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Posts Made By:
jaykay
Forum:
Herceptin / Tykerb
05-09-2024, 03:03 PM
Replies:
1
Herceptin
Views:
166
Posted By
jaykay
Re: Herceptin
Why do you think it was the Herceptin versus the other chemo drugs? Not making light of your symptoms but I don’t see how Herceptin can cause copd. Chemo contributed to my crappy nails and stomach...
Forum:
her2group
03-15-2023, 07:48 PM
Replies:
2
Reclast
Views:
2,372
Posted By
jaykay
Re: Reclast
I use reclast for osteopenia. I currently get it once every 18 months and it has helped with increased bone density. I received it more frequently during chemo but was off it for 5 years before...
Forum:
her2group
08-29-2022, 08:20 AM
Replies:
11
AndiBB
Views:
4,130
Posted By
jaykay
Re: AndiBB
I'm so sorry to hear this. Like many other members of this group, I was in awe of Andi and her journey(s). My condolences to her family and friends
Forum:
her2group
03-18-2022, 02:37 PM
Replies:
2
Verna has earned her wings.
Views:
3,190
Posted By
jaykay
Re: Verna has earned her wings.
So sorry to hear this. She fought a long fight, my sympathies to her family and friends.
Forum:
her2group
01-13-2022, 05:09 PM
Replies:
11
The party's over?
Views:
5,495
Posted By
jaykay
Re: The party's over?
Oh Pam, what a way to start the new year. I’m betting on you to celebrate your 70th in Italy in September!
Best,
Janis
Forum:
her2group
11-30-2021, 10:14 AM
Replies:
2
Silicone Breast Implant ?
Views:
2,414
Posted By
jaykay
Re: Silicone Breast Implant ?
My silicone implants are 8 years old (also double mastectomy). I have had some discomfort around my left nipple the past couple of months - I had nipple sparing mast. I do get an MRI every year and...
Forum:
Profiles In Courage
10-12-2021, 03:21 PM
Replies:
64
How many years NED? Give others hope
Views:
74,623
Posted By
jaykay
Re: How many years NED? Give others hope
8 years NED. Fingers and toes crossed. So nice to see everyone
Forum:
her2group
06-27-2021, 01:54 PM
Replies:
47
its back
Views:
17,494
Posted By
jaykay
Re: its back
Donna, hang in there. When I was going through chemo, Imodium was like eating candy - did nothing for the runs. Ask your doc for a prescription for lomotil - it is a controlled substance but works...
Forum:
her2group
06-16-2021, 08:27 AM
Replies:
12
Hello from Flori
Views:
5,545
Posted By
jaykay
Re: Hello from Flori
Flori, I’ve been thinking about you quite a lot lately and am sooo glad you’re doing remarkably well!
Congrats on the grandson and keep on keeping on!
Forum:
her2group
05-27-2021, 03:04 PM
Replies:
6
Chemo - I need to make a decision
Views:
3,814
Posted By
jaykay
Re: Chemo - I need to make a decision
Paul - The "70" I was referring to is my age. And I definitely get what you are saying. Like most people our age (and unfortunately younger), I've seen more than a few people I consider close...
Forum:
her2group
05-14-2021, 04:14 AM
Replies:
6
Chemo - I need to make a decision
Views:
3,814
Posted By
jaykay
Re: Chemo - I need to make a decision
Hi, sorry you have this decision to make but as Imani says, there are many women on this board who are still alive and living their lives with no restrictions after many years. As far as Her2+ bc,...
Forum:
her2group
04-06-2021, 01:35 PM
Replies:
5
tooth paste
Views:
3,217
Posted By
jaykay
Re: tooth paste
Biotene products - I didn't use the toothpaste but used the mouthwash. It was recommended by my oncologist's office
Forum:
her2group
03-30-2021, 02:23 PM
Replies:
47
its back
Views:
17,494
Posted By
jaykay
Re: its back
You can do this, Donna. And yes, it is such a mental game.
My thoughts are with you!
