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Search took 0.01 seconds. Search: Posts Made By: janet11
Forum: her2group 07-09-2008, 06:45 AM
Replies: 15
Views: 2,244
Posted By janet11
The hospital where I got my MUGAs also said they...

The hospital where I got my MUGAs also said they did not use ports for this because of the radioactivity. However, I ALSO learned that they didn't have anyone trained to USE ports nor did they have...
Forum: her2group 04-17-2008, 11:25 AM
Replies: 3
Views: 1,020
Posted By janet11
I was on TCH. When I had my 5th treatment, I...

I was on TCH. When I had my 5th treatment, I nearly passed out several times a few days later. Turns out my blood pressure was very low. FYI: I was on bp meds for high blood pressure (and had been...
Forum: her2group 03-04-2008, 07:02 AM
Replies: 56
Views: 5,153
Posted By janet11
This has been the greatest board for...

This has been the greatest board for HER2-specific information and support. I don't come often now because I don't feel I need any support any more. But I just come here from time to time to see...
Forum: her2group 03-04-2008, 06:51 AM
Replies: 27
Views: 3,607
Posted By janet11
The main thing for me was that I was able to...

The main thing for me was that I was able to switch from commuting to working from home. I moved my computer from my upstairs office to the kitchen table for the duration of treatment so I didn't...
Forum: her2group 03-03-2008, 10:00 AM
Replies: 20
Views: 2,986
Posted By janet11
I had to stop Herceptin early because of low LVEF...

I had to stop Herceptin early because of low LVEF and the day I got that news, I said "now I can have my port out?". My onc smiled and said yes. I saw my surgeon and had it out 2 weeks later. It...
Forum: her2group 02-11-2008, 07:33 AM
Replies: 25
Views: 2,896
Posted By janet11
Gad. Call your onc nurse (or insist on a call...

Gad. Call your onc nurse (or insist on a call from your onc). You should be getting additional drugs to prevent the nausea.

I found I had acid problems as soon as I started TCH. I used an over...
Forum: her2group 02-07-2008, 08:28 AM
Replies: 9
Views: 1,434
Posted By janet11
My onc recommended the test (September 2006). Am...

My onc recommended the test (September 2006). Am glad to see it's been approved. The test results determined which chemo drugs my onc recommended, so it was worth having it done.
Forum: her2group 02-07-2008, 08:25 AM
Replies: 12
Views: 1,353
Posted By janet11
I had a lumpectomy too. Same reasoning as above...

I had a lumpectomy too. Same reasoning as above -- pathology didn't affect that decision or surgeon's recommendations.
Forum: her2group 01-15-2008, 08:55 AM
Replies: 20
Views: 2,292
Posted By janet11
Nitewind, I had something similar while I was...

Nitewind, I had something similar while I was going through chemo -- I had a couple "almostblacking out" periods where I had to sit or lay down or I'd fall down. Reported it to my onc. They did a...
Forum: her2group 01-11-2008, 09:43 AM
Replies: 17
Views: 1,906
Posted By janet11
Wish I had thought to ask for mine too. Good for...

Wish I had thought to ask for mine too. Good for you (*grin*). (p.s. I DID ask to see what they removed when I had my hysterectomy in 1983. My dr thought I was wierd, but brought it up in a bucket...
Forum: her2group 01-11-2008, 09:41 AM
Replies: 28
Views: 4,005
Posted By janet11
Interesting -- I hadn't heard of blood cancer...

Interesting -- I hadn't heard of blood cancer from the carboplatin. In fact, i hadn't heard of any major side effects from the 'c' at all.

Wish my LVEF had reversed after stopping the Herceptin...
Forum: her2group 01-07-2008, 12:33 PM
Replies: 2
Views: 2,026
Posted By janet11
I'm on 12.5 twice a day too. No headaches...

I'm on 12.5 twice a day too. No headaches though, and I've been on it for low LVEF for about 4 months.

