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Search: Posts Made By: nancymarie
Forum: her2group 01-04-2007, 04:37 PM
Replies: 3
Views: 1,137
Posted By nancymarie
Breathing Problems from Herceptin?

Hi Everyone,

I was only on Herceptin for six months and was taken off of it from the result of my echo's plus some other side effects I was having. That was in June.

Now, I seem to be having...
Forum: her2group 05-23-2006, 04:15 PM
Replies: 19
Views: 2,093
Posted By nancymarie
How Long Were You Supposed to be on Herceptin?

Karen Ann and Lexi,

How long were you supposed to be on Herceptin when you took your break? I was only supposed to be on it for one year so I got six months of treatment in already.

My onc...
Forum: her2group 05-23-2006, 07:40 AM
Replies: 19
Views: 2,093
Posted By nancymarie
How Many Had To Stop Their Herceptin Treatments?

Hi there,

I had an appointment with my onc yesterday and all weekend I was thinking about the benefits of herceptin but also was thinking about all the side effects I had. I made my decision...
Forum: her2group 05-18-2006, 04:04 PM
Replies: 1
Views: 714
Posted By nancymarie
Hello, Taxotere really took a toll on my...

Hello,

Taxotere really took a toll on my joints. I was taking celebrex back in 2002 for my pain at that time.

I'm now only on Herceptin and it seems like my joint problems are back. My...
Forum: her2group 05-11-2006, 11:26 AM
Replies: 26
Views: 3,081
Posted By nancymarie
I am Stage 2 and have had Herceptin (currently my...

I am Stage 2 and have had Herceptin (currently my only treatment) for the past 6 months. I am going to tell my onc that I want to discontinue further treatments since the side effects are really...
Forum: her2group 05-10-2006, 02:39 PM
Replies: 5
Views: 1,114
Posted By nancymarie
Scrubs...

Although not too fashionable, I bought very large sizes of those "scrubs" shirts and wore them the entire time I was on radiation because of that problem. No one commented on my wardrobe then and...
Forum: Herceptin / Tykerb 05-10-2006, 11:23 AM
Replies: 689
Views: 227,310
Posted By nancymarie
Yorkiegirl - continue to mention your side effects!

Yorkiegirl,

I feel the same way you do. I mentioned alot of my side effects to my onc last week and I got the impression too that he thought I was a hypocondriac or something.

I am...
Forum: Herceptin / Tykerb 05-10-2006, 11:23 AM
Replies: 182
Views: 20,712
Posted By nancymarie
Yorkiegirl - continue to mention your side effects!

Yorkiegirl,

I feel the same way you do. I mentioned alot of my side effects to my onc last week and I got the impression too that he thought I was a hypocondriac or something.

I am...
Forum: her2group 05-09-2006, 02:13 PM
Replies: 27
Views: 2,491
Posted By nancymarie
Started Herceptin 3 years after chemo

I have IDC, Stage IIB, ER/PR -. HER2/NEU 3+.

I had AC and Taxotere back in 2002 and finished my last treatment in 2003.

I just started my Herceptin treatments on 12/9/05 for one year at my...
Forum: Herceptin / Tykerb 05-09-2006, 01:55 PM
Replies: 689
Views: 227,310
Posted By nancymarie
My symptoms with Herceptin

I am only on Herceptin right now so no other chemotherapy or other treatment is causing these problems.

1. Very bad sinus issues: Dry nose, bleeding nose, congestion or nose dripping - I can...
Forum: Herceptin / Tykerb 05-09-2006, 01:55 PM
Replies: 182
Views: 20,712
Posted By nancymarie
My symptoms with Herceptin

I am only on Herceptin right now so no other chemotherapy or other treatment is causing these problems.

1. Very bad sinus issues: Dry nose, bleeding nose, congestion or nose dripping - I can...
Forum: her2group 04-13-2006, 06:33 AM
Replies: 11
Views: 2,500
Posted By nancymarie
Wow, I didn't know that Herceptin caused...