Janis
Forum:
her2group
03-03-2021, 01:43 PM
Replies:
9
Genetic Testing
Views:
4,173
Posted By
jaykay
Re: Genetic Testing
Hi - I had genetic testing after my first diagnosis and was BRCA negative. Fast forward to 2018 and a suggestion that I get re-tested since the there were more mutations tested for than BRCA in the...
Forum:
her2group
01-07-2021, 03:54 PM
Replies:
7
Finally 2021
Views:
4,809
Posted By
jaykay
Re: Finally 2021
Echoing Becky and Donna. You will always have support with this group. I also had a melanoma removed from my upper chest; actually right in the middle of my collarbone over 5 years ago. I blame...
Forum:
her2group
05-06-2020, 03:23 PM
Replies:
7
15 cancerversary
Views:
4,955
Posted By
jaykay
Re: 15 cancerversary
Happy 15th, Jean! I remember when you reached out to me 8 years ago when I recurred after 12 years of NED.
Here’s to many more cancer free years for both of us and continued development of...
Forum:
her2group
03-15-2020, 01:16 PM
Replies:
22
ENHERTU aka DS8401A
Views:
13,624
Posted By
jaykay
Re: ENHERTU aka DS8401A
Great news!
Forum:
her2group
02-29-2020, 11:13 AM
Replies:
22
ENHERTU aka DS8401A
Views:
13,624
Posted By
jaykay
Re: ENHERTU aka DS8401A
So glad to hear from you, Flori! Your strength continues to amaze me and I hope the new regimen(s) provide you with a better qol. You rock!
Janis
Forum:
her2group
02-21-2020, 10:09 AM
Replies:
12
Site problem?
Views:
6,661
Posted By
jaykay
Re: Site problem?
I am seeing “not secure” as well on my iPad using safari. I don’t recall ever seeing that it was a secure site
Forum:
her2group
12-09-2019, 02:18 PM
Replies:
5
Osteoporosis: is it caused by chemo?Not just aging?
Views:
2,963
Posted By
jaykay
Re: Osteoporosis: is it caused by chemo?Not just aging?
I’ve had osteopenia since I went through menopause 20+ years ago (pre breast cancer). Being on letrozole for many years does not help but I’m holding my own. My vitamin d levels have always been...
Forum:
her2group
12-09-2019, 02:07 PM
Replies:
11
Melanoma Biopsy when almost 5yrs NED BC.
Views:
4,841
Posted By
jaykay
Re: Melanoma Biopsy when almost 5yrs NED BC.
Hi Jessica,
Sorry you had to go though the angst of another cancer. I also had a melanoma removed 3.5 years ago. I noticed it myself, my dermatologist did the biopsy and I was shocked to hear it...
Forum:
her2group
09-10-2019, 09:20 AM
Replies:
72
Whack-a-mole next...
Views:
37,371
Posted By
jaykay
Re: Whack-a-mole next...
Great news, Flori!
Forum:
her2group
09-05-2019, 09:50 AM
Replies:
72
Whack-a-mole next...
Views:
37,371
Posted By
jaykay
Re: Whack-a-mole next...
Dear Flori,
I'm with Jessica re: doctors and their timelines. Many of us would be speaking from the grave if their timelines were valid.
Thinking of you and sending positive thoughts
xoxo...
Forum:
her2group
09-01-2019, 11:52 AM
Replies:
9
Tamoxifen - 8-10 years?
Views:
4,832
Posted By
jaykay
Re: Tamoxifen - 8-10 years?
I took Tamoxifen for 4.5 years and Femara (letrozole) for 5 years after my first bout with breast cancer. 2 years after I stopped, I had a new primary (I call it a recurrence!) tumor in my "healthy"...
Forum:
her2group
08-16-2019, 08:41 AM
Replies:
72
Whack-a-mole next...
Views:
37,371
Posted By
jaykay
Re: Whack-a-mole next...
Like everyone else you have touched - thinking of you, Flori. Hang in there!
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