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Forum: her2group 05-27-2015, 05:49 AM
Replies: 44
Views: 105,421
Posted By Rupali
Re: Kadcyla Side Effects

Has anyone experienced dizziness while lying down on bed while on Kadcyla. I am on Kadcyla (9 cycles done). Till 8 cyckes I had not experienced any major side effects of Kadcyala. However after the...
Forum: her2group 05-14-2015, 07:12 AM
Replies: 44
Views: 105,421
Posted By Rupali
Re: Kadcyla Side Effects

After 6 cycles we got a Pet Scan done and the doctor said that there wa almost 90% regression. I feel well too. Only thing worries me is teh CA 15.3 increasing. I get CEA also done and that too is...
Forum: her2group 05-10-2015, 02:09 AM
Replies: 44
Views: 105,421
Posted By Rupali
Re: Kadcyla Side Effects

I must add to my previous post that when my recurrence was found then CA 15.3 was at 306
Forum: her2group 05-10-2015, 02:00 AM
Replies: 44
Views: 105,421
Posted By Rupali
Re: Kadcyla Side Effects

I have done 9 cycles of Kadcyla now. Everything going fine and I am able to manage with the side effects too. Only concerning thing is that the CA 15.3 seems to be increasing gradually. I am very...
Forum: her2group 03-13-2015, 11:39 PM
Replies: 44
Views: 105,421
Posted By Rupali
Re: Kadcyla Side Effects

I have done 6 cycles of TDM1 and got very good response. My doc says that the cancer is almost gone. It was extensive in bones, lung, liver and brain. I am planning to continue for another 6 cycles...
Forum: her2group 03-13-2015, 11:29 PM
Replies: 22
Views: 6,047
Posted By Rupali
Re: Stage IV. 3 years NED with Kadcyla/TDM1!

Great news Michka. Why dont you try by increasing the intervals in the dose. Like you should now go for 6 weeks interval and then you can see again after 6 months, if things are ok which I hope will...
Forum: her2group 11-29-2014, 04:16 AM
Replies: 6
Views: 1,886
Posted By Rupali
Taxol

I was wondering does anyone know if taxol crosses blood brain barrier. If it does then when people are on Hercepting plus taxol regimen then what is the protocol. Also is tere a way to save my hair...
Forum: her2group 11-29-2014, 03:47 AM
Replies: 1
Views: 1,743
Posted By Rupali
Hair regrowth after Whole Brain radiation

I had whole brain radiation (they said low dose) and I had 10 sittings of it which ended on Ocotber 4th. I am not seeing any hair growing back so far...I am worried when will the hair start growing...
Forum: her2group 11-26-2014, 06:00 PM
Replies: 9
Views: 3,128
Posted By Rupali
Re: Herceptin plus tykerb after kadcyla

Hi Phil
I get your point on herceptin being biological and alone not being as strong.
Maybe we look at adding taxol on a 6 weekly dose, thinking out loud.
Regarding the vaccine, is that available...
Forum: her2group 11-24-2014, 05:37 PM
Replies: 9
Views: 3,128
Posted By Rupali
Re: Herceptin plus tykerb after kadcyla

Please post your views
Forum: her2group 11-21-2014, 10:25 AM
Replies: 9
Views: 3,128
Posted By Rupali
Herceptin plus tykerb after kadcyla

Dear All
I am thinking out loud here and want to hear from all of you
Or want you to pose this question to your oncologists as I live in India and the oncologist in the USA are much more...
Forum: Herceptin / Tykerb 10-02-2014, 08:38 PM
Replies: 2
Views: 8,007
Posted By Rupali
Does TDM1 cross blood brain barrier

Did anyone of you have TDM1 with metastasis to brain lung liver and bones.
How were the results and how many cycles did it take to get a good result.
Please please reply as tdm1 seems to be my last...
Forum: her2group 09-29-2014, 10:04 AM
Replies: 4
Views: 3,299
Posted By Rupali
Tykerb + Xeloda success stories

