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Search: Posts Made By: Shell
Forum: her2group 10-25-2007, 06:06 PM
Replies: 17
Views: 4,670
Posted By Shell
Joe, Ann-Michele Higgins' user name was...

Joe,

Ann-Michele Higgins' user name was Shell.

Kevin Higgins
Forum: her2group 08-31-2007, 02:51 AM
Replies: 34
Views: 3,628
Posted By Shell
Joe- Thanks for keeping us updated about...

Joe-

Thanks for keeping us updated about Christine. I echo the others' sentiment that I am so happy that herceptin has been her answer, along with a great team of doctors. Can't wait to hear...
Forum: her2group 08-31-2007, 02:43 AM
Replies: 7
Views: 1,879
Posted By Shell
Dina- I too was diagnosed initially in...

Dina-

I too was diagnosed initially in 2004. Xeloda worked on my mets the longest, nearly 1 1/2 years. The fall of 2007 was rough as I blew through doxil, navelbine and then the gemzar/carbo. ...
Forum: her2group 08-31-2007, 02:35 AM
Replies: 24
Views: 2,462
Posted By Shell
I'm thrilled!

Tricia-

I always look forward to your updates and was so pleased to hear your good news. What a long courageous battle you have endured.

Keep those gooey desserts coming!

Kind regards,
Forum: her2group 08-30-2007, 02:18 PM
Replies: 10
Views: 1,940
Posted By Shell
you've probably already learned what you needed...

you've probably already learned what you needed to know, but I was told the stomach issues were related to the steroid decadron I had to take for the WBR. I didn't have any problem, but many do...
...
Forum: her2group 08-30-2007, 02:12 PM
Replies: 15
Views: 2,447
Posted By Shell
Hi Irene- sorry to hear about your markers...

Hi Irene-

sorry to hear about your markers - they've never been reliable for me. You can take avastin and tykerb together - obviously the trial permits it - neither is a "chemo", I think -...
Forum: her2group 08-30-2007, 02:01 PM
Replies: 7
Views: 1,879
Posted By Shell
I had xeloda/tykerb together, but eventually...

I had xeloda/tykerb together, but eventually started to progress on them. Once the FDA approved it, we added tykerb to my regimen, which at one time was navelbine, but I progresed on the navelbine,...
Forum: her2group 08-30-2007, 01:56 PM
Replies: 18
Views: 1,750
Posted By Shell
hurray!

Maryanne-

We all look forward to hearing how you are doin, and I am delighted with the poitive turn of events. keep it up!!

Kind regards,
Forum: her2group 08-12-2007, 03:06 PM
Replies: 27
Views: 3,486
Posted By Shell
I remember my surgeon asking me this on the...

I remember my surgeon asking me this on the initial questionnaire - left handed and ER/PR- and her/2neu+++

Regards,
Forum: her2group 08-12-2007, 03:05 PM
Replies: 14
Views: 2,023
Posted By Shell
Sheila- The symptoms usually do abate once...

Sheila-

The symptoms usually do abate once you are off the treatment - I was on avastin and didn't experience the level of bleeding, but there was certainly some...

As for the decadron, that...
Forum: her2group 08-12-2007, 02:54 PM
Replies: 16
Views: 2,164
Posted By Shell
Kate- Thank you so much for taking the time...

Kate-

Thank you so much for taking the time to post - I've just finished with the WBR (too many for gamma knofe for me...) so I'm doing the decadron taper currently.

Your doctor sounds...
Forum: her2group 08-12-2007, 02:50 PM
Replies: 71
Views: 10,948
Posted By Shell
I just had a birthday, and was DELIGHTED to...

I just had a birthday, and was DELIGHTED to receive a massage coupon - spa here I come!!

Regards,
Forum: her2group 08-12-2007, 02:48 PM
Replies: 3
Views: 1,363
Posted By Shell
The trial results are not in to ascertain the...

The trial results are not in to ascertain the effectiveness of lapatinib (tykerb) with herceptin, but as you know there are on some trials commencing about this. You also note it is not US-FDA...
Forum: her2group 08-08-2007, 01:09 PM
Replies: 6
Views: 1,768
Posted By Shell
Cynthia- I'm in Phila - could you send me...

Cynthia-

I'm in Phila - could you send me more info about this?

Kind regards,
Forum: her2group 08-08-2007, 01:06 PM
Replies: 6
Views: 1,711
Posted By Shell
Ragini- if you do the doxil, be sure the...

Ragini-

if you do the doxil, be sure the co. gets you the packet with the creams, and ice packs and everything - I firmly believe they should take all options in the infusion room to lessen your...
Forum: her2group 08-08-2007, 01:03 PM
Replies: 21
Views: 2,434
Posted By Shell
hey Karen - may have missed this, but just...

hey Karen - may have missed this, but just wondering if they found the next treatment for you post doxil - I am continually amazed at the options, and we are thinking of you...

Kind regards
Forum: her2group 08-08-2007, 01:01 PM
Replies: 15
Views: 1,791
Posted By Shell
your doctor's note should resolve things for you...

your doctor's note should resolve things for you - it is a personal decision whether thserve, but certainly a doctor's note about your treatment should resolve thinkgs...

Good luck with it.
...
Forum: her2group 08-08-2007, 12:57 PM
Replies: 2
Views: 1,194
Posted By Shell
Lani- I add my thanks, as well, aothough I...

Lani-

I add my thanks, as well, aothough I am not responsive to herceptin. I recently was diagnoesed with brain mets, but my onc continues to feel the real battle for me is with the lungs. I...
Forum: her2group 08-08-2007, 12:53 PM
Replies: 17
Views: 2,007
Posted By Shell
Leea- I congratulate you like the others...

Leea-

I congratulate you like the others for doing a clinical trial - I think they are so important.

Has an advil or motrin helped with the headaches?

Kind regards,
Forum: her2group 08-08-2007, 12:47 PM
Replies: 10
Views: 1,551
Posted By Shell
Joe- Thanks for posting this - it's brought...

Joe-

Thanks for posting this - it's brought a smile to my face, and I'm sorry for once that I'm on the East Coast.

Kind regards,
Forum: her2group 08-08-2007, 12:43 PM
Replies: 17
Views: 2,574
Posted By Shell
Kate- we're thinking of you... ...

Kate-

we're thinking of you...

Regards,
Forum: her2group 08-01-2007, 02:28 PM
Replies: 6
Views: 1,711
Posted By Shell
Ragini- I'm thinking I'm as heavily...

Ragini-

I'm thinking I'm as heavily pre-treated as you!! I did not do well on doxil, but everyone is different... I have been doing well on abraxane after progressing on taxotere, so don't be...
Forum: her2group 08-01-2007, 02:21 PM
Replies: 21
Views: 2,434
Posted By Shell
Doxil did not work for me either - I hope the...

Doxil did not work for me either - I hope the next course brings you comfort...

Regards,
Forum: her2group 08-01-2007, 02:15 PM
Replies: 28
Views: 2,775
Posted By Shell
Kate- I know this is such a tough time for...

Kate-

I know this is such a tough time for you. Believe it or not, the brain MRI is easier to deal with than the lung mets. One thing at a time. Continue with the testing for the brain MRI,...
Forum: her2group 08-01-2007, 02:06 PM
Replies: 24
Views: 3,003
Posted By Shell
hi, swanky- your supraclavicular nodes only...

hi, swanky-

your supraclavicular nodes only puts you at stage IIIC, not 4. Welcome here, there is a wealth of knowledge, and your trial sounds interesting. Keep us posted - will you be having a...
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