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Search took 0.01 seconds. Search: Posts Made By: Marily
Forum: her2group 09-22-2010, 08:50 PM
Replies: 139
Views: 19,532
Posted By Marily
Re: Joe passed on this evening

Christine, Danielle and Family,
As the others on this site, I am thoroughly shocked at Joe's passing. I think in my mind he would always be here coordinating and completing the Her2 community....
Forum: her2group 09-23-2009, 01:38 AM
Replies: 20
Views: 5,108
Posted By Marily
Re: Kidney issues -anyone else?

Hi again...
First to Karen, It was a common thing for my "little group of Herceptin friends"to have urinary track infections. We shared that information with our docs at that time but they just...
Forum: Herceptin / Tykerb 09-23-2009, 12:11 AM
Replies: 689
Views: 290,694
Posted By Marily
Re: Please post your two cents on Herceptin "side effects" real or perceived!

I have had very weird feeling in my teeth and sensitivity to cold especially . I have been going to my dentist about every three months since we found weird little worm like holes in a couple teeth (...
Forum: her2group 09-22-2009, 01:08 AM
Replies: 20
Views: 5,108
Posted By Marily
Re: Kidney issues -anyone else?

Hi ,
I too have been seeing changes in kidney numbers. My Onc. said don't worry but the next month the egfr went down to 30.I worried and found a nephrologist.! I have had tests and blood work...
Forum: Herceptin / Tykerb 04-15-2009, 02:30 PM
Replies: 689
Views: 290,694
Posted By Marily
To anyone haveing desensitivation for...

To anyone haveing desensitivation for Herceptin... I have had to stop my Herceptin due to two very bad reactions in the past two years with severe headache and "an outer world feeling like being...
Forum: her2group 04-15-2009, 01:47 PM
Replies: 15
Views: 5,862
Posted By Marily
HI, I remained pre- menopausal after my chemo....

HI, I remained pre- menopausal after my chemo. We tried Lupron and it just did not work..(once they gave me a double dose ouch) We finally did the oophorectomy and it was easy and with no problems...
Forum: her2group 04-14-2009, 05:47 PM
Replies: 27
Views: 3,339
Posted By Marily
Hi, my Oncologist is checking my CTC every month...

Hi, my Oncologist is checking my CTC every month since I went off both Herceptin and Aromasin...
Forum: her2group 04-14-2009, 05:15 PM
Replies: 27
Views: 3,339
Posted By Marily
Mary Anne congratulations and big smilies on...

Mary Anne congratulations and big smilies on your news... on the CTC test. go get them girl but don't overdo... ok
hugs Marily
Forum: her2group 04-09-2009, 01:46 AM
Replies: 27
Views: 3,339
Posted By Marily
Ctc test

I have been having CTC tests done each month for the past 6 months since stopping Herceptin. The normals run from 0 to 5. Up to this last month my numbers have been either 0 or 1. My Onc took me...
Forum: her2group 03-05-2009, 12:21 AM
Replies: 8
Views: 2,291
Posted By Marily
Vicky, and Brenda Thank you for the...

Vicky, and Brenda
Thank you for the information I do take the b and c vitamins, but will try increasing the b.

Hugs Marily
"Worry looks around, sorry looks back, Faith looks up.."

Nov....
Forum: her2group 03-04-2009, 02:30 AM
Replies: 8
Views: 2,291
Posted By Marily
Question to those who recently went off Herceptin

Hi, I am just about at 6 months off Herceptin. So far all the CTC COUNTS, AND ALYSA, OR SIEMENS have been in normal limits but slowly raising. What puzzles me is that after all this...
Forum: her2group 12-01-2008, 07:02 PM
Replies: 47
Views: 5,563
Posted By Marily
Thank you Jacqueline, I am going to your web...

