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Forum: Clinical Trials

10-13-2010, 09:35 AM

Replies: 104

Neratinib Clinical Trial

Views: 38,573

Posted By KristyAnn

Re: Neratinib Clinical Trial

I just finished the trial on Oct 7- I had severe side effects so we knew I was on the real drug, was dose reduced twice and finally managed at 160 mg (4 pills)- I had diarrhea until the last month...

Forum: Clinical Trials

09-12-2010, 05:35 PM

Replies: 104

Neratinib Clinical Trial

Views: 38,573

Posted By KristyAnn

Re: Neratinib Clinical Trial

I am on the early stage trial and will actually finish on Oct 7. I take 160 mg after being dose reduced twice due to severe diarrhea which resulted in really low potassium levels. I have not had any...

Forum: Clinical Trials

05-18-2010, 08:55 AM

Replies: 104

Neratinib Clinical Trial

Views: 38,573

Posted By KristyAnn

Re: Neratinib Clinical Trial

I am approaching 8 months on the trial and I am definitely on the drug- had to be dose reduced twice to get to a tolerable level. My doc sees the side effects as knowing you are on the real deal but...

Forum: Clinical Trials

03-02-2010, 03:10 PM

Replies: 104

Neratinib Clinical Trial

Views: 38,573

Posted By KristyAnn

Re: Neratinib Clinical Trial

I have heard that too- all I really understand is that Herceptin blocks Her2 and neratinib blocks other HER receptors. My onc mentioned that many times when they have a HER2+ person with a recurrence...

Forum: Clinical Trials

01-12-2010, 01:41 PM

Replies: 104

Neratinib Clinical Trial

Views: 38,573

Posted By KristyAnn

Re: Neratinib Clinical Trial

I take the 160 mg all at once in the morning!

3 normal days in a row- this looks promising!

Kristy

Forum: Clinical Trials

01-11-2010, 12:54 PM

Replies: 104

Neratinib Clinical Trial

Views: 38,573

Posted By KristyAnn

Re: Neratinib Clinical Trial

Im not sure of the mechanism of the diarrhea but nothing I tried could control it. IF you have side effects on neratinib they normally tell you to eliminate dairy as it seems to make everything a lot...

Forum: Clinical Trials

01-08-2010, 12:10 PM

Replies: 104

Neratinib Clinical Trial

Views: 38,573

Posted By KristyAnn

Re: Neratinib Clinical Trial

Kriss,
I started the trial on Oct 7 and have the violent side effects like you did AND I ended up with severly depleted potassium and magnesium from the diarrhea. They found all that at my 1 month...

Forum: her2group

11-29-2009, 06:05 AM

Replies: 47

Neratinib Trial 09

Views: 4,815

Posted By KristyAnn

Re: Neratinib Trial 09

There is a trial for Stafe 3 and 4, but they recently opened a trial for Stage 1 and 2, NED, women who have finished Herceptin within 24 months- looking to see if neratinib can help prevent...

Forum: her2group

11-23-2009, 11:42 AM

Replies: 47

Neratinib Trial 09

Views: 4,815

Posted By KristyAnn

Re: Neratinib Trial 09

The most common side effect is diarrhea- in my case severe diarrhea but I dont think my severity is all that common. Ive been on since Oct 7 and am just now getting the diarrhea under management- I...

Forum: her2group

11-18-2009, 01:12 PM

Replies: 47

Neratinib Trial 09

Views: 4,815

Posted By KristyAnn

Re: Neratinib Trial 09

Hi Mary Anne,
I am in the trial at the Tyler Cancer Center in Tyler, Texas- my onc is very active and last time I saw her, she told me she had the most patients in the trial at that time- she is...

Forum: her2group

11-16-2009, 01:29 PM

Replies: 47

Neratinib Trial 09

Views: 4,815

Posted By KristyAnn

Re: Neratinib Trial 09

Hello Everyone,
I am new to the boards and am in the neratinib trial- I started Oct 7. We are pretty sure I am getting the real drug because I am dealing with severe side effects- but we are working...

Showing results 1 to 11 of 11

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