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Search: Posts Made By: SpitFire
Forum: her2group 01-04-2017, 03:06 PM
Replies: 12
Views: 4,359
Posted By SpitFire
Re: What Makes HER2 Positive Cancers Unique After Treatment?

Yes, Hormone Negative, HER2 positive cancers are more likely to come back and I thought the risk for that greatly decreased after 4 years past diagnosis, but could still come back, though rare, up to...
Forum: her2group 01-04-2017, 09:19 AM
Replies: 12
Views: 4,359
Posted By SpitFire
Re: What Makes HER2 Positive Cancers Unique After Treatment?

I am asking about AFTER treatment. How does it affect your chances to get another cancer or different cancer, ect. Do HER2 Positive cancer patients need to be monitered longer than other patients...
Forum: her2group 01-04-2017, 08:27 AM
Replies: 12
Views: 4,359
Posted By SpitFire
What Makes HER2 Positive Cancers Unique After Treatment?

Is it significant AFTER treatment that a cancer was HER2 Positive? Why would it matter if your cancer was HER2 Positive in the long run?
Forum: Diet and Nutrition 12-31-2015, 02:09 PM
Replies: 8
Views: 8,575
Posted By SpitFire
Re: How does a breast cancer survivor smell nice?

My cancer doctors told me I didn't need to avoid anything, I could take whatever supplements I wanted. They could care less what I put on my skin if they saw no harm in anything else. They didn't...
Forum: her2group 12-21-2015, 03:18 PM
Replies: 4
Views: 3,850
Posted By SpitFire
Re: chemicals in new home-harmful?

You can have your walls painted with no voc paint. It is super expensive. We had to decline it. We aired out the house. We have ro water to our ice maker, drinking water and pot filler. We also...
Forum: her2group 12-17-2015, 04:02 PM
Replies: 3
Views: 7,331
Posted By SpitFire
Re: Get the best breast cancer guide that is out there - FREE

Agness - Thank you for letting us know about that book. I just received it in the email. It looks Super Informative!
Forum: her2group 12-15-2015, 05:17 AM
Replies: 0
Views: 3,273
Posted By SpitFire
Breast image screening guidelines after diagnosis

I have been told 3 different "guidelines" on breast imaging after diagnosis of breast cancer. How many different "guidelines" are there? This is what I found and am following but it is not clear. ...
Forum: her2group 12-11-2015, 05:55 PM
Replies: 19
Views: 6,859
Posted By SpitFire
Forum: her2group 12-11-2015, 12:29 PM
Replies: 19
Views: 6,859
Posted By SpitFire
Re: Vitamin D Testing Frequency

I just saw the responses! My insurance didn't even bill me for the vitamin d test, but that was the only time I got my blood tested in 2015. My family physician told me to take 5,000 iu and test...
Forum: her2group 11-18-2015, 07:03 PM
Replies: 11
Views: 4,801
Posted By SpitFire
Forum: her2group 11-18-2015, 04:53 PM
Replies: 19
Views: 6,859
Posted By SpitFire
Re: Vitamin D Testing Frequency

When I went in to get my blood tests from my family doctor, he didn't order the vitamin d test, but it was no problem and they ordered it for me. They called me today 26.9! I probably was low when...
Forum: her2group 11-18-2015, 04:41 PM
Replies: 11
Views: 4,801
Posted By SpitFire
Re: Sentinel Node Biopsy and Lymphedema Risk

How do you know if your lymph nodes were in the radiation field? I had 1 out of 2 nodes positive Largest focus is 5mm having no extracapsular extension present. This was my radiation treatment:...
Forum: her2group 11-17-2015, 07:38 AM
Replies: 11
Views: 4,801
Posted By SpitFire
Re: Sentinel Node Biopsy and Lymphedema Risk

No sauna is a HUGE problem for me! If I haven't had any problems other than the slight falling asleep feeling since my SNB, then I should be fine, right?

