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Search took 0.06 seconds. Search: Posts Made By: supermehra
Forum: her2group 05-10-2008, 12:38 AM
Replies: 16
Views: 1,801
Posted By supermehra
Unhappy Mom passes away

All,

This will probably be my last post here. I wish to thank all of you for the excellent information and support I received here.

After surviving 7 years, Mom finally passed away on 4th May....
Forum: her2group 03-18-2008, 08:40 AM
Replies: 0
Views: 908
Posted By supermehra
The EnGeneIC Promise

Watched an interesting program on TV talking of an Australian Drug Discovery company called EngeneIC that has developed a nano-particle (derived from bacteria) that enters cancer cells and delivers a...
Forum: Herceptin / Tykerb 01-31-2008, 05:18 PM
Replies: 11
Views: 2,241
Posted By supermehra
Herceptin + Carboplatin

Our onco has suggested carbo instead of navelbine. Any of you have had success on this combo for fairly advanced situation like our? thx.
Forum: Herceptin / Tykerb 01-29-2008, 06:35 AM
Replies: 11
Views: 2,241
Posted By supermehra
Vanessa thanks. The big concern for us is that...

Vanessa thanks. The big concern for us is that the Brain lesion has come back despite Tykerb which was the molecule supposed to traverse the BBB. Our onco feels that since it has failed, no point...
Forum: Herceptin / Tykerb 01-27-2008, 06:05 PM
Replies: 11
Views: 2,241
Posted By supermehra
Gemma, thanks that is very encouraging. What is...

Gemma, thanks that is very encouraging. What is your her2, er, pr status? Did your doctor talk to you about Tykerb+Herceptin? My mother has a brain lesion and herceptin does not penetrate the brain,...
Forum: Herceptin / Tykerb 01-27-2008, 06:03 PM
Replies: 11
Views: 2,241
Posted By supermehra
Donna, thank you for your words... was really...

Donna, thank you for your words... was really depressed with the present situation with so much hope on T+X. For the first time in 7 years felt we had slipped into the "running out of options"...
Forum: Herceptin / Tykerb 01-27-2008, 06:28 AM
Replies: 11
Views: 2,241
Posted By supermehra
Progression on Tykerb+Xeloda in 6 months

Bad news for my Mom... Wanted to share here our experience:

History: her2 3+, ER-, PR- diagnosed in 2001... has had taxol, herceptin, gamma knife, RT twice 40, brain surgery.

Prior to...
Forum: Herceptin / Tykerb 08-09-2007, 04:46 AM
Replies: 16
Views: 3,448
Posted By supermehra
Tykerb + Xeloda seems to be working for my mom....

Tykerb + Xeloda seems to be working for my mom. She has been on Tykerb for 4 months and Xeloda 3.

Prior to this round of chemo, she had a large metastatic lesion on the sternum and had just been...
Forum: Herceptin / Tykerb 08-09-2007, 04:28 AM
Replies: 10
Views: 1,971
Posted By supermehra
Apparently, Epsolin also makes a difference....

Apparently, Epsolin also makes a difference. Decadron can usually continue, but they take the Tykerb dose up. The logic has been that Epsolin (Dilantin) and Dec metabolizes the Tykerb faster... hence...
Forum: Articles of Interest 08-09-2007, 04:21 AM
Replies: 2
Views: 1,074
Posted By supermehra
Breathalyzer Can Detect Breast Cancer

Technology from Defense that could be useful for detecting cancers; Interesting reading. http://www.popularmechanics.com/blogs/science_news/4220196.html
Forum: her2group 07-13-2007, 07:54 PM
Replies: 9
Views: 2,014
Posted By supermehra
Thanks all. The update is like this: 1....

Thanks all. The update is like this:

1. Tykerb now nearing 3 months; Xeloda 3 cycles complete
2. The therapy is 21 day per cycle where she has 2 weeks xeloda and then one week break; tykerb...
Forum: her2group 07-13-2007, 07:40 PM
Replies: 9
Views: 2,014
Posted By supermehra
Adriana, Yes, Mom had 21 days of...

Adriana,

Yes, Mom had 21 days of radiotherapy for the sternum. It had cleared up and was clean for some time - 2 yrs. It seems to react well on chemo. After 3 cycles of Xeloda+Tykerb she is now...
Forum: her2group 06-06-2007, 06:17 AM
Replies: 9
Views: 2,014
Posted By supermehra
And Liver mets?

Anne, thanks for this. Question on liver mets - Avastin & Xeloda trials is for liver?

Anyone know what the stadard treatment course for liver is?

Thanks,
Sachin
Forum: her2group 06-04-2007, 01:11 AM
Replies: 9
Views: 2,014
Posted By supermehra
Thumbs down Liver & Sternum mets after FAC, Herceptin, Xeloda, Tykerb

Hi,

This is on behalf of my mom:

HER2+++ er/pr-
Rt. Breast Primary 2001 Oct.
Surgery followed by FAC
Mets to Sternum 2004
Treated with Taxol, Herceptin (6 months only) + Rad
Single Brain...
Forum: her2group 04-12-2007, 08:15 AM
Replies: 11
Views: 1,687
Posted By supermehra
Post gamma radiation effects & finally surgical excision

Single brain met discovered 9 months ago 3 cms in size - came up suddenly as previous 9 month old MRI was clear.

Treated with Gamma, probably wrong decesion as the size was too big... but they...
Forum: Herceptin / Tykerb 04-12-2007, 02:37 AM
Replies: 38
Views: 5,854
Posted By supermehra
3 weeks process

I got my 30 day supply delivered yesterday after 3 weeks of co-ordinating with a doctor and a pharmacy... I paid for my supply.

Fairly hassle free... starting soon... need to undertake excision...
Forum: her2group 03-20-2007, 06:27 AM
Replies: 4
Views: 1,246
Posted By supermehra
Thanks for this link... lot of good info. I am...

Thanks for this link... lot of good info. I am going to try this on my Mom as early as 2 weeks to reduce existing brain lesion... Will know in 30 days how it works out.
Forum: her2group 03-03-2007, 09:05 AM
Replies: 11
Views: 1,911
Posted By supermehra
Esther, Thanks for sharing this info. I am...

Esther,

Thanks for sharing this info. I am curious on what your onco said (if anything at all) for people who already have brain met(s)?

Thanks,
Sachin
Forum: her2group 03-02-2007, 03:36 AM
Replies: 5
Views: 1,239
Posted By supermehra
The herceptin in the spine sounds interesting......

The herceptin in the spine sounds interesting... couldn't find anything on google... any reference sites?
Forum: her2group 03-02-2007, 03:34 AM
Replies: 5
Views: 1,239
Posted By supermehra
PET Scan advised

First many thanks all - especially Saurabh Kapoor who actually called me the other day to discuss mom's case.

Met the radiologist today and they hve advised a CT-PET to get a clearer view about...
Forum: her2group 02-28-2007, 01:52 AM
Replies: 5
Views: 1,239
Posted By supermehra
Advice for Her2/neu 3+, Solitary Brain Met growing despite Gamma Knife

Hi,

I am seeking to help my Mother who is 59 years old. We live in New Delhi, India. Treatment here is quite good, however, often doctors are not as forthcoming as the west (mostly cause they see...
Forum: her2group 02-28-2007, 12:52 AM
Replies: 2
Views: 1,265
Posted By supermehra
Lapatanib not yet commercial

Hi,

I was trying to get my mom on the Lapatanib trials here in India but was informed that the drug has now been submitted for approval and no fresh trials are being conducted.

Is this...
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