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Search: Posts Made By: eileen
Forum: Clinical Trials 06-15-2007, 08:42 AM
Replies: 2
Views: 2,814
Posted By eileen
Phase 2 vaccine trial

Is this the same vaccine as the one given at Walter Reed which I think was the E75 vaccine. I think you need to be a specific blood type to qualify.

Eileen
Forum: her2group 06-15-2007, 08:31 AM
Replies: 10
Views: 4,491
Posted By eileen
Iodine loading test

Thanks, Vickie & Susie,

I think there is a doctor in the NY area who gives the test. Is Ioderdol the same as lugol's solution?

Can iodine supplements be harmful in any way? I feel good...
Forum: her2group 06-13-2007, 08:46 AM
Replies: 10
Views: 4,491
Posted By eileen
iodine loading test

Thanks, Vickie.
I'm going to try to find someone in the New York City area to give me the test.
My oncologist at Memorial Sloan Kettering is very conservative & won't do it.

Eileen
Forum: her2group 06-11-2007, 05:42 PM
Replies: 10
Views: 4,491
Posted By eileen
iodine loading test for iodine deficiency; mistletoe

Has anyone taken the iodine loading test for iodine deficiency? If so are you taking iodine supplements?

Also was wondering if anyone with early BC was on mistletoe as a preventative for...
Forum: her2group 06-09-2007, 09:54 AM
Replies: 11
Views: 1,534
Posted By eileen
Her2 serum test

I'm confused about what the serum test actually does. My oncologist never gave it to me.
Is this something that I should ask for when I get my blood work done? All of my tumor markers have been...
Forum: her2group 06-07-2007, 05:29 PM
Replies: 0
Views: 796
Posted By eileen
Alternative Medicine Doctor or Nutritionist In NY Area

Does anyone happen to know of any good alternative medicine doctors, nutritionists or natureopathic doctors who are knowledgeable about breast cancer in the New York City area?

Eileen
Forum: her2group 04-21-2007, 12:21 PM
Replies: 1
Views: 1,090
Posted By eileen
Confused About Vaccine

I had an interview this past week with Dr. Teresa Gilewski at Memorial Sloan Kettering regarding their Phase 1Xenogeneic HER2/neu DNA vaccine clinical trial. Only about 12 people will take place in...
Forum: her2group 04-16-2007, 08:52 AM
Replies: 3
Views: 1,250
Posted By eileen
Tykerb for Stage III BC

Does anyone know of any clinical trials for tykerb for stage III breast cancer for people who have already completed their treatment with herceptin?
Forum: her2group 04-16-2007, 08:52 AM
Replies: 3
Views: 781
Posted By eileen
Tykerb for Stage III BC

Does anyone know of any clinical trials for tykerb for stage III breast cancer for people who have already completed their treatment with herceptin?
Forum: Herceptin / Tykerb 04-16-2007, 08:52 AM
Replies: 10
Views: 4,054
Posted By eileen
Tykerb for Stage III BC

Does anyone know of any clinical trials for tykerb for stage III breast cancer for people who have already completed their treatment with herceptin?
Forum: her2group 03-21-2007, 11:09 AM
Replies: 29
Views: 2,948
Posted By eileen
Becky,

I saw my radiologist only once after a 6 month follow up. I had a lumpectomy in 2004 & see my oncologist every 4 months & my breast surgeon every 4 months (I insisted upon this because I am a very...
Forum: her2group 03-21-2007, 10:58 AM
Replies: 28
Views: 3,931
Posted By eileen
Cynthia, Grace

I think that the vaccine clinical trial given in N.Y. at Memorial Sloan & the one at Univ. of Wash. is different than the E75 trial given at Walter Reed.