Thank you Jacqueline, I am going to your web page now and will certainly research this. My one PT did something like this I think... appreciate your answering.
Hugs and again thank you.
Forum: her2group 12-01-2008, 12:47 AM
Replies: 47
Views: 5,563
Posted By Marily
unknown reason for vertigo

To the two "Angels" and all those who don't call themselves Angels but are...
I also have been having a bad case of vertigo. Have gone through cardiac tests, blood testing, saw an ENT, and in the...
Forum: her2group 11-26-2008, 01:08 AM
Replies: 36
Views: 4,463
Posted By Marily
Just an Update on stopping Herceptin

I met my new Oncologist last week, and although he did not know of anyone doing the CTC he said I could have it done ,... so our lab looked it up and ordered the kit (a purple and pink topped vial.) ...
Forum: her2group 10-26-2008, 06:37 PM
Replies: 11
Views: 1,946
Posted By Marily
Hello Karen, I have been on Aromasin for three...

Hello Karen, I have been on Aromasin for three years. Yes I have aches in hands and feet and spine. I take extra strength tylenol have been on NYSAIDS which worked well but I am loosing bone...
Forum: her2group 10-16-2008, 05:21 PM
Replies: 37
Views: 4,750
Posted By Marily
Kristina, Hi just a quick note I had to prove I...

Kristina, Hi just a quick note I had to prove I needed to get off Tamoxifin after three years. I was told this by a Dr at an ASCO meeting.. it took me a year to prove I was still producing hormone...
Forum: her2group 10-11-2008, 10:46 PM
Replies: 17
Views: 2,441
Posted By Marily
Lani, is the erb2 a subset under her2? I...

Lani,
is the erb2 a subset under her2? I thought erb2 was her2? So I am confused? and how do they test if it is another part of her2 gene? and they are developing meds to go against it.. or meds...
Forum: her2group 10-10-2008, 07:09 PM
Replies: 36
Views: 4,463
Posted By Marily
stopping Herceptin

Sorry, Dr. Slamon did not give me criteria for how long we need to be NED on Herceptin before he recommends we go off - He told me "Since pt has been on Herceptin since 01 with rtn- ok to stop. (may...
Forum: her2group 10-08-2008, 11:52 PM
Replies: 36
Views: 4,463
Posted By Marily
Hi, I just wrote a note in the using Bayer...

Hi,
I just wrote a note in the using Bayer her2 Alysa thread. when I started it was way at the beginning for its use my onc was always open to what I researched ... and I had no tumor markers at...
Forum: her2group 10-08-2008, 11:31 PM
Replies: 36
Views: 4,380
Posted By Marily
her2/serum test

Hello,
I have been out of commission again getting my new "neck". I now have 4 cages in my c spine from 2-3 to 6-7.
I saw Dr Slamon 8 weeks ago and stopped Herceptin after being on it over 7...
Forum: her2group 07-18-2008, 10:58 AM
Replies: 91
Views: 12,342
Posted By Marily
Hi to you all, and thank you for the kind words...

Hi to you all, and thank you for the kind words on the poem.
I just returned to Denver,from LA after seeing Dr Slamon. He gave me wonderful news. He said that in the past two years there have...
Forum: her2group 07-14-2008, 12:49 PM
Replies: 91
Views: 12,342
Posted By Marily
Dancing with Ned almost 8 years POEM

A DARKER shade of PINK

I see the ribbon’s pinkness and I ache to paint it black
No cure for those of us with “METS”, so take that ribbon back.
I watch the crowd race by me, all...
Forum: her2group 07-12-2008, 06:58 PM
Replies: 91
Views: 12,342
Posted By Marily
Audry, or anyone who knows how to reach her I...

Audry, or anyone who knows how to reach her I would love to chat with you on your Herceptin journey... I have been searching for someone who was in the trials... Hugs and live life with love and...
Forum: her2group 07-12-2008, 06:53 PM
Replies: 91
Views: 12,342
Posted By Marily
(Hi for some reason I cannot turn off the bold...

(Hi for some reason I cannot turn off the bold on this sorry...) I have been NED for almost 8 years my anniversary will be coming up soon. I was stage IV after finding a tiny lump two months...
Forum: Herceptin / Tykerb 04-22-2007, 10:16 AM
Replies: 689
Views: 290,694
Posted By Marily
Andrea, I have been on Herceptin since 2000. ...

Andrea, I have been on Herceptin since 2000. Sometimes I go up to normal with my bloodcounts but most of the time I remain under the norm. I started doing chi gong, an exercise form of tye chi,...
Showing results 1 to 25 of 71
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