Wow,

I didn't know that Herceptin caused teary eyes. I had that problem a couple years ago when I was on Taxotere.

I thought of yet another symptom (although minor) but irritating!
...
Forum: her2group 04-11-2006, 11:17 AM
Replies: 31
Views: 2,086
Posted By nancymarie
30 minute sessions for me....

I get Herceptin every 3 weeks for 30 minutes each session.

-Nancy
Forum: her2group 04-11-2006, 11:15 AM
Replies: 11
Views: 2,500
Posted By nancymarie
Odd Side Effects of Herceptin

I know that alot of the gals here have mentioned the sinus problems that they have (including me) from Herceptin but I have also had the following:

- mouth sores
- acid reflux

and I'm not on...
Forum: her2group 04-04-2006, 03:51 PM
Replies: 14
Views: 1,311
Posted By nancymarie
Breezes, I was diagnosed back in 2002 and...

Breezes,

I was diagnosed back in 2002 and had most of my chemo in the 2002/2003 timeframe. I just started Herceptin in December of last year. I had to push my oncologist for it though.
...
Forum: her2group 02-27-2006, 09:36 AM
Replies: 23
Views: 3,025
Posted By nancymarie
Ayr Saline Nasal Mist

Just wanted to say thanks to those who recommended the Ayr Saline Nasal Mist. I picked up a bottle at Walmart this weekend and my nose is much better (I'm not even blowing out blood anymore and the...
Forum: her2group 02-13-2006, 12:12 PM
Replies: 10
Views: 1,314
Posted By nancymarie
Me too!

Add me to the list of those who have constant sinus problems. The inside of my nose even looks bloody from the constant blowing, etc. When I wake up in the morning my nostrils are even crusty -...
Forum: her2group 02-07-2006, 01:11 PM
Replies: 0
Views: 744
Posted By nancymarie
Smile Free Subscription: Women & Cancer Magazine

Hello!http://smileys.smileycentral.com/cat/36/36_1_39.gif

I just got my first issue of "Women and Cancer" magazine. They offer a free subscription for one year (4 issues) to patients, survivors,...
Forum: her2group 12-09-2005, 12:31 PM
Replies: 29
Views: 2,596
Posted By nancymarie
I start Herceptin Today

Robin,

I was initially diagnosed back in 2002 - IDC, Stage IIB, Her2 3+. I was in the clinical trial for Herceptin but I just got put into the control group that just got the normal chemo - AC...
Forum: her2group 11-17-2005, 11:28 AM
Replies: 6
Views: 980
Posted By nancymarie
Vicki, I am in Colorado Springs, Colorado. ...

Vicki,

I am in Colorado Springs, Colorado.

-Nancy
Forum: her2group 11-17-2005, 07:29 AM
Replies: 6
Views: 980
Posted By nancymarie
I am starting Herceptin 12/9

Vickie,

I want to be proactive as much as possible about my health care. I finished chemo back in 2003. I am HER2/NEU 3+. I discussed this with my onc and he gave me the line about "well...
Forum: her2group 11-10-2005, 06:01 AM
Replies: 28
Views: 3,402
Posted By nancymarie
Talking Waiting for insurance approval

I saw my onc yesterday and we talked about Herceptin. He gave me the same story line about how Herceptin has not been tested with those who had chemo years ago but after hearing me say that I wanted...
Forum: her2group 11-09-2005, 08:35 AM
Replies: 28
Views: 3,402
Posted By nancymarie
I am going to talk to my onc today...

Joannie,

What did you decide on?

I am HER2/NEU 3+ also, and was in the clinical trial for herceptin but got put in the control arm that did not receive herceptin. My last chemo was March...
Forum: her2group 10-28-2005, 12:08 PM
Replies: 1
Views: 634
Posted By nancymarie
Can Herceptin Be Given - about 3 years post chemo?

Hi everyone and sorry if this was posted elsewhere at this site.

I was diagnosed back in 2002 and was in the clinical trial for Herceptin that DID NOT receive Herceptin. I was devastated to be...
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