If I were to get lymphedema, I would...
Forum: her2group 11-16-2015, 01:14 PM
Replies: 11
Views: 4,801
Posted By SpitFire
Re: Sentinel Node Biopsy and Lymphedema Risk

Thanks! I will use my other arm for blood draws and blood pressure from now on. My left arm has always felt like it is slightly asleep ever since I had my SNB surgery, but other than that, I don't...
Forum: her2group 11-16-2015, 01:45 AM
Replies: 11
Views: 4,801
Posted By SpitFire
Sentinel Node Biopsy and Lymphedema Risk

I was told that because I had the Sentinel Node Biopsy (2 nodes), that I had No risk of lymphedema. I was told that I had No restrictions and that I could get my blood pressure and blood drawn on my...
Forum: her2group 11-04-2015, 11:05 AM
Replies: 19
Views: 6,859
Posted By SpitFire
Re: Vitamin D Testing Frequency

Before I started chemo, I asked my oncologist about vitamin D. He turned around and walked away. I told my BS and he said he wouldn't test my vitamin D levels either. I then asked my family...
Forum: her2group 11-04-2015, 08:05 AM
Replies: 19
Views: 6,859
Posted By SpitFire
Vitamin D Testing Frequency

I got my Vitamin D level tested last year after taking a lot of the supplement and it was around 80. Is it necessary to test again every year? If so, do I test it out every year for life?
Forum: her2group 10-20-2015, 11:39 AM
Replies: 49
Views: 12,790
Posted By SpitFire
Smile Re: The power of words

This is something I struggle with everyday. What Juls and Andi say is so true. You will never accomplish anything by being negative. There is more to life than what we can see.
Forum: her2group 10-19-2015, 08:58 AM
Replies: 27
Views: 16,687
Posted By SpitFire
Re: HER2 and Immunotherapy Studies for reference

agness - Thanks for the vaccine information. I believe they are capable of making vaccines for preventing breast cancer in our near future.
Forum: her2group 10-19-2015, 08:19 AM
Replies: 18
Views: 3,879
Posted By SpitFire
Re: How to find a doctor that will look out for your best interests?

Catherine - Thanks for asking. I am not going to say where I live. I want to have a safe place to talk. I get a lot of good information on this forum.
I don't need someone to "find" me another...
Forum: her2group 10-09-2015, 09:23 AM
Replies: 18
Views: 3,879
Posted By SpitFire
Re: How to find a doctor that will look out for your best interests?

Juls - You say you don't have anyone who cares? Well - there are many here!
That is why I am here. I am very grateful for the encouragement and very useful information shared on this forum. My...
Forum: Diet and Nutrition 10-07-2015, 09:04 AM
Replies: 19
Views: 8,987
Posted By SpitFire
Smile Re: Ever Expanding Waist line

Just giving my 2 cents about the weight gain/loss. If you have a low temperature, you have a low metabolism. Eating less and exercising more will not work. You can't starve yourself and and force...
Forum: her2group 10-07-2015, 08:41 AM
Replies: 18
Views: 3,879
Posted By SpitFire
Re: How to find a doctor that will look out for your best interests?

Juls and Sarah - Thanks for the encouragement. I am so confused because I have been told that my oncologist was the best over and over again by top people in the industry here. My OB/GYN who is on...
Forum: her2group 10-05-2015, 07:49 AM
Replies: 18
Views: 3,879
Posted By SpitFire
Re: How to find a doctor that will look out for your best interests?

juls - I am sorry that you can't change doctors, but I feel that they are all the same anyways.
sarah - I have done everything possible to get good doctors. There is a reason I did not chose the...
Forum: Diet and Nutrition 10-05-2015, 06:55 AM
Replies: 5
Views: 6,521
Posted By SpitFire
Re: Melatonin

donocco - Thanks for the clarificiation. I was wondering if other breast cancer patients took melatonoin as a supplement as I did. I was confused why my doctors would tell me it was safe to take. ...
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