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Search took 0.02 seconds. Search: Posts Made By: Diana1993
Forum: Herceptin / Tykerb 11-22-2009, 05:32 PM
Replies: 3
Views: 2,186
Posted By Diana1993
Talking Re: Tykerb/Antibiotics

Surgery is behind me for another three months. I have a kidney stent change every two to three months. I took your advice Elaine and took the info to the surgeon. Just prior to surgery, the...
Forum: Herceptin / Tykerb 11-19-2009, 02:28 PM
Replies: 3
Views: 2,186
Posted By Diana1993
Tykerb/Antibiotics

Can anyone let me know, which antibiotic is incompatible with Tykerb? I'm having surgery tomorrow and it might be helpful to know.
Thanks,
Diana.
Forum: her2group 03-25-2009, 12:36 PM
Replies: 21
Views: 3,304
Posted By Diana1993
I'm so glad this topic has come up. One piece of...

I'm so glad this topic has come up. One piece of bad news throws me for days and I allow myself to try and find a coping method. None of us can take a persistant cough, nasal drip, nagging pain, or...
Forum: her2group 03-21-2009, 08:49 PM
Replies: 1
Views: 1,222
Posted By Diana1993
Colds, Flu, and Ca15-3 count

I'm presently on Xeloda, after being on herceptin for two years. I was taken off herceptin when my CA15-3 count jumped to 295 after a flu bug. I'm on holidays and I had blood work done this week,...
Forum: her2group 03-21-2009, 05:51 PM
Replies: 2
Views: 1,531
Posted By Diana1993
I'm presently on Xeloda, after being on herceptin...

I'm presently on Xeloda, after being on herceptin for two years. I was taken off herceptin when my CA15-3 count jumped to 295 after a flu bug. I'm on holidays and I had blood work done this week,...
Forum: her2group 02-17-2009, 09:07 PM
Replies: 40
Views: 5,316
Posted By Diana1993
I'm taking your thread to my Onc. tomorrow. I...

I'm taking your thread to my Onc. tomorrow. I think the Drs. need to hear more positive stories. Way to go Brenda, and keep up the great work. Take up line dancing so that I can meet you on the...
Forum: her2group 02-16-2009, 07:51 PM
Replies: 23
Views: 2,876
Posted By Diana1993
If changing doctors is not an option, I would...

If changing doctors is not an option, I would have a friend accompany me. My husband comes in with me, so I don't forget to mention some detail and often he hears things that I miss.
Forum: her2group 02-16-2009, 07:44 PM
Replies: 14
Views: 2,358
Posted By Diana1993
How timely this thread came up. I have lost a...

How timely this thread came up. I have lost a 'baby toe' nail and my both my big toenails are lifting. I've been on Xeloda for over a year now. Hubby and I are leaving for the sunny south,...
Forum: her2group 02-14-2009, 07:54 PM
Replies: 10
Views: 1,577
Posted By Diana1993
Carolyn, I didn't care for my onc. at first. I...

Carolyn,
I didn't care for my onc. at first. I thought he was too blunt, and rehearsed. After 16 years with this wonderful Dr. I have a healthy respect for him. For example, I jokingly said to a...
Forum: her2group 12-27-2008, 07:44 PM
Replies: 20
Views: 2,421
Posted By Diana1993
Thank you Mary Anne for your thoughtfulness. I...

Thank you Mary Anne for your thoughtfulness. I miss these ladies and although I rarely comment, I check in almost daily. Perhaps 2009 has a light in the tunnel. My candle is lit.
Hugs,
Diana.
Forum: her2group 11-17-2008, 10:05 PM
Replies: 7
Views: 1,452
Posted By Diana1993
Two more: Red Wine and Chocolate!

Two more: Red Wine and Chocolate!
Forum: her2group 11-06-2008, 06:45 PM
Replies: 50
Views: 6,330
Posted By Diana1993
Kathy, Tykerb is not available in Canada yet,...

Kathy,
Tykerb is not available in Canada yet, but while speaking with a nurse at Glaxo, Smith, Kline (GSK) U.S. based, the makers of Tyerb (lapatinib) she suggested that my onc. try to apply for...
Forum: her2group 11-04-2008, 12:33 PM
Replies: 31
Views: 2,983
Posted By Diana1993
Caya, Tykerb is not available in Canada. My onc....