How's your blood pressure? Irregardless, I'd report this to my cardiologist right way. ...
Forum: her2group 12-14-2007, 09:28 AM
Replies: 17
Views: 2,501
Posted By janet11
Hi all, I'm having the same problem: I have some...

Hi all, I'm having the same problem: I have some hair on the sides but little on top. After TCH (last treatment was a year ago), and last Herceptin was in May.... I do the 'monthly celebration'...
Forum: her2group 11-14-2007, 07:08 AM
Replies: 31
Views: 4,720
Posted By janet11
Rebecca, when I knew I wouldn't be continuing...

Rebecca, when I knew I wouldn't be continuing Herceptin, I ASKED my onc if I could get my port out now. She didn't bring up the subject, but I couldn't see having my port only for every-3-month...
Forum: her2group 11-13-2007, 10:15 AM
Replies: 28
Views: 4,005
Posted By janet11
Ahh.. but what I meant to include is: not all...

Ahh.. but what I meant to include is: not all doctors are willing to order this test when there are very few labs that do it and not everyone agrees that this research is definitive. I know others...
Forum: her2group 11-13-2007, 10:13 AM
Replies: 28
Views: 4,005
Posted By janet11
I had the test for the Topo II gene and as a...

I had the test for the Topo II gene and as a result, had a chemo that did NOT include an anthracycline. Turned out good for me since just having Herceptin hit my heart and I had to stop that...
Forum: her2group 10-09-2007, 06:39 AM
Replies: 50
Views: 4,346
Posted By janet11
Even more prayers are winging their way to you --...

Even more prayers are winging their way to you -- for you and for your doctors..
Forum: her2group 10-04-2007, 07:18 AM
Replies: 6
Views: 1,233
Posted By janet11
I have always had very fine hair -- not real...

I have always had very fine hair -- not real thick, but it was ok. I went on TCH and my hair thinned so much it wasn't apparently immediately that there WAS some hair there.

Now 8 months after...
Forum: her2group 09-30-2007, 06:28 PM
Replies: 26
Views: 3,170
Posted By janet11
Gad, love your hair! I've been waiting VERY...

Gad, love your hair! I've been waiting VERY anxiously to get to the point where I could have my first hair cut and style, but it's still too thin (*sigh*) now... 8 months after chemo. Yours looks...
Forum: her2group 09-26-2007, 11:27 AM
Replies: 11
Views: 1,903
Posted By janet11
I used my normal shampoo + conditioner... but...

I used my normal shampoo + conditioner... but just needed a VERY small bit (*smile*). It felt good on my scalp, and was fun to keep at least PART of my routine the same as before chemo.
Forum: her2group 09-26-2007, 11:25 AM
Replies: 24
Views: 3,550
Posted By janet11
I tried a sleep cap from TLC. Every time I...

I tried a sleep cap from TLC. Every time I turned over it got twisted and I finally realized I didn't need it at all. I was perfectly comfortable sleeping cuddled under the covers (during the...
Forum: her2group 09-25-2007, 02:19 PM
Replies: 82
Views: 13,425
Posted By janet11
My onc also recommended the salt water gargle...

My onc also recommended the salt water gargle which I hated. And that didn't do anything against the "sewer mouth". Biotene mouthwash was the only thing that helped. I tried the Biotene toothpaste,...
Forum: her2group 09-06-2007, 11:18 AM
Replies: 23
Views: 2,014
Posted By janet11
Me too (er/pr neg)

Me too (er/pr neg)
Forum: her2group 09-05-2007, 03:19 PM
Replies: 22
Views: 3,593
Posted By janet11
They scheduled mine every 3 months. (or that was...

They scheduled mine every 3 months. (or that was the plan anyway)
Forum: her2group 09-05-2007, 02:54 PM
Replies: 22
Views: 3,593
Posted By janet11
Hmm... went to my primary care dr today and she...

Hmm... went to my primary care dr today and she put me on CoReg. Wish I had found out about this earlier -- I might have been able to continue with the Herception. Oh well, if I don't need Herceptin...
Showing results 1 to 25 of 131
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