The one given at Memorial is only for...
Forum: her2group 03-17-2007, 01:39 PM
Replies: 28
Views: 3,931
Posted By eileen
Different Vaccine Trials

Cynthia & All,

I don't think that the E75 Vaccine clinical trial at Walter Reed is the same clinical trial that is being offered here in N.Y. at Memorial Sloan or the one at the Univ. of...
Forum: her2group 03-17-2007, 08:49 AM
Replies: 26
Views: 3,871
Posted By eileen
thank you

Becky, Hopeful...

Thank you for your support. Guess I'm having a bad week.
I was told by the genetic counselor that I have the brca gene (even though I tested negative) & was also offered to go...
Forum: her2group 03-16-2007, 06:39 PM
Replies: 28
Views: 3,931
Posted By eileen
her2 vaccine trial

Margerie,

You said that you were currently on the clinical trial for the her2 vaccine.
How long have you been getting the vaccine?
Any side effects so far? Is the hospital you're doing the...
Forum: her2group 03-16-2007, 04:04 PM
Replies: 28
Views: 3,931
Posted By eileen
vaccine for early stagers

Barbara,

This sounds like the same trial that is being given at Memorial Sloan in New York.
I'm stage IIIA & I qualify for the trial but I'm very hesitant about going on a Phase I trial. I feel...
Forum: her2group 03-16-2007, 03:32 PM
Replies: 6
Views: 1,445
Posted By eileen
Higher rate of recurrence for brca 1/2

Hi Michelle,

Yes, I was told by the genetic counselor that I definitely have a higher rate than the average breast cancer patient for a recurrence.
Forum: her2group 03-16-2007, 02:20 PM
Replies: 6
Views: 1,445
Posted By eileen
BRCA 1 & 2

thank you kate for your encouraging words.
guess i'm having a bad "coping" week.
Forum: her2group 03-16-2007, 01:37 PM
Replies: 6
Views: 1,445
Posted By eileen
Does anyone have the BRACA 1 or 2 gene?

Even though I tested NEGATIVE twice for these genes I was told by my genetic counselor at Memorial Sloan that I did in fact have the braca gene because of my very strong family history of breast...
Forum: her2group 03-16-2007, 11:20 AM
Replies: 26
Views: 3,871
Posted By eileen
Do all HER2+ eventullay metastasize?

I was diagnosed in 10/04, had a lumpectomy in 11/04; stage 3, her2+ with 7 positive nodes; chemo, radiation & herecptin in 2005 & am taking arimidex. I Currently there are no signs of cancer & I...
Forum: her2group 03-16-2007, 11:01 AM
Replies: 28
Views: 3,931
Posted By eileen
herceptin vaccine

Does anybody know if it's better to wait for Phase II of a clinical trial so they have more information at least about the doseage?
Forum: her2group 03-15-2007, 03:28 PM
Replies: 28
Views: 3,931
Posted By eileen
vaccine for early stagers

Belinda,

I'm stage III, 7 positive nodes & I qualify for the herceptin vaccine clinical trial given here in New York at Memorial. I gave you the contact there in my earlier reply.

I'm still not...
Forum: her2group 03-15-2007, 10:23 AM
Replies: 28
Views: 3,931
Posted By eileen
vaccine

You can contact Teresa Gilewiski, M.D. here in New York at Memorial:

212 639 5451

They are definitely recruiting for Phase 1 if you quailify.

They will not pay for accommodations.
Forum: her2group 03-15-2007, 08:53 AM
Replies: 28
Views: 3,931
Posted By eileen
vaccine

there is a clinical trial going on at Memorial Sloan Kettering in New York City for a herceptin vaccine. It's phase 1 of the trial. The information is on their website.

i'm really not sure if i'd...
Forum: her2group 07-09-2006, 09:23 AM
Replies: 20
Views: 3,059
Posted By eileen
I would like to take Herceptin for more than a...

I would like to take Herceptin for more than a year but my oncologist is refusing.
Does anyone know of anyone in the New York area who would give it for more than a year? I'm currently with Memorial...
Showing results 1 to 25 of 27

 
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