HonCode

Go Back   HER2 Support Group Forums > Search Forums
Register Gallery FAQ Members List Calendar Search Today's Posts Mark Forums Read

Showing results 1 to 25 of 422
Search took 0.07 seconds.
Search: Posts Made By: Pamelamary
Forum: her2group 05-10-2018, 09:24 PM
Replies: 3
Views: 237
Posted By Pamelamary
Re: When should we consider switching Oncologists

Hi Cathy,
I think there are two important things to consider in regard to choice of oncologist - the personal trust/communication factor and an up to date awareness of current developments in the...
Forum: her2group 05-10-2018, 12:50 AM
Replies: 71
Views: 5,240
Posted By Pamelamary
Re: almost 14 years NED breast cancer and apparently it's back in my lungs

Thanks Cathy - a great article, summarising the latest advances. Any way you can provide a direct link? I would love to share with my Aussie groups, but am a bit of a Luddite.
Best wishes..... Pam
Forum: her2group 05-10-2018, 12:47 AM
Replies: 17
Views: 631
Posted By Pamelamary
Re: Cancer 'n Me

Dear Flori,
Your spirit is amazing! I love the humour with which you face even bad problems. It's what keeps us sane. Good luck with the lung stab - will be thinking of you.
Best wishes..... Pam
Forum: her2group 04-17-2018, 03:57 AM
Replies: 4
Views: 850
Posted By Pamelamary
Re: stage 4 ladies, can use some hope

Hi there,
I am 6 years on and living well. Recently heard from a woman on an Australian forum who is 17 years Stage IV. Quite a few old hands on this too.
Yes, there is always the uncertainty, but...
Forum: her2group 03-26-2018, 12:09 AM
Replies: 39
Views: 4,233
Posted By Pamelamary
Re: Kadcyla n me

Keep strong, Flori!
Wishing all the best for you..... Pam
Forum: her2group 03-24-2018, 10:05 PM
Replies: 13
Views: 5,261
Posted By Pamelamary
Re: Anyone Stage IV De Novo With 10+ Years NED?

Whonoze, you are my heroine! 11 years of Herceptin! I have had 6 years of the same and am stable, living well. Not de novo though.
Best wishes to you for many more years..... Pam
Forum: her2group 03-15-2018, 10:45 PM
Replies: 71
Views: 5,240
Posted By Pamelamary
Re: almost 14 years NED breast cancer and apparently it's back in my lungs

So sorry to hear this, Cathy. I hope you are able to start treatment quickly and that it is kind to you - but tough on those mets!
Best wishes..... Pam
Forum: her2group 03-10-2018, 02:08 PM
Replies: 33
Views: 3,385
Posted By Pamelamary
Re: Cyberknife or Whole Brain?

Good luck with the cyber knife procedure. Might be worth finding out about the Her2 Climb study, with ONT 380.
Best wishes.... Pam
Forum: her2group 03-09-2018, 02:50 PM
Replies: 39
Views: 4,233
Posted By Pamelamary
Re: Kadcyla n me

Sending love and support from Australia, Flori!
Forum: her2group 03-03-2018, 08:30 PM
Replies: 4
Views: 1,841
Posted By Pamelamary
Whoops!

So recently celebratory, but I have just found out that I have fractured a bone in my foot. Too many years of Denosumab and Zometa? So now I am the lucky owner of a stylish black moon boot and am...
Forum: her2group 02-28-2018, 10:40 PM
Replies: 18
Views: 2,487
Posted By Pamelamary
Re: Scared and Confused

Katherine,
No experience of brain mets, but there are many others on this forum who should be able to chime in. Also search the threads. There is a lot of hope out there, but I can only imagine how...
Forum: her2group 02-19-2018, 11:57 PM
Replies: 39
Views: 4,233
Posted By Pamelamary
Re: Kadcyla n me

Ah Flori - looks like nothing is ever easy! Have heard the SE's settle down after a while and that sometimes it can cause a flare-up, ( as can many new treatments). Soldier on - not much choice...
Forum: her2group 02-15-2018, 11:31 PM
Replies: 6
Views: 2,158
Posted By Pamelamary
Re: Trends in tumor markers

I try to ignore such small fluctuations in the tumour markers. When I had progression (bones to liver), my markers soared! Try not to worry too much and , when in doubt, check it out with your...
Forum: her2group 02-12-2018, 12:14 AM
Replies: 11
Views: 2,348
Posted By Pamelamary
6 years Stage IV.

