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Posts Made By:
joyce lutz
Forum:
her2group
01-26-2011, 04:56 PM
Replies:
70
Help! Brain mets besides lung mets
Views:
10,922
Posted By
joyce lutz
Re: Help! Brain mets besides lung mets
I swear, I just don't understand doctors! My daughter was asked to get two tests done for her brain mets and today the onc called and said not to get the 2nd one right now and to wait a week!! I'm...
Forum:
her2group
01-26-2011, 07:33 AM
Replies:
70
Help! Brain mets besides lung mets
Views:
10,922
Posted By
joyce lutz
Re: Help! Brain mets besides lung mets
Karla - So sorry about the delay, but it sounds like it's for the best at this time. I understand the anxiety that goes along with waiting and being let down as my daughter and I have had a similar...
Forum:
her2group
01-22-2011, 06:11 PM
Replies:
70
Help! Brain mets besides lung mets
Views:
10,922
Posted By
joyce lutz
Re: Help! Brain mets besides lung mets
Jackie and Brenda - Thank you for the info! My best to you
Joyce
Forum:
her2group
01-22-2011, 09:42 AM
Replies:
70
Help! Brain mets besides lung mets
Views:
10,922
Posted By
joyce lutz
Re: Help! Brain mets besides lung mets
RICH if you see this post could you send me the link to what Trish is referring to? Thanks! Trish thank you too. My best to you
Joyce
Forum:
her2group
01-21-2011, 07:09 AM
Replies:
70
Help! Brain mets besides lung mets
Views:
10,922
Posted By
joyce lutz
Re: Help! Brain mets besides lung mets
Brenda - Thanks for doing that. What I'm tryng figure out is if they recommend the Tykerb/Xeloda combo because it works good on the brain or b/c it works good on the body mets? Supposedly tykerb...
Forum:
her2group
01-20-2011, 04:47 PM
Replies:
70
Help! Brain mets besides lung mets
Views:
10,922
Posted By
joyce lutz
Re: Help! Brain mets besides lung mets
Grace that's great! Glad the SRS went well. Hope you can get the Tykerb too! My best to you
Joyce
Forum:
her2group
01-20-2011, 05:49 AM
Replies:
70
Help! Brain mets besides lung mets
Views:
10,922
Posted By
joyce lutz
Re: Help! Brain mets besides lung mets
Hi Karla - Lots of people here are pulling for you so hang in there. I'm sure things will work out. As to my daughter not getting the Xeloda w/the tykerb - she was denied the Tykerb b/c it wasn't...
Forum:
her2group
01-18-2011, 06:20 AM
Replies:
70
Help! Brain mets besides lung mets
Views:
10,922
Posted By
joyce lutz
Re: Help! Brain mets besides lung mets
Hi Jackie - My daughter's onc has just prescribed Tykerb WITHOUT Xeloda! That's one reason I was asking the question b/c I too have always read Tykerb was prescribed WITH Xeloda, but I can't find...
Forum:
her2group
01-17-2011, 04:38 PM
Replies:
70
Help! Brain mets besides lung mets
Views:
10,922
Posted By
joyce lutz
Re: Help! Brain mets besides lung mets
I know that Tykerb was approved in combo with Xeloda for brain mets but I can't seem to find out WHY it had to be in combo w/Xeloda. Does anyone here know? Is it because the Xeloda seems to boost...
Forum:
her2group
01-16-2011, 07:11 AM
Replies:
70
Help! Brain mets besides lung mets
Views:
10,922
Posted By
joyce lutz
Re: Help! Brain mets besides lung mets
Brenda - so you feel the Xeloda is the secret to success in the Tykerb/Xeloda combo rather than the Tykerb alone? My best to you
Joyce
Forum:
her2group
01-15-2011, 10:26 AM
Replies:
70
Help! Brain mets besides lung mets
Views:
10,922
Posted By
joyce lutz
Re: Help! Brain mets besides lung mets
Well we now find out that they don't want to do the SRS LINAC procedure until they see how the tumors react to the Tykerb and he doesn't believe all 7 should be done! This is AFTER the one dr. (the...
Forum:
her2group
01-12-2011, 05:09 PM
Replies:
70
Help! Brain mets besides lung mets
Views:
10,922
Posted By
joyce lutz
Re: Help! Brain mets besides lung mets
My daughter will probably be having Novalis LINAC. Short for Linear Accelerator. It is in the Gamma, Cyber Knife family of SRS Stereostatic Radio Surgery. They say they can kill her tumors w/it...
Forum:
her2group
01-09-2011, 06:54 PM
Replies:
70
Help! Brain mets besides lung mets
Views:
10,922
Posted By
joyce lutz
Re: Help! Brain mets besides lung mets
My daughter had 2 rounds of Temodar along with Avastin for her brain mets. Unfortunately, she is experiencing progression on that treatment plan so they are now putting her on Tykerb. We are pushing...
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