Caya, Tykerb is not available in Canada. My onc. tried to get me in a clinical trial but I didn't meet all the criteria. I have been in contact with Glaxo Smith Kline and they said it is now up to...
Forum: her2group 10-13-2008, 06:55 AM
Replies: 32
Views: 2,889
Posted By Diana1993
I was on herceptin for almost two years and the...

I was on herceptin for almost two years and the only pre med I received was Tylenol. Like Caya, I had a drip of 60 minutes. Se were and are drippy eyes and nose. I have learned to live with it. I...
Forum: her2group 10-07-2008, 08:02 AM
Replies: 11
Views: 1,809
Posted By Diana1993
Caya and Trisha, I have also reached the road...

Caya and Trisha,
I have also reached the road block at the box for zip code. I have almost given up my quest on trying to get Tykerb (lapatinib) approved in Canada. I've run around in circles...
Forum: her2group 09-30-2008, 01:46 PM
Replies: 3
Views: 1,089
Posted By Diana1993
I am curious also. I've recently confessed to my...

I am curious also. I've recently confessed to my onc. that I lowerd my dose of Xeloda to 3,000mg from 3600, and now can live with the side effects. Tumor markers are still coming down. I wish...
Forum: her2group 09-19-2008, 05:01 AM
Replies: 9
Views: 1,854
Posted By Diana1993
Red face This post certainly covers a lot of points, but...

This post certainly covers a lot of points, but I'd rather be seeing a world of pink and knowing someone is doing something.
When I was diagnosed in 1993 and after one of my early treatments, the...
Forum: her2group 09-11-2008, 09:10 AM
Replies: 45
Views: 5,372
Posted By Diana1993
Brenda, Many of us have had 'set-back' news,...

Brenda,
Many of us have had 'set-back' news, and most of us did not handle it with your grace. Your information, and how you handle each situation sets a standard for the rest of us. I jokingly...
Forum: her2group 09-11-2008, 08:56 AM
Replies: 8
Views: 1,192
Posted By Diana1993
Mary Anne, Please post, and let all of us worry...

Mary Anne,
Please post, and let all of us worry worts relax.
Hugs,
Diana.
Forum: her2group 09-09-2008, 06:54 PM
Replies: 6
Views: 1,907
Posted By Diana1993
What is Tykerb "off label"?

What is Tykerb "off label"?
Forum: her2group 09-08-2008, 07:14 PM
Replies: 9
Views: 1,334
Posted By Diana1993
Thank you Sheila for that info. I started with...

Thank you Sheila for that info. I started with 4000mg and then had the dose lowered to 3600mg. and changed from two weeks on and one week off, to: one week on and one week off. Also, without...
Forum: her2group 08-23-2008, 03:03 PM
Replies: 10
Views: 2,052
Posted By Diana1993
Brenda, Can you explain why no grapefruit and...

Brenda,
Can you explain why no grapefruit and and folic acid with Xeloda? I have been on it since Jan.08 and I have hand/foot syndrome. I've cut back on my dose, and now take it one week on, and...
Forum: her2group 08-19-2008, 06:02 AM
Replies: 198
Views: 30,470
Posted By Diana1993
Thank you for the updates. We all need to hear...

Thank you for the updates. We all need to hear these stats. I'm still a work in progress but still ticking after 15 years, Aug. 1993.
Hugs
Diana
Forum: her2group 08-09-2008, 06:08 PM
Replies: 29
Views: 3,586
Posted By Diana1993
Christine, thank you for posting. How...

Christine, thank you for posting. How refreshing, to have someone recongnized, that is an advocate of survivors. You truly know how to move forward in a positive light. Bless you,
Hugs,
Diana.
Forum: her2group 07-08-2008, 07:23 PM
Replies: 8
Views: 1,908
Posted By Diana1993
Patricia, I have been on Xeloda since Jan. I...

Patricia,
I have been on Xeloda since Jan. I tolerated the first round fine, then it became increasingly difficult to walk and do ordinary tasks. There are three stages, to hand foot syndrome.( a...
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