Tomorrow is my 6 year Stage IV cancerversary. Today had scans and my kind oncologist emailed me the results - all still stable! Thank the fates (and Slamon) for Vitamin H! While 2012 was a very bad...
Forum: her2group 02-07-2018, 12:10 AM
Replies: 31
Views: 4,632
Posted By Pamelamary
Re: Need input, KADCYLA or TAS116?

Good luck with the Kadcyla! Many have got a long time from this, without too many side-effects. It's my next step, even though I dropped out of the original Marianne trial.
Best wishes.... Pam
Forum: her2group 02-03-2018, 12:11 AM
Replies: 16
Views: 2,807
Posted By Pamelamary
Re: When to consider ending treatment?

A bit depressing though, Paul. Sometimes I feel "survivor guilt" and others, I just wish it was over - the treatment, I guess i mean. So grateful it is working and hope new advances are equally...
Forum: her2group 02-01-2018, 02:11 AM
Replies: 4
Views: 2,297
Posted By Pamelamary
Re: Stealth 22% price rise on herceptin took place in July!

Oh dear - fake news? Sorry for all you US women who have to consider this.
Best wishes... Pam
Forum: her2group 02-01-2018, 02:09 AM
Replies: 16
Views: 2,807
Posted By Pamelamary
Re: When to consider ending treatment?

Colleen, I feel for you - here in Australia, Herceptin is provided at no cost so I am nearly 6 years on. System isn't perfect by any means though as I can't get free access to Perjeta. Sometimes I...
Forum: her2group 01-23-2018, 11:13 PM
Replies: 15
Views: 2,884
Posted By Pamelamary
Re: News old or new -- i recently found out

Thanks Andi - very sad news indeed. Condolences to Michka's family and friends.
Forum: her2group 01-17-2018, 11:00 PM
Replies: 40
Views: 8,604
Posted By Pamelamary
Re: Amy? (Mtngrl)

Such sad news. I have known Amy through this forum for about 5 years. During this time, she has been inspirational - always reaching out to others and remarkably stoic about her own situation. Too...
Forum: her2group 11-22-2017, 11:51 PM
Replies: 25
Views: 5,127
Posted By Pamelamary
Re: Senior Member Check-In!

!3 years since diagnosis and almost 6 years at Stage IV. So grateful for the support and information - and for Vitamin H!
Best wishes to all..... Pam
Forum: her2group 11-22-2017, 11:48 PM
Replies: 6
Views: 2,770
Posted By Pamelamary
Re: 6 Years Out

Congratulations on so many levels! May you and your miracle baby continue to thrive!
Forum: Herceptin / Tykerb 11-07-2017, 11:50 PM
Replies: 2
Views: 999
Posted By Pamelamary
Re: Perjeta with Herceptin and taxol second time round

Hi Ricci,
Perjeta and Herceptin together seems to be standard of care these days. I think it is fine second time round, though in Australia it is not necessarily funded for second line. Are you...
Forum: her2group 11-01-2017, 11:04 PM
Replies: 15
Views: 4,007
Posted By Pamelamary
Re: Another year

Great news Jackie! I am just a little behind you.... May Herceptin continue to work for us for a long time!
Best wishes.... Pam
Forum: her2group 10-29-2017, 04:13 PM
Replies: 13
Views: 2,727
Posted By Pamelamary
Re: Any good chemos I could try?

Hi again, Amy,
Which new Her2 drug might you be trialling? Good luck with the new treatment plan... Pam
Showing results 1 to 25 of 422

 
Forum Jump

All times are GMT -7. The time now is 11:52 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2018, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007
free webpage hit counter