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Forum: Herceptin / Tykerb

05-02-2007, 07:04 PM

Replies: 14

Tykerb Side Effects

Views: 4,041

Posted By Lori S

To those experiencing diarrhea on T&X I just...

To those experiencing diarrhea on T&X I just wanted to share my experience with this protocol. I started with 3,300 mg of Xeloda and 5 pills of Tykerb. I too experienced severe diarrhea during the...

Forum: her2group

04-17-2007, 07:22 PM

Replies: 1

Great Book by HER2 Author

Views: 1,551

Posted By Lori S

Great Book by HER2 Author

I would like to recommend a great book called "Take Off Your Party Dress" written by Dina Rabinovitch. Dina is also HER2 and in her book she shares her journey with breast cancer from diagnosis to...

Forum: her2group

04-17-2007, 06:57 PM

Replies: 31

Not the news I was hoping for...

Views: 3,523

Posted By Lori S

Chrissy, I am sorry to hear of your recent...

Chrissy,

I am sorry to hear of your recent recurrence. I wanted to share some very encouraging news. I am currently on the Tykerb/Xeloda trial and a women in our group who has liver mets just had...

Forum: her2group

04-17-2007, 06:31 PM

Replies: 6

Tykerb/Xeloda - Diarrhea

Views: 1,267

Posted By Lori S

Thank you all for your posts relating to the...

Thank you all for your posts relating to the diarrhea. I have just completed my third round of Tykerb/Xeloda. I only had diarrhea two days this last round and it was not as intense as it was at the...

Forum: her2group

04-01-2007, 09:29 PM

Replies: 6

Tykerb/Xeloda - Diarrhea

Views: 1,267

Posted By Lori S

Tykerb/Xeloda - Diarrhea

Is there anyone experiencing diarrhea on their week off from Xeloda? I have completed 2 cycles now and have been having frequent bouts of diarrhea during and after Xeloda. My Onc. has reduced my...

Forum: her2group

10-11-2006, 06:38 PM

Replies: 17

Lung mets suspected. I need info and support

Views: 1,916

Posted By Lori S

Linda, In 12/05 seven months after completing...

Linda,
In 12/05 seven months after completing one year of herceptin, I was diagnosed with lung mets to both lungs. Because of the multiple mets and pattern it was not recommended to have a biopsy....

Forum: her2group

10-09-2006, 07:20 PM

Replies: 15

New Phase II Trial of Combined Monoclonal Antibodies

Views: 2,225

Posted By Lori S

Thank you for your encouragement and support. It...

Thank you for your encouragement and support. It is hard to be positive when 7 out of 10 patients enrolled to date have been dropped from the trial due to either disease progression or cardiac...

Forum: her2group

10-08-2006, 10:21 AM

Replies: 11

Herceptin Covered By insurance

Views: 2,948

Posted By Lori S

In 4/04, I was originally denied by CareFirst BC...

In 4/04, I was originally denied by CareFirst BC BS of MD but this was before the release of the study for early stage bc. My oncologist even wrote a letter on my behalf and I was still denied. I...

Forum: her2group

10-08-2006, 10:09 AM

Replies: 15

New Phase II Trial of Combined Monoclonal Antibodies

Views: 2,225

Posted By Lori S

I received the results from my CT scan this past...

I received the results from my CT scan this past Tuesday 10/3. The scan is after completing 6 cycles of herceptin and pertuzumab given every three weeks. This scan was very disappointing as no...

Forum: Clinical Trials

09-08-2006, 07:49 PM

Replies: 2

New Phase II Trial of Combined Monoclonal Antibodies

Views: 2,441

Posted By Lori S

Just wanted to update you all on my latest ct...

Just wanted to update you all on my latest ct scans after completing 4 cycles of herceptin & pertuzumab. My tumors in my lungs have reduced between 8% & 9% since my start in the trial on 5/31. There...

Forum: her2group

09-08-2006, 07:38 PM

Replies: 15

New Phase II Trial of Combined Monoclonal Antibodies

Views: 2,225

Posted By Lori S

Forum: her2group

08-09-2006, 10:12 AM

Replies: 15

New Phase II Trial of Combined Monoclonal Antibodies

Views: 2,225

Posted By Lori S

Kim, I was originally diagnosed 8/03 grade 3...

Kim,
I was originally diagnosed 8/03 grade 3 DCIS, stage III, and 8/15 lymph nodes with cancer. I had neo-adjuvant treatment consisting of 3 Taxotere and 5 A/C dose dense, followed by left mastecomy...

Forum: her2group

08-07-2006, 08:18 PM

Replies: 15

New Phase II Trial of Combined Monoclonal Antibodies

Views: 2,225

Posted By Lori S

New Phase II Trial of Combined Monoclonal Antibodies

I just wanted to let you all know about this new clinical trial at NIH. The protocol # of the trial is 06-C-0035. The combined monoclonal antibodies are Trastuzumab (Herceptin) and Pertuzumab. I am...

Forum: Clinical Trials

08-07-2006, 06:33 PM

Replies: 2

New Phase II Trial of Combined Monoclonal Antibodies

Views: 2,441

Posted By Lori S

Forum: Clinical Trials

05-15-2006, 06:33 PM

Replies: 2

kat in the Delta

Views: 1,750

Posted By Lori S

Kat, I was originally diagnosed in Sept....

Kat,

I was originally diagnosed in Sept. 2003 and my recurrence was to my left & right lungs with multiple lesions occurred 7 months after completing neoadjuvant chemo, surgery, radiation and one...

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