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Search: Posts Made By: annettchen
Forum: her2group 06-07-2016, 06:10 PM
Replies: 36
Views: 11,746
Posted By annettchen
Re: 12 years Stage 4 - Still A-OK

Hi Mamacze / Kim,

happy, happy birthday! You inspire me - as you did when I was first diagnosed a bit over 2 years ago and completely off my rocker with fear.
I hope I can do what you're doing -...
Forum: her2group 04-09-2016, 01:06 PM
Replies: 6
Views: 3,240
Posted By annettchen
Re: Stage 4, need more options

I believe that by the book, TDM-1 is in order in such a case - it's second line when Herceptin / Perjeta fail you in the body (based on what my oncologist says - mind you, I'm in Canada, I believe...
Forum: her2group 01-12-2016, 04:00 PM
Replies: 20
Views: 5,198
Posted By annettchen
Re: Yan Yan is in heaven

I am so sorry. And so tired of this sickness. It's not fair.
I feel for her family.
Forum: her2group 01-07-2016, 09:04 PM
Replies: 35
Views: 12,351
Posted By annettchen
Re: Working thread - what do you think the HER2+ standard of care should be really?

Just a quick one re brain scans and lymph node involvement... I did not have cnfirmed lymph node involvement (the tisseu thatvwas taken out as sentinel turned out to not be a lymph node at all). It...
Forum: her2group 01-06-2016, 02:30 PM
Replies: 14
Views: 5,175
Posted By annettchen
Re: PSA: Get your brain scanned

@agness

I may be able to affort treatment outside Canada, but within limitations. We're definitely not millionaires. And:

1. Given they seem to multiply every time we take a look, my...
Forum: her2group 01-06-2016, 10:03 AM
Replies: 14
Views: 5,175
Posted By annettchen
Re: PSA: Get your brain scanned

I live in Canada - Toronto.

They transferred me to Sunnybrook (Dr. Sahgal) who is said to be a capacity in the field. He said he was going to do SRS up to 10 lesions. I was at 9 with the initial...
Forum: her2group 01-05-2016, 06:09 PM
Replies: 14
Views: 5,175
Posted By annettchen
Re: PSA: Get your brain scanned

Agreed. I asked, begged and threatened - my onc did not give me a brain scan. So I went to my family doc, who is the gold star of doctors - and he did. They have found 15 brain mets (albeit small...
Forum: her2group 12-15-2015, 02:36 PM
Replies: 15
Views: 5,512
Posted By annettchen
Re: The metastatic breast cancer alliance

I'm in there as well - not sure they intended to have people from "north of the border", but I did fill in the form, and I'm "de novo"... It seems to make so much sense - to finally at least collect...
Forum: her2group 12-14-2015, 09:41 PM
Replies: 12
Views: 3,782
Posted By annettchen
Re: Suspicion of many scattered brain mets

Hi Agness,

thank you. I live in Canada (GTA). A little bird told me that apparently 2 other women managed to get IT Herceptin in Toronto. That is what I will request from my onc on Wednesday, and...
Forum: her2group 12-14-2015, 09:10 PM
Replies: 12
Views: 3,782
Posted By annettchen
Re: Suspicion of many scattered brain mets

Unfortunately no good news here. Brain mets confirmed. Two 5 mm ones in the cerebellum (still horseback riding, though, which I find kind of amazing), and apparently a scattering of "points that...
Forum: her2group 12-13-2015, 10:21 PM
Replies: 40
Views: 12,620
Posted By annettchen
Re: Karen has moved on

This is too sad. RIP Karen. I feel so bad for her family and friends. It is painful.

Annette
Forum: her2group 12-12-2015, 05:54 PM
Replies: 4
Views: 3,272
Posted By annettchen
Forum: her2group 12-09-2015, 07:47 PM
Replies: 12
Views: 3,782
Posted By annettchen
Unhappy Suspicion of many scattered brain mets

Hi there,

Had a CT scan of the brain. They now sugegst a follow up MRI as the CT scan was "suggestive of many, small scattered brain mets". Trying to get the MRI scheduled ASAP to get clarity, but...
Forum: her2group 12-03-2015, 07:24 PM
Replies: 384
Views: 97,536
Posted By annettchen
Re: Calling all stage iv sisters

Hi Tracy,
so sorry you're back in this club... no one needs this. Not sure whetehr you heard back on your question elsewhere, but I had 6 cycles of Taxotere, Herceptin and Perjeta (at I believe 80%...
Forum: Breast Cancer Newsfeed 11-20-2015, 07:05 PM
Replies: 4
Views: 2,390
Posted By annettchen
Forum: her2group 10-15-2015, 10:23 AM
Replies: 18
Views: 2,378
Posted By annettchen
Re: Saygoon is a Spirit

So sorry to hear this. My condolences to her family.
I hate this disease.
Forum: her2group 10-14-2015, 08:03 PM
Replies: 5
Views: 2,151
Posted By annettchen
Re: a cure for 90% of cancers??????????

Yes, it's yet another venue and sounds promising, thanks for posting, Lani. If you read thru what they're currently seeing with mice, it's not a cure, though. It seems to slow down and partially...
Forum: her2group 09-29-2015, 09:44 AM
Replies: 5
Views: 2,810
Posted By annettchen
Re: breaking news from ASCO--new drug penetrates BBB , effectively combines w TDM1,is

Thanks Lani, this website and your posts specifically are always a source of hope!
Thank you so much for spending your time researching and sharing!
Forum: her2group 08-07-2015, 08:09 PM
Replies: 384
Views: 97,536
Posted By annettchen
Talking Re: Calling all stage iv sisters

I guess I'm not really that long term yet, but here goes: I got scan results back today - there's still inactive scarring in my bones (T10/11), but otherwise, I got a clean scan - nothing in the...
Forum: her2group 06-25-2015, 07:31 PM
Replies: 39
Views: 5,604
Posted By annettchen
Re: 10 yrs brain mets - still NED ...

Thank you so much for sharing! It gives so much hope! Very, very happy for you!
Forum: her2group 06-23-2015, 07:46 PM
Replies: 12
Views: 1,837
Posted By annettchen
Re: Feeling Blessed

I am very, very happy for you! Just keep going, day after day after day!
Forum: her2group 06-14-2015, 03:36 PM
Replies: 3
Views: 1,182
Posted By annettchen
Re: Phase II MARIANNE trial results--T-DM1 treatment not superior to herceptin+taxane

But, you do not loose your hair and Taxanes (I had Docetaxel every three weeks) can be quite vicious in terms of side effects. So not sure if I'd had the choice I would not have opted for TDM-1. On...
Forum: her2group 06-10-2015, 08:35 AM
Replies: 13
Views: 1,777
Posted By annettchen
Re: RedWolf/Penny Is In Hospice

Praying for peace and that her faith will carry her and her family. So sad.
Forum: her2group 05-20-2015, 10:13 AM
Replies: 3
Views: 1,025
Posted By annettchen
Re: Anyone in Alberta, Canada?

I'm in Canada, but Toronto, so not close by. But I am member of a FB group especially for Canadians with MBC - he or she might want to join that group? I'm sure there's people from the Alberta area...
Forum: her2group 05-19-2015, 11:11 AM
Replies: 103
Views: 12,487
Posted By annettchen
Re: Please, Lord

Penny, I'm so sorry. Praying for you. Miracles happen.
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