Dear All,
I am utterly confused at present on the chemo combination. More I read on the internet more I get confused as to whats the best combination for me.
I have been diagnosed with Metastatis...
Forum: Herceptin / Tykerb 09-23-2014, 04:48 AM
Replies: 2
Views: 7,668
Posted By Rupali
Tykerb + Xeloda side effects and how to handle

I will soon be starting TYkerb + Xeloda for breast cancer metastasis to Brain, Bone ( Spine), Lung and liver.
What has your experience been. What are the side effects and how to handle them.
How...
Forum: her2group 09-17-2014, 07:08 AM
Replies: 17
Views: 3,045
Posted By Rupali
Re: Dragon is back....need support

So I am back here looking for advice from all of you.
So the biopsy results came back as ER+, PR- and Her2 equivocal. They have sent for FISH test for Her2.
They have started radiation for brain...
Forum: her2group 09-11-2014, 07:02 AM
Replies: 17
Views: 3,045
Posted By Rupali
Re: Dragon is back....need support

Michele U are you still active on this forum
Forum: her2group 09-11-2014, 06:35 AM
Replies: 17
Views: 3,045
Posted By Rupali
Dragon is back....need support

Hi All,
I am back to this board after some time and with not very good news.
After 10 years being NED I have been diagnosed with a severe metastasis to Bones, Spine, Lung, Liver and brain.
Very...
Forum: her2group 02-06-2008, 08:44 PM
Replies: 9
Views: 1,445
Posted By Rupali
Hi Michele, Great to see you after some time....

Hi Michele,
Great to see you after some time. How many months did u take the Tykerb monotherapy.
Cheers
Rupali
Forum: Herceptin / Tykerb 01-28-2008, 07:58 AM
Replies: 11
Views: 2,236
Posted By Rupali
I talked to my onc abt Herceptin and Tykerb and...

I talked to my onc abt Herceptin and Tykerb and he said as they are running the Neo ALTO trial so there has to be some clinical evidence to start the trial.
Plus if you see logically Tykerb +...
Forum: her2group 01-19-2008, 12:53 PM
Replies: 16
Views: 2,537
Posted By Rupali
Hi Lisa, I had similar pains. Got the blood...

Hi Lisa,
I had similar pains. Got the blood work done. The liver enzymes came slight bit higher. Doc asked to stop tykerb for one week.
Got the Liver function test done again and all enzymes back...
Forum: her2group 01-06-2008, 06:09 PM
Replies: 16
Views: 2,537
Posted By Rupali
Hi Lisa, Are you on aromasin and Tykerb... I...

Hi Lisa,
Are you on aromasin and Tykerb...
I have similar feeling and I am going to the doc tomorrow...
Regards,
RUpali
Forum: Herceptin / Tykerb 01-04-2008, 04:26 PM
Replies: 13
Views: 6,587
Posted By Rupali
Hi, I have been on tykerb alone since November...

Hi,
I have been on tykerb alone since November 29th, 2007. I also take 5 pills at night and suddenly from last one week have a dull achy pain on the right side just below my ribs...
Did you also...
Forum: her2group 11-07-2007, 09:42 AM
Replies: 10
Views: 2,323
Posted By Rupali
Someone please respond

Someone please respond
Forum: her2group 11-07-2007, 08:47 AM
Replies: 10
Views: 2,323
Posted By Rupali
Move to Canada or not

Hi all,
I know there are some people on this forum from Canada and lot from the US. I need some help from you to make some very important decisions in life and me and my husband are totally...
Forum: Herceptin / Tykerb 09-05-2007, 02:51 PM
Replies: 17
Views: 3,413
Posted By Rupali
Dpnt worry, you will be fine now...Just keep...

Dpnt worry, you will be fine now...Just keep walking and start fish oil Buy Carlsons Fish oil. You can get it at WHole Foods. And also start with COQ10
Showing results 1 to 25 of 148
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