Blocks Life-Saving Drug ", Google it !
Forum: Clinical Trials 10-21-2011, 07:21 AM
Replies: 60
Views: 25,993
Posted By phil
Re: Access to T DM-1

Thanks Schoonder. Several of you have e-mailed me , asking if Lorraine got to switch tx. to Boston . She did NOT !! Genentech decided to close access , and with it the flexible tx. plan we had been...
Forum: Clinical Trials 09-19-2011, 04:40 PM
Replies: 60
Views: 25,993
Posted By phil
Re: Access to T DM-1

Sorry that I didnt get the link exact. Try again : http://signon.org/sign/fda-blocks-life-saving?source=c.url&r-by=603490
Forum: Clinical Trials 09-16-2011, 01:18 PM
Replies: 60
Views: 25,993
Posted By phil
Re: Access to T DM-1

Please support our petition to Dr. Sebelius, asking her to investigate this FDA's denial of Herceptin T DM-1 to Stage IV Survivors. She is this FDAs boss. Go to the link below, study up on the...
Forum: Clinical Trials 08-26-2011, 12:43 PM
Replies: 60
Views: 25,993
Posted By phil
Re: Access to T DM-1

Lorraine got a call from the research clinic in Va. They have started the process of transferring her T DM-1 Access to Dana Farber in Boston ! We are very, very excited !!
Any woman in the Access...
Forum: Clinical Trials 07-25-2011, 07:01 PM
Replies: 60
Views: 25,993
Posted By phil
Re: Access to T DM-1

Important addendum. Gen. is adding a large new trial to try to satisfy this FDA 's new focus on " Overall Survival ",( I call it " Slow As Usual "), at 42 sites, comparing t dm-1 to other txs. None...
Forum: Clinical Trials 07-25-2011, 06:30 PM
Replies: 60
Views: 25,993
Posted By phil
Re: Access to T DM-1

genentech announced that they are closing the access program as of Sept. 6. Those already in it will be grandfathered in. They didnt say it, but its related to this FDA's fumbling of the development...
Forum: Clinical Trials 03-13-2011, 10:50 AM
Replies: 60
Views: 25,993
Posted By phil
Re: Access to T DM-1

Thanks chelee. Anyone contacting media should mention that Gen. is keeping access from NY, Boston, the whole Northeast.
Schoonder, the FDA and Gen. are talking, taking their sweet time, but they...
Forum: Clinical Trials 03-12-2011, 06:50 AM
Replies: 60
Views: 25,993
Posted By phil
Re: Access to T DM-1

Those of you who live in the DC or NY area, call your local TV, newspapers, ask for the health editors e-mail. Send them the story.
Forum: Clinical Trials 03-11-2011, 06:30 PM
Replies: 60
Views: 25,993
Posted By phil
Re: Access to T DM-1

Check outLorraines' story on bostonchannel.com, Search :
" heidke-mccartin". Lorraine was awesome, I'm so proud of her. You can see how well shes doing. Living proof that this FDA Admin. is...
Forum: Clinical Trials 03-09-2011, 07:26 PM
Replies: 60
Views: 25,993
Posted By phil
Re: Access to T DM-1

Lorraines story should air tomorrow night ( Thurs, ) ch. 5 boston, at 11. bostonchannel.com. Hope it goes national.
Forum: Clinical Trials 02-27-2011, 04:03 PM
Replies: 60
Views: 25,993
Posted By phil
Re: Access to T DM-1

I am so glad that your wife gets to try this wonderful drug. About 40% of those who try it, have great results. I think those numbers will rise once the FDA allows it to be approved. So women can...
Forum: Clinical Trials 02-19-2011, 07:17 AM
Replies: 60
Views: 25,993
Posted By phil
Re: Access to T DM-1

Lorraine and I were interviwed by Kelley Tuthill, from Boston Ch. 5 new. She will air the interview in the next week or so. She is aHER2 survivor herself.
T DM-1 continues to be " amazing " for...
Forum: Clinical Trials 01-30-2011, 08:09 PM
Replies: 60
Views: 25,993
Posted By phil
Re: Access to T DM-1

Went to DC this week for tx. # 3. Our 8 week CT was " fantastic " according to the Va. doc ! Met with aides to Sen. Harkin, chair of HELP Comm. They oversee the FDA. We'll see if they " HELP ". I...
Forum: Clinical Trials 01-07-2011, 05:44 PM
Replies: 60
Views: 25,993
Posted By phil
Re: Access to T DM-1

This is Phase III since last year ! The FDA says it must be tested against another combo, Tykerb/Xeloda, which is more toxic, and is no more effective . My wife was on it, and it was awful, her...
Forum: Clinical Trials 01-06-2011, 07:33 PM
Replies: 60
Views: 25,993
Posted By phil
Re: Access to T DM-1

Check out my wifes story on the front page of Jan. 5th Boston Globe. boston.com/business/healthcare/articles/2011/01/05/testing. Our struggle to get T DM-1. If noone else will speak for us, then...
Showing results 1 to 25 of 28
Page 1 of 2 1 2

 
Forum Jump

All times are GMT -7. The time now is 08:32 AM.
Contact Us - HER2 Support Group - Archive - Privacy Statement - Top

Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter