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Search: Posts Made By: Joy
Forum: her2group 04-29-2009, 05:08 PM
Replies: 23
Views: 3,919
Posted By Joy
Wednesday night prayers coming from me too

It is funny how quickly we can gain a habit. At least this is a healthy one. Every wednesday, once i realize it is wednesday-you know how that is-i hope, I kick it in for all of us.

I have been...
Forum: her2group 04-01-2009, 10:21 AM
Replies: 12
Views: 2,626
Posted By Joy
Hi gang

I have missed you all. I had to take a break for two reasons. The first because I was without internet again (those bills, you know) and because I just needed a cancer break-duh-don't we all.

I...
Forum: her2group 03-04-2009, 08:42 AM
Replies: 34
Views: 3,874
Posted By Joy
Thank you All and Becky, Mary Jo...

brush up on your Spanish cause I like the way you are thinking!!!
Forum: her2group 03-03-2009, 03:43 PM
Replies: 34
Views: 3,874
Posted By Joy
well color me surprised

Thank you so much for all the vibes-i think they helped. The E/C/H combo has caused regression of liver activity by 30-40%. I am pleased, as is the doc. So since I had 4 Epirubicins recently and 4...
Forum: her2group 03-03-2009, 11:13 AM
Replies: 34
Views: 3,874
Posted By Joy
In 25 minutes

I go see the onc about my latest CT from a week ago. I have had 4 rounds of Epirubicin/Cytoxan/Herceptin for the stupid liver business. My stomach is doing flip-flops. I just hate these visits and...
Forum: her2group 03-03-2009, 11:05 AM
Replies: 127
Views: 14,930
Posted By Joy
lots of love

to all of you Eric. I think your continued research and tenacity have potential to help this situation. Not to mention the power of love, which you have exhibited so beautifully for so long. I am...
Forum: her2group 03-03-2009, 11:02 AM
Replies: 26
Views: 3,407
Posted By Joy
You are always in my good thoughts

but I will amp it up today. I, too, think things sound very good for you and I am TH-rilled that this has gone so well for you. DM-1 gave me headaches more so than plain old herceptin. I am glad...
Forum: Herceptin / Tykerb 02-12-2009, 09:12 AM
Replies: 8
Views: 1,704
Posted By Joy
Glad you brought this up

and happy to see the responses. My onc had also said after two years it is worth a try. I feel like we are so alike in these things. I am currantly on Epirubicin (basically...
Forum: her2group 02-12-2009, 09:04 AM
Replies: 19
Views: 2,434
Posted By Joy
Thank you Mary Ann

For bringing attention to a special day. Happy Day to you Kim! May this year bring so much goodness to you and yours.
Forum: her2group 02-12-2009, 09:02 AM
Replies: 3
Views: 1,488
Posted By Joy
Can I just say...

That checking in today was such a pleasure. Laurie-he is beautiful and perfect, must be like his parents and CONGRATULATIONS! Those newborn days are so special and I hope you relish it and soak it...
Forum: her2group 02-12-2009, 08:56 AM
Replies: 13
Views: 2,037
Posted By Joy
thinking of you both

Just wanted to reaffirm the herceptin decision as data shows it still helps despite progression (my situation currently). And I wanted to say that you and Caryn are such a team, such fighters and my...
Forum: her2group 02-09-2009, 11:13 AM
Replies: 32
Views: 4,002
Posted By Joy
Yay!

You are always one of my beacons of hope Flori and I am so very happy for you and your brains! You deserve NED! Thank you for sharing and ENJOY!
Forum: her2group 02-09-2009, 11:11 AM
Replies: 69
Views: 9,770
Posted By Joy
of course

extra prayers coming your way! WE will be waiting to hear!
Forum: her2group 02-09-2009, 11:09 AM
Replies: 11
Views: 1,651
Posted By Joy
Just agreeing with everyone else. I don't have...

Just agreeing with everyone else. I don't have any kind of "vibe" that this is over for you at all. I think seeking help at the other institutions is wise and necessary. I have good feelings and...
Forum: her2group 02-09-2009, 11:07 AM
Replies: 108
Views: 11,993
Posted By Joy
just wanted to say

that I hope you are finding some time to care for yourself as you are taking such great care of your parents. It is so heartwarming-all that you are doing. I just want you to know that we are out...
Forum: her2group 02-06-2009, 11:00 AM
Replies: 30
Views: 3,734
Posted By Joy
Hi guys

I'm here and thank you for thinking about me. I have been in a physical and mental funk for awhile. I definitely feel fatigued from E/C and I don't like it at all. Last week I developed a really...
Forum: her2group 01-08-2009, 06:54 AM
Replies: 108
Views: 11,993
Posted By Joy
anxiously waiting

for any news and sending lots of love to you and your mom.
Forum: her2group 01-07-2009, 04:54 PM
Replies: 14
Views: 2,110
Posted By Joy
you guys are so quick

Thank you for the responses! I haven't been having a lot of pain, which I should've mentioned. Yesterday after weekly H, I had a smidge and then after checking the boards here, I started thinking...
Forum: her2group 01-07-2009, 12:14 PM
Replies: 14
Views: 2,110
Posted By Joy
a couple of random questions

My busy little brain is always generating those and I know there aren't always answers, but I am asking anyway. When drugs cause pain at the tumor site, is that a sign that they are working or is it...
Forum: Herceptin / Tykerb 01-07-2009, 12:01 PM
Replies: 17
Views: 3,175
Posted By Joy
I so empathize

Julie, I really understand your frustration and pain, emotional that is. Just when some of our hopes and dreams are coming true-cancer reaches in and sucks some of the joy out of it. It makes me...
Forum: her2group 01-01-2009, 12:37 PM
Replies: 9
Views: 1,722
Posted By Joy
Having hope for all in 2009

I wanted to start the new year by expressing my absolute pure love for all of you! This is a swelling from my heart that I feel quite often and felt that it should be shared. Please spend your New...
Forum: her2group 01-01-2009, 12:09 PM
Replies: 12
Views: 1,366
Posted By Joy
To your whole family

Thank you for your well put wishes and for all you have done to build this community and continue to grow it with compassion and knowledge. My wishes for your family's health and prosperity run deep!
Forum: her2group 12-20-2008, 10:29 AM
Replies: 13
Views: 1,416
Posted By Joy
Thank you

Your post is so exciting and I am so happy for you. In addition, and this speaks to the nature of this website, you gave me hope today. I needed that. So for what it is worth, your news is a great...
Forum: her2group 12-18-2008, 08:19 AM
Replies: 35
Views: 2,296
Posted By Joy
Marie!

I ALWAYS pray for your strength as well as Ed's health. You two need each other. So consider it all covered. Ed-kick those buggers out of there! Marie-stay strong and find what makes you happy-you...
Forum: her2group 12-08-2008, 11:07 AM
Replies: 24
Views: 2,084
Posted By Joy
so very happy to hear

Hi Chrisy, I am elated for your news! I hope you are too. And I hope you are caught up on breathing and caloric intake-the seem pretty necessary. Thank you also for your wonderful